The On-Air Advocate: Recent Episodes
Tammy Flynn: podcaster, youtuber, advocate & caregiver
The On-Air Advocate podcast looks to provide education, support, and empowerment for everyone with different abilities, mental and medical illness, and their caregivers.
As we continue our Back To School & Transition Series, I am excited to welcome Kristen Corrie, Owner of Sweet Abilities, Life Skills Job Coach, Special Education Teacher and employees Carla & Bret.
Kristen Corrie taught transition age young adults at Lakeland School for 13 years and helped prep them for life after school. As a special education teacher she became discouraged seeing how many of her former students were not out working in the community after they graduated from my classroom. So she started Sweet Abilities in June 2020 with the mission to provide fulfilling and accommodating work opportunities so that all abilities can shine. Sweet Abilities is a mobile ice cream/sweet treat business that serves only locally made products with no artificial dyes or flavors. More importantly they employ 8 young adults who all have varying needs and abilities.
Listen in Kristen shares more about Inclusion in the workplace, providing accommodating opportunities and following your dreams.
I would highly recommend checking out the YouTube video to see Sweet Abilities in action :) - https://youtu.be/L_1qbwGo0q8
Resources:
Sweet Abilities - on Facebook & Instagram
Purple Door Ice Cream
Tas-T Treats & Sweets
Carrie's Crispies
Pete's Pops
After interview message from Kristen: I hope we helped spread the word about the need for accommodating community work environments for those with all abilities as well as showing those watching how making a dream happen IS possible!
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
#meaningfulwork #inclusion #accommodatingworkenvironments
As we continue our Back To School & Transition Series 📚 I am excited to welcome Dr. Meagan Orsag, Director of Rural Programs at the Center on Disability and Development at Texas A&M University and Angela Griffin, Program Coordinator for iGROW.
🌱 About iGROW :
The "I Generate Rural Opportunities for Work" (iGROW) Project is a transition-focused model that includes pre-employment and leadership-training for up to 20 students with disabilities per cohort per year who are currently enrolled in middle school and high school (ages 14-22).
The purpose of the program is to provide a training environment to support students with disabilities to gain the necessary skills and experiences in work readiness in order to successfully transition into postsecondary education and/or competitive integrated employment.
The program focuses primarily on five core Pre-ETS (Pre-Employment Transition Services) areas, which include:
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Counseling in post-secondary educational programs or college level courses
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Job Exploration Counseling
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Workplace Readiness training to develop social skills and independent living
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Work based learning experiences
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Instruction in self-advocacy
Meagan & Angela share all about the iGROW; Rural Transition Project for Youth with Disabilities.
Connect with iGROW:
https://www.facebook.com/igrowtamu/
https://www.instagram.com/igrow_tamu/
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series 📚 I am excited to welcome Evelyna Castro, Adaptive Trainer/Instructor & Makeup Artist/Designer.
Evelyna has has had a passion for fitness and the arts practically her whole life, though she does not come from a very performing arts oriented family.
Evelyna grew up in San Jose, CA. with her four other siblings. Evelyna is number two in the lineup.
Listen in as Evelyna shares how she turned her passion into employment.
Connect with Evelyna:
IG: @trainer.nutrition.coach
FB: Evelyna Castro
FB Pages: Evelyna Personal Trainer & Instructor
Makeup by Evelyna
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series 📚 I am excited to welcome James Collins, Associate Professor of Special Education / Director of UW-W LIFE.
Dr. James Collins is a school psychologist, board certified behavior analyst, and an associate professor of special education. His professional and research interests include postsecondary programming for students with intellectual disabilities, special education law, assessment, and behavior modification.
Listen in as James shares all about the UW-W Life Program.
Connect with UW-W Life Program:
https://www.facebook.com/UWWLIFE/
https://twitter.com/ProgramUw
https://www.instagram.com/uwwlifeprogram/
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series 📚 I am excited to welcome Robin Miller, Director of Employment Programs, TAMU CDD.
Robin Miller is Director of Employment Programs at Texas A&M's Center on Disability and Development, where she coordinates the center's Work-Based Learning and Transition Capacity-Building projects. Prior to joining the Center on Disability and Development, she worked in Special Education for 20 years, serving as an autism specialist, behavior specialist, and special education coordinator.
Listen in as Robin shares all about Texas A&M University's Work-Based Learning and Capacity-Building projects.
Learn More: https://cdd.tamu.edu/
https://www.facebook.com/TAMUCDD/
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series 📚 I am excited to welcome Tara Tuchel, Speech/Language Pathologist and Founder of Autism Little Learners.
Tara is a speech/language pathologist who has been teaching young autistic children for over 2 decades. She has had the unique position to run her own communication-based classroom and team teach with a special education teacher. She started Autism Little Learners in March of 2019, about 6 weeks after she lost her dad to leukemia. The grief was so deep and so raw after he died that she needed something to distract her mind from the pain. She started a store on Teachers Pay Teachers because she was already making so many of her own materials for her classroom. It can be so difficult to find good resources that are at the right level for 3 and 4 year old autistic children! She figured that she couldn’t be the only one having this issue, so she started creating resources and activities for educators and parents of young autistic children.
Listen in as Tara shares 5 Tips To Help With The Back To School Transition!
Connect with Tara:
www.autismlittlelearners.com
https://www.facebook.com/autismlittlelearners/
www.instagram.com/autismlittlelearners
https://www.youtube.com/channel/UCTpUyl_mrGB_rmYZ02UFAlA
https://www.tiktok.com/@autismlittlelearners?is_from_webapp=1&sender_device=pc
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series 📚 I am excited to welcome Dede & Peter Dankelson, Owners & Creators of Pete's Diary.
Dede and Peter Dankelson are co-owners of Pete’s Diary. Dede is the managing partner, author, and content creator. Peter is the musician and speaker.
Over 700k social media followers have found inspiration and motivation from their music, books, and merchandise.
Peter's story and talent is the inspiration that fuels Pete's Diary. He is 21 years old and undergone 37 surgeries to correct birth defects due to Goldenhar Syndrome.
Peter found his passion for playing guitar at the age of 15 and used it to get through his toughest recoveries. His music is available on all streaming platforms.
Listen in as Dede & Pete share their amazing journey with us, what Pete’s Diary is all about and how to purse your passions and Rock Your Life 🎸
Connect with Pete’s Diary:
https://www.petesdiary.com/
https://www.facebook.com/PetesDiary
https://www.instagram.com/petes.diary/
https://twitter.com/Petes_Diary
https://www.tiktok.com/@petesdiary?is_from_webapp=1&sender_device=pc
https://www.youtube.com/c/PeterDankelsonOfficial
https://www.linkedin.com/in/dededankelson/
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series 📚 I am excited to welcome Tracy Glass, PATHS Program Coordinator, Heather Dulas, Dr. / Program Director, Aggie ACHIEVE and Eric Roberts, Director of Postsecondary Education.
📚 Tracy is currently the PATHS Program Coordinator working with students of all abilities to help them achieve their employment and educational goals.
📚 Heather M. Dulas, Ph.D. is the Program Director for Aggie ACHIEVE at Texas A&M University. Dr. Dulas earned her Ph.D. in Educational Psychology at Texas A&M University where she also served as a job coach for Aggie ACHIEVE and the Child Care Professional Instructor for the PATHS Program. She also holds Bachelor of Science degrees in Elementary and Special Education from St. Cloud State University and a Master of Arts degree in Education with an emphasis on autism spectrum disorders from Hamline University. Her research interests include increasing access to inclusive postsecondary education opportunities and developing self-determination skills among individuals with disabilities. Dr. Dulas has 21 years of teaching experience in the public high school special education setting and 4 years teaching experience in inclusive postsecondary settings along with lifelong experience as a sibling and strong advocate for a younger brother with multiple disabilities. She is also the proud parent of Bailey, Fightin’ Texas Aggie Class of ‘21.
📚 Dr. Eric Roberts received his doctoral degree from Texas A&M and has a wealth of experience in transition education and services for individuals with disabilities. He taught secondary special education in the Houston area, led several transition-related projects at Texas A&M University's Center on Disability and Development, and worked in the College Station Independent School District as the Transition and Instructional Coordinator. He supported and collaborated with local, statewide, and national disability-focused agencies and organizations on several initiatives in these roles. Currently, Dr. Roberts is the Director of Postsecondary Programs, where he supports Aggie ACHIEVE, PATHS, and other training initiatives.
Listen in as we learn all about Texas A&M University's PATHS and Aggie ACHIEVE Programs.
Connect with PATHS: https://paths.tamu.edu/
Connect with Aggie ACHIEVE Program: https://aggieachieve.tamu.edu
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series 📚 I am excited to welcome Scott Perkins, Director of Admissions.
Scott Perkins is the Director of Admissions for Shepherds College (SC), a fully accredited post-secondary vocational training school designed specifically for students with intellectual and developmental disabilities in Union Grove, WI. Scott has served at SC for five years in various roles. In his current role, he works with families as they apply to Shepherds College. Before coming to SC, he was a School Counselor in districts in South Eastern Wisconsin.
Listen in as Scott shares about Shepherds College and new classes, programs and opportunity that are being offered.
Connect with Shepherds College:
Facebook: https://www.facebook.com/shepherdscollege
Instagram: https://www.instagram.com/shepherdscollege/
Twitter:https://twitter.com/ShepherdsCollge
Connect with Scott : sperkins@shepherdscollege.edu or call 262-878-6371
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series 📚 I am excited to welcome Jill Urbane, The Mentor Mom.
Jill Urbane, aka, The Mentor Mom, is a Parent Educator and Social Worker who has been working with families in their homes for nearly thirty years. The bulk of her work has been as an Early Childhood Interventionist working with parents of toddlers and preschoolers with developmental delays. She is passionate about supporting families by providing them with the foundational knowledge, understanding and skills needed to help parents foster healthy growth, development and learning in their child while finding their parenting mojo.
Listen in as Jill shares All Things Back To School: Preschool Edition. We will cover child development, behaviors & much more!
Connect with Jill:
Website: www.thementormomblog.com
YouTube: https://www.youtube.com/channel/UCFQsS7XZAyDX1whB9ysRdoQ
Facebook: https://www.facebook.com/TheMentorMom/
TikTok: https://www.tiktok.com/@therealmentormom
Instagram: https://www.instagram.com/thementormom/
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series 📚 I am excited to welcome Lisa Dickie, Owner, Dickie's Cooking School.
Lisa opened Dickie's Cooking School in 2017 with a goal to teach people how to cook delicious and healthy meals for themselves. She is passionate that cooking classes should be accessible to everyone. Since then she has developed cooking classes and workshops for children and adults. Lisa used her experience as a Special Education Teacher to develop cooking and life skills classes for neuro-diverse adults and tailored programs for adults with autism, epilepsy and Down Syndrome.
Listen in as Lisa shares all about her cooking classes and the importance of learning life skills.
Connect with Lisa:
https://www.instagram.com/dickiescook... https://www.facebook.com/Dickiescooki...
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadv...
Youtube: https://www.YouTube.com/c/TheOnAirAdv...
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcar...
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series 📚 I am excited to welcome Sarah Sweeney, MSW.
Sarah Sweeney is 37 years old, and has her masters degree in social work. She likes to get to know people and hear their stories and really understand what makes them who they are. Currently, Sarah is in a transitional phase of life right now and sometimes that's not easy, but she feels it is important to keep learning and growing because in moving forward you never know what could be around the corner.
Listen in as Sarah shares her journey and insight on transition, living life with a disability, moving, and employment.
Connect with Sarah:
@ridingthewave1984 - Instagram
@SSWEENZ - Twitter
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series 📚 I am excited to welcome Tylia L. Flores, Author and disability activist, radio station co-owner.
Tylia L. Flores is a twenty-seven-year-old born with Splastic Dysplasia Cerebral Palsy. Despite her condition that affects her mobility, she does not allow it to affect her will and determination to make a difference in the world. Through her many life challenges and obstacles, she discovered her passion for writing. Tylia’s goal in life is to share her stories with the world. In doing so, she hopes to help others with disabilities realize that they, too, have the potential to make their dreams come true. Tylia is not only an author. She's a radio show personality and disability activist.
Listen in as Tylia shares her story of how she pursued her passion to become an Author and more.
Connect with Tylia:
https://www.amazon.com/Tylia-L-Flores/e/B0B3Y83ZJ5?ref=sr_ntt_srch_lnk_2&qid=1660576852&sr=8-2
https://tyliaflores.com/
https://twitter.com/stompingoncp1
https://www.facebook.com/Stompingoncpwithtylia
https://www.instagram.com/stomping_on_cp_with_tylia/
https://anchor.fm/joey-tylia-odum
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series 📚 I am excited to welcome Tylia L. Flores, Author and disability activist, radio station co-owner.
Tylia L. Flores is a twenty-seven-year-old born with Splastic Dysplasia Cerebral Palsy. Despite her condition that affects her mobility, she does not allow it to affect her will and determination to make a difference in the world. Through her many life challenges and obstacles, she discovered her passion for writing. Tylia’s goal in life is to share her stories with the world. In doing so, she hopes to help others with disabilities realize that they, too, have the potential to make their dreams come true. Tylia is not only an author. She's a radio show personality and disability activist.
Listen in as Tylia shares her story of how she pursued her passion to become an Author and more.
Connect with Tylia:
https://www.amazon.com/Tylia-L-Flores/e/B0B3Y83ZJ5?ref=sr_ntt_srch_lnk_2&qid=1660576852&sr=8-2
https://tyliaflores.com/
https://twitter.com/stompingoncp1
https://www.facebook.com/Stompingoncpwithtylia
https://www.instagram.com/stomping_on_cp_with_tylia/
https://anchor.fm/joey-tylia-odum
Best Ways to Connect with The On-Air Advocate:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series, I am excited to welcome Chris Blezien.
Chris has mild Cerebral Palsy and is 40 years old. He has been actively involved in the transition process since the beginning. Which started in school where he participated in his IEP meetings since grade school. When he graduated he used the department of rehabilitation services to help navigate job shadowing as well employment opportunities through the ticket to work program.
He has had several jobs including: an internship at Walt Disney World in Orlando Florida. He was a guest services host. Additional, he has worked for Kane County Cougars baseball club in the souvenir shop as a cashier and at Walmart as a greeter.
Listen in as Chris shares his personal story along with resources and organization that he has found helpful. Plus, some areas of the transition process that could benefit from change.As we continue our Back To School & Transition Series.
Best Ways to Connect:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we continue our Back To School & Transition Series, I am excited to welcome Chris Blezien.
Chris has mild Cerebral Palsy and is 40 years old. He has been actively involved in the transition process since the beginning. Which started in school where he participated in his IEP meetings since grade school. When he graduated he used the department of rehabilitation services to help navigate job shadowing as well employment opportunities through the ticket to work program.
He has had several jobs including: an internship at Walt Disney World in Orlando Florida. He was a guest services host. Additional, he has worked for Kane County Cougars baseball club in the souvenir shop as a cashier and at Walmart as a greeter.
Listen in as Chris shares his personal story along with resources and organization that he has found helpful. Plus, some areas of the transition process that could benefit from change.As we continue our Back To School & Transition Series.
Best Ways to Connect:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we kick off our Back To School & Transition Series 📚 I am excited to welcome to Friday’s show, Mackenzie Edinger, Owner of Inclusion Coffee Company.
Mackenzie opened Inclusion Coffee Company after years of working with Special Education students and adults, and realized that she wanted to do something outside of a school building. The Inclusion Coffee Company provides jobs and opportunities for individuals with disabilities to enrich their lives.
Listen in as Mackenzie shares all about the Inclusion Coffee Company ☕️
Learn more at : www.inclusioncoffeecompany.com
Best Ways to Connect:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we kick off our Back To School & Transition Series 📚 I am excited to welcome to Friday’s show, Mackenzie Edinger, Owner of Inclusion Coffee Company.
Mackenzie opened Inclusion Coffee Company after years of working with Special Education students and adults, and realized that she wanted to do something outside of a school building. The Inclusion Coffee Company provides jobs and opportunities for individuals with disabilities to enrich their lives.
Listen in as Mackenzie shares all about the Inclusion Coffee Company ☕️
Learn more at : www.inclusioncoffeecompany.com
Best Ways to Connect:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
As we kick off our Back To School & Transition Series 📚 I am excited to welcome to Friday’s show, Cindy Folk, Author & Entrepreneur.
Cindy Folk was born and raised in Regina, Saskatchewan, Canada. She attended the University of Regina, majoring in finance, but has always had a creative side that was bubbling just below the surface. Northern Escape is her debut novel and her inspiring to help other passionate writers learn more about self-publishing.
Listen in as Cindy shares 5 Reasons To Write ✍️
Download your FREE guide from Cindy : 7 Key Steps to Get You Started! and can be found on Cindy's website at www.cindyfolkauthor.com/self-publishing
Best Ways to Connect :
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
Best Ways To Connect with Cindy: https://www.instagram.com/cindyfolkauthor https://www.facebook.com/cindyfolkauthor https://www.twitter.com/cr_folk https://www.cindyfolkauthor.com
As we kick off our Back To School & Transition Series 📚 I am excited to welcome to Friday’s show, Cindy Folk, Author & Entrepreneur.
Cindy Folk was born and raised in Regina, Saskatchewan, Canada. She attended the University of Regina, majoring in finance, but has always had a creative side that was bubbling just below the surface. Northern Escape is her debut novel and her inspiring to help other passionate writers learn more about self-publishing.
Listen in as Cindy shares 5 Reasons To Write ✍️
Download your FREE guide from Cindy : 7 Key Steps to Get You Started! and can be found on Cindy's website at www.cindyfolkauthor.com/self-publishing
Best Ways to Connect :
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
Best Ways To Connect with Cindy: https://www.instagram.com/cindyfolkauthor https://www.facebook.com/cindyfolkauthor https://www.twitter.com/cr_folk https://www.cindyfolkauthor.com
It is so important as a special needs parent to surround yourself with positive energy and uplifting voices. Finding those that make you smile and feel supported. Sometimes finding those individuals isn't so easy. As many can't understand the journey we are on...
Listen in as we have a quick chat about finding those uplifting voices and protecting our peace. The resources I spoke about are listed below:
Get Your Guide Now: The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Additional Ideas & Resources:
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Local library for audio books
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Audible
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Youtube videos
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Explore different podcasts
Some of My Favorites Books of 2022:
The High 5 Habit & The 5 Second Rule - Mel Robbins, The Power of One More - Ed Mylett, How Are You. Really? - Jenna Kutcher, The Gap and the Gain - Dan Sullivan and Dr. Bejamin Hardy
Best Ways to Connect:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
Entitlement vs Eligibility Services ... What the heck does that mean? Take 10 minutes today to listen in and learn more about the tranistion process. Having a clear understanding of this before your young adult with special needs starts the transition process is crucial to set you and your family up for success.
In addition, I am so excited about our transition series that kicks off this Friday. We have almost 20 different amazing schools, organizations, employers and individuals to share ideas and resources to help as your young adult transitions high school and beyond. Make sure you are connected to us on our one of our social media platforms to get notified when we go LIVE!! It's go to be an exciting series ... you won't want to miss!
Best Ways to Connect:
Send me a message: https://www.onairadvocate.com/contact
Instagram: https://www.instagram.com/theonairadvocate
Youtube: https://www.YouTube.com/c/TheOnAirAdvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
The Self-Care Toolkit for Special Needs Parents: https://www.onairadvocate.com/selfcaretoolkit-parents.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
Let's be honest friends trying to sleep at the hospital can be maddening. Here are a few helpful tips from our personal experiences sleeping at the hospital over the last 2 1/2 decades.
Also, super excited to be back after a month and a half of doing the hospital hustle with my son. Below are some of the resources I mentioned in the episode.
Thanks again for listening in ... I appreciate y'all :)
Full Hospital Check List Coming Soon ...
Best Ways to Connect:
Send me a message: https://www.onairadvocate.com/contact
Join Me On Instagram: https://www.instagram.com/theonairadvocate
Join the OAA Facebook community: https://bit.ly/oaacommunity
The Self-Care Toolkit for Caregivers: https://www.onairadvocate.com/selfcaretoolkit-caregivers.html
Check out my book Transitioning from a Pediatrician to an Adult Physician: https://amzn.to/3OFtJM0
Music Box: Search Soothing Music Machine For Sleep On Amazon
As our Summer Series continues ...
The Power of Preplanning
I think we can all agree that being prepared and taking time to preplan can calm chaos and overwhelm throughout each day. Listen in to today's 10 minute shorty episode ( its really 20 minutes but giving myself grace) as we go through 17 simple preplanning strategies to help you go from chaos to calm.
As I spoke about in the episode I want to share this very special new FREE resources from The On-Air Advocate: The Self-Care Toolkit for Special Needs Parents . This 15 page uplifting guide takes you through the power of affirmations, moments of gratitude, movement activities, calming practices and more. Remember self-care is the best care.
Thank you for tuning in! I would love to learn more about you, your journey, and what brought you to this episode The Power of Preplanning. Send me a message here and let's connect!
Special Needs Parenting is definitely a marathon not a sprint. Being able to give yourself grace is vital. Listen in to this 10 minute shorty episode as we go through some simple and easy ideas to implement. As I spoke about in the episode I want to share this very special new FREE resources from The On-Air Advocate: The Self-Care Toolkit for Special Needs Parents. This 15 page uplifting guide takes you through the power of affirmations, moments of gratitude, movement activities, calming practices and more. Remember self-care is the best care.
Thank you for tuning in! I would love to learn more about you, your journey, and what brought you to this episode Give Yourself Grace. Send me a message here and let's connect!
Welcome to our New Series called 10 minutes with Tammy. These shorty episodes provide quick and helpful tips, tools and strategies for parents of children, teens and young adults with special needs and complex medical conditions. In addition, giving us a transparent space to chat about our trials and triumphs. As we all navigate and advocate our way through this overwhelming but yet super amazing journey we call life. Thank you Friends for joining me :) If you have topics you would like me to cover please head over to www.onairadvocate.com and send me a note on our contact page.
As we continue our Cholangiocarcinoma Series I am excited to welcome, Peter Langmuir, M.D., Group Vice President, Oncology Targeted Therapies, Incyte.
Peter Langmuir, M.D. is Group Vice President of Oncology Targeted Therapeutics at Incyte.
Dr. Langmuir earned his medical degree at the Yale University School of Medicine and trained in pediatrics and pediatric hematology-oncology at The Children’s Hospital of Philadelphia.
He has worked in the pharmaceutical and biotech industry for the past 18 years, focusing primarily on the clinical development of targeted therapies for both solid tumors and hematologic malignancies.
Listen in as Peter shares about the collaboration between Incyte and the Cholangiocarcinoma Foundation with drug development & patient advisory boards.
Learn More About Cholangiocarcinoma At: https://cholangiocarcinoma.org/
Visit http://www.onairadvocate.com for information on all of our products, services & resources.
#bileductcancer
As we continue our Cholangiocarcinoma Series I am excited to welcome, Melinda Bachini Director of Advocacy, Cholangiocarcinoma Foundation.
Melinda Bachini is a 12-year survivor of cholangiocarcinoma. She was diagnosed in 2009 with Stage IV intrahepatic cholangiocarcinoma. Her treatments have included: Liver resection, chemotherapy, clinical trial with Adoptive Cell Therapy, and pembrolizumab.
Melinda is married and the mother of six children. She is passionate about patient advocacy. Her personal experience with the previous and current treatments allows for great insight to patients participating in clinical trials. Her function as moderator of the cholangiocarcinoma discussion board, allows Melinda to interact, support and educate others touched by this cancer. She shares her story with as many cancer patients as possible in hopes of giving courage to those in need.
Listen in as Melinda shares her perspective as a patient and advocating for Cholangiocarcinoma.
Learn More About Cholangiocarcinoma At: https://cholangiocarcinoma.org/
Visit http://www.onairadvocate.com for information on all of our products, services & resources.
As we continue our Cholangiocarcinoma Series I am excited to welcome to the show, Milind Javle, M.D.
Milind Javle is a medical oncologist from Houston, TX. He is currently the Hubert L. and Olive Stringer Professor at UT MD Anderson Cancer Center, he is also the current chair, NCI Task Force, Hepatobiliary Cancers, former chair of the International Cholangiocarcinoma Research Network, Vice President of the Cholangiocarcinoma Foundation: Clinical and Scientific Advisory Board. He graduated from Grant Medical College, Mumbai, India and completed his residency in SUNY, Buffalo, NY, and oncology training at Roswell Park Cancer Institute, NY. He has authored over 200 articles in peer-reviewed literature, has been the principal investigator for several phase 1-3 clinical trials and served in an advisory capacity to pharmaceutical companies, regulatory and networking bodies. He has held leadership positions in the American Society of Clinical Oncology and Hepatobiliary Conventions. He has led/ participated in pivotal clinical trial of infigratinib and ivosidenib which led to FDA approvals and is regarded as one of the international leaders in this field.
Listen in as Dr. Javle helps us Get to know Cholangiocarcinoma.
Learn More About Cholangiocarcinoma At: https://cholangiocarcinoma.org/
Visit http://www.onairadvocate.com for information on all of our products, services & resources.
As we kick off our Cholangiocarcinoma Series I am excited to welcome to the show, Stacie Lindsey, Founder and CEO of the Cholangiocarcinoma Foundation.
Stacie Lindsey is the Founder and Chief Executive Officer of the Cholangiocarcinoma Foundation (CCF). She and the Foundation were the first cancer advocacy organization to participate in the FDA’s Project Livin’ Label educational initiative through the video Episode 2 – Pemigatinib: The Backstory. Lindsey serves on the Steering Committee of the Global Cholangiocarcinoma Alliance, the Program Steering Committee of the Cholangiocarcinoma Summit, is a founding member of the organizing committee of the Asia Pacific Cholangiocarcinoma Conference, is a Patient Advocate on the Mayo Clinic Hepatobiliary SPORE and the Massachusetts General Hospital Hepatobiliary SPORE. She also serves on Executive Committee Member of the GI Cancers Alliance and is a Founding Member of the International Cholangiocarcinoma Research Network (ICRN), a global consortium of researchers from more than 85 leading institutions in 16 countries
Listen in as Stacie shares the mission of the Cholangiocarcinoma Foundation and the progress that has been made over the last 15 years of the Cholangiocarcinoma Foundation.
Learn More About Cholangiocarcinoma At: https://cholangiocarcinoma.org/
Visit http://www.onairadvocate.com to learn more about our products, services & resources.
As we continue our VEDS Series, I am so excited to welcome, Meg & Zoe. Meg is a 41 year old mother, wife, registered nurse, and patient living with Vascular type Ehlers-Danlos syndrome (vEDS). Meg was diagnosed with the condition after several years of seeking answers for medical issues including multiple aneurysms. Meg's parents tested negative for vEDS, however her two children were found to have inherited the condition from her. Meg now works as the clinical nurse navigator for the Hoag Marfan Syndrome & Related Conditions program in Newport Beach, CA where she has focused her nursing career as an advocate for patients and families fighting rare cardiovascular connective tissue disorders. Meg and her husband, Brian, live in Southern California and make a blended family of six with Tommy (age 11), Zoe (age 11), Ben (age 9) and Izaak (age 5). Zoe is Meg's 11 year old daughter, also living with (vEDS). Zoe was diagnosed shortly after Meg at the age of 5. While Zoe's own clinical manifestations of vEDS have been subtle, the impact of vEDS still looms in background. Having now lived more than half her life knowing she has this condition, Zoe offers a unique perspective on living with vEDS as she transitions into young adulthood. Listen in as Meg & Zoe share their personal story and journey of living with Vascular Ehlers-Danlos. Learn More About VEDS at : https://www.thevedsmovement.org Learn More About The On-Air Advocate at: https://www.onairadvocate.com also check out our latest blog 11 Quick Tips For Traveling With A Chronic Illness :https://mailchi.mp/d0058c8413c4/travelingwithchronicillness
As we continue our VEDS Action Month Series, I am so excited to welcome to the show, Katie Wright, Director of The VEDS Movement.
Katie Wright was diagnosed with VEDS, or Vascular Ehlers-Danlos Syndrome, in 2017. Her diagnosis provided the answer for the unexplained neck pain she had been dealing with for over a year, which turned out to be a dissected carotid artery.
Katie's diagnosis inspired her to get involved in advocacy for VEDS. She first started a YouTube channel, and then started a podcast, Staying Connected, featuring stories from other people with VEDS. In 2018, she got involved in research through work with the VEDS Collaborative, and in 2019 she joined The Marfan Foundation to launch a dedicated division for VEDS- now known as The VEDS Movement.
Listen in as Katie shares all about The VEDS Movement and VEDS Action Month.
Make sure you never miss out on our informative newsletters and new videos/podcasts go to www.onairadvocate.com today & sign up :)
#thevedsmovement
#vedsactionmonth
As we kick off our VEDS Action Month Series, I am so excited to welcome to the show, Dr. Josephine Grima, Chief Science Officer - The Marfan Foundation.
Dr. Josephine Grima is in charge of The Marfan Foundation Research and Science Program and also helps direct The VEDS Movement. The VEDS Movement is a new division just added two years ago. The Marfan Foundation research program currently awards up to $700,000 in yearly research grants. In addition she is responsible for organizing medical symposia, outreach to the NIH and advocacy organizations, and preparing medical education material for both the lay population and the medical community.
Listen in as Dr. Josephine Grima educates us on Vascular Ehlers-Danlos syndrome and brings us up to date on current research and opportunities for treatments.
#thevedsmovement
Make sure you never miss out on our informative newsletters and new videos/podcasts go to www.onairadvocate.com today and sign up :)
As turn our spotlight to Pancreatic Cancer Awareness, I am so excited to welcome to the show, Steve Lipshetz Communications Chair - Milwaukee Affiliate of the Pancreatic Cancer Action Network, Tricia Zenker, Survivor/Caregiver Engagement Chair with PANCAN, Bert Zenker AIA, Vice President Design Services at MSI General. About Steve: I started to volunteer with the Pancreatic Cancer Action Network in January of 2011. My mother-in-law and sister-in-law both passed from the disease within 6 months of 2010. I am a native New Yorker and worked in Manhattan for 34 years before moving to Wisconsin in 2006. I have 3 sons who live in Virginia, Colorado and Johnson Creek and 2 grandchildren in Virginia and 2 in Johnson Creek. My wife is our affiliate chair and we love traveling around the country and the world. About Tricia: Caregiver for my husband Bert who was diagnosed with pancreatic cancer in December 2019.Volunteering for the Pancreatic Cancer Action Network (PANCAN) as the Survivor/Caregiver Engagement Chair in Milwaukee. About Bert: Diagnosed with pancreatic cancer in December 2019. Treatments included chemo, radiation and the Whipple procedure. There is currently no cancer detected! Hoping to be one of the 10% of pancreatic cancer patients who survive more than 5 years. Work at MSI General in Oconomowoc Wisconsin as an architect and the VP of Design Services. Listen in as the group shares 2021 updates on Pancreatic Cancer: Early diagnostic efforts and this years PurpleStride Milwaukee. Resources: Milwaukee - Pancreatic Cancer Action Network (PanCAN) Pancreatic Cancer Action Network
As we continue our spotlight on Stroke Awareness Month, I am so excited to welcome, Josie Rupnick, Stroke Survivor, American Heart Association Volunteer. Josie Rupnik suffered from a massive stroke in 2012, when she was just 36 years old. She had just traveled 16 hours by car, from Florida, back home to Wisconsin. During that trip, she developed a blood clot that traveled up through an undetected hole in her heart and into her Carotid artery. Luckily, her family was able to spot the stroke quickly, and she was rushed to the hospital. After the stroke, she had to re-learn how to sit up and walk on her own, but since then, has made tremendous strides in her recovery, both mentally and physically. Josie was the picture of health, participating in 100-mile bike rides, when she had her stroke, so she wants people to know that they can happen to anyone. Time is key when it comes to stroke treatment. For many strokes, the right treatment, right away, can save lives & improve recovery, so it’s important to get help F.A.S.T, and look for these signs and symptoms: (F)ace drooping, (A)rm weakness, (S)peech difficulty, (T)ime to call 911. Listen in as Josie shares her personal stroke story and why time is so important when suffering a stroke. Resources: American Heart Association - Wisconsin American Heart Association Retreat & Refresh Stroke Camp
As we continue our spotlight on Mental Health Awareness Month, I am excited to welcome, Erin Browning, Ayurvedic Health Counselor & Breathwork facilitator. Erin's education is as a speech language pathologist and she spent a decade traveling the country and teaching the nations therapists and educators about neurodiversity. She currently Lives in rural WV working locally and through technology (zoom or Skype) one on one with people dealing with decisions, transitions, or living in stressful situations. She serves on a larger scale by teaching families and professionals about their natural tendencies, caregiver type, and how this impacts day to day life bringing about chaos or calm through online courses. Listen in Erin shares perspective on the stressors and developing self care practices during the "easy" times.
As we wrap up our Alport Awareness Series, I am so excited to welcome to the show, Grant Bonebrake & Maddie Martin, Volunteer Patient Advocate Alport Foundation.
About Grant: Grant Bonebrake is a high school senior in San Diego, CA. He was misdiagnosed with the wrong kidney disease until age 11 when he experienced hearing loss that led to proper diagnoses of Alport syndrome, a rare genetic kidney disease. His involvement with Alport Syndrome Foundation led him to become an active patient advocate. In December 2020, Grant received the national RareVoice Award (Teen Category) for Legislative Advocacy from the EveryLife Foundation for Rare Diseases. He also volunteers with the Young Adult Representatives of Rare Disease Legislative Advocates program, and National Kidney Foundation. Grant is currently working with other teens to document the experiences and insights of young people living with Alport syndrome.
About Maddie: Maddison Martin just turned 22. She was originally misdiagnosed with Glomerulonephritis at age 2 before receiving a formal diagnosis of Alport syndrome, via kidney biopsy, at 4-years-old. At the age of 20, she received the Gift of Life in the form of a kidney transplant from her high school attendance secretary, Tammy. Inspired by her Alport journey, Maddison is currently a nursing student and enjoys spending free time with her family.
Listen in as Maddie & Grant share their personal journeys, the physical & emotional aspects of being a teen with rare disease and how they have embraced their diagnosis.
#AlportAwareness
As we turn our focus to Stroke Awareness Month, I am so excited to welcome, Leah Forlenza, Chest Pain & Stroke Coordinator at Ascension St. Joseph Leah Forlenza has been a nurse working in the inner City of Milwaukee since graduating from Cardinal Stritch University in 1996. First on the floor then in the Emergency Departments at Aurora Sinai Medical Center and then at Ascension St. Joseph. Currently, she is the Chest Pain and Stroke Coordinator for Ascension St. Joseph. She is passionate about improving the health of the community she cares for. Listen in this educational episode Stroke 101 with Leah Forlenza, Chest Pain & Stroke Coordinator at Ascension St. Joseph. Resources: American Heart Association - Wisconsin American Heart Association Ascension
As we spotlight MPS awareness month, I am so excited to welcome, Daisy Vogt, Integrative Nutrition Health Coach & MPS Mom. Mucopolysaccharidoses are genetic diseases affecting 1 in 25,000 children. MPS and related diseases affect virtually every organ and body system including joints, nerves and muscles. This is due to incompletely broken down glycosaminoglycan (GAG) that remains stored inside the cells in the body and begins to build up, causing progressive damage and, for many, significant pain. Individuals with MPS may present with symptoms of pain not unlike those with other degenerative diseases, including arthritis. This pain may occur from nerve pain stemming from neurologic involvement and neuropathic signals arising in the brain. There may also be joint pain that causes inflammation, stiffness and swelling in the knees, hips, hands and spine. Listen in as Daisy shares her family’s journey with MPS & how you can help spread awareness on May 15th. #MPSAwareness
As we turn our focus to National Stress Awareness Month, I am so excited to welcome, Jennifer Van Rossum, Psychotherapist and Mental Wellness Educator & Consultant. I am a Licensed Psychotherapist (LPC) and Mental Wellness Educator & Consultant in private practice with a specialty in treating anxiety and building resilience. I have studied the human mind and behavior for over 2 decades, and I genuinely love what I do! I have special interest in the psychology, sociology and neuroscience of well-being and have advanced post-Masters training in Interpersonal Neurobiology through the MindSight Institute with Dr. Dan Siegel. I hold a certificate in Mindfulness-Based Cognitive Therapy, include the use of Expressive Therapies into my practice and am skilled in Resilience Training. Outside of the therapy office, I am a Resilience and Well-being Consultant, offering my expertise to individuals and groups. I have experience as a Mental Strength Trainer for athletes and performers, teach Mindfulness-Based programs in Elementary schools, provide trainings in Social Emotional Learning (SEL) to educators, and facilitate wellness programs for organizations and corporations. I am passionate about body-brain integration and offer movement, mindfulness and meditation classes within the community. As a Colombian-born (Wisconsin-raised) adoptee, cultural compassion and diversity is also very important to me. I approach health from a functional wellness perspective in which clients are invited to explore their experiences with effort and intention in order to live a skillful, wholehearted life. In 2019 I founded 5Peaks, LLC - a wellness and lifestyle corporation whose mission is to promote human flourishing by teaching and supporting individuals, communities and organizations in science-backed strategies to help strengthen and cultivate resilience and well-being. On my favorite days, I can be found relaxing with my family, traveling near and far, practicing yoga, hiking, and chasing sunsets...oh I'm also a mom to 3 (usually) delightful boys and married to a pretty rad husband. Listen in as we are talking All Things Stress with Jennifer Van Rossum.
As we spotlight Autism Acceptance and Awareness Month, I am excited to welcome back to the show, Jackie Dorshorst, RPM Provider/Owner of RPM+ for Autism & Gavin Schultz, Student.
Jackie Shares: I am a Speech/Language Pathologist and worked in the public schools for over 20 years. I was looking for some way to help people who couldn't communicate verbally. I found RPM and opened a private practice to devote my life to helping people communicate. I have an office in Waukesha and also offer services via Zoom. I travel within the US to do workshops with families and schools. I also do international workshops. Listen in as Jackie teaches us all about RPM & Gavin helps to demonstrate. RPM is an academic teaching method that leads to communication. RPM can be used to teach students who have a variety of abilities. Resources: RPM+ for Autism, LLC Autism Solution Pieces #RPM #rapidpromptingmethod #autismacceptance #autismawareness #autismstrategies
As we spotlight this April Parkinson’s Awareness Month, I am so excited to welcome, Dr. Rebecca Gilbert, Chief Scientific Officer, American Parkinson Disease Association (APDA) Dr. Rebecca Gilbert joined APDA in 2018, bringing a wealth of practical experience in diagnosing and treating Parkinson’s disease, as well as a strong background in fundamental and clinical science to the team. She is responsible for overseeing APDA’s research portfolio in conjunction with APDA’s Scientific Advisory Board, and also provides medical and clinical expertise to support APDA programming as well as print and web content. Dr. Gilbert received her MD degree at Weill Medical College of Cornell University and PhD in Cell Biology and Genetics at the Weill Graduate School of Medical Sciences. She then completed her Neurology Residency training as well as Movement Disorders Fellowship training at Columbia Presbyterian Medical Center. She continues to maintain a limited schedule of patients one day a week through Bellevue Hospital Center. Prior to joining APDA, she was an Associate Professor of Neurology at the Fresco Institute for Parkinson’s and Movement Disorders, NYU Langone Medical Center where she saw Movement disorders patients at both NYU and Bellevue Hospital Center, initiated and directed the NYU Movement Disorders Fellowship, participated in clinical trials and other research initiatives for Parkinson’s disease and lectured widely on Parkinson’s disease. Listen in as Dr. Gilbert explores Parkinson’s Disease with us and what we need to know. Resource: American Parkinson Disease Association #parkinsonsdisease #parkinsonsawarenessmonth
As we spotlight this April Sjogren’s Awareness Month, I am so excited to welcome, Janet Church, President and Chief Executive Officer of the Sjogren’s Foundation. Janet Church is the President and CEO of the Sjogren's Foundation. Sjogren's is a serious and systemic autoimmune disease affecting 4 Million Americans. The Sjogren's Foundation provides education, awareness, and research grants that support the entire Sjogren’s community of patients, medical providers, and researchers. As a Sjogren's patient herself, she has a deep understanding of living with this autoimmune disease and is dedicated to leading the Foundation to conquer the complexities of Sjogren's. Listen in as Janet Church shares her journey living with Sjogren’s as well information on the amazing resources and supports available through the Sjogren’s Foundation and how you can help drive awareness this April. Resource: Sjögren's Foundation #sjogrensawarenessmonth
As we spotlight this April, Sarcoidosis Awareness Month, I am excited to welcome, Dr. Elliott Crouser, Chair of the Foundation for Sarcoidosis Research' Scientific Advisory Board, Professor - Pulmonary, Critical Care & Sleep Medicine at Ohio State University & Mary McGowan CEO, Foundation for Sarcoidosis Research. Dr. Crouser has over 31 years of medical experience and has been a member of FSR's SAB since 2016. He is a professor of medicine at Ohio State University where he specializes in Pulmonary and Critical Care Medicine with a focus on translational research on systemic inflammatory diseases involving the lungs. In 25 years of supported research, Dr. Crouser's laboratory has contributed to the publication of more than 100 peer-reviewed manuscripts, including the first efforts to study sarcoidosis disease mechanisms by deeply scrutinizing genetic data (2009) and the first clinical practice guidelines for sarcoidosis which were endorsed by the American Thoracic Society in 2020. In addition to his research, Dr. Crouser served as the President of the American Association of Sarcoidosis and Other Granulomatous Disorders (AASOG) from 2017-2019 and has advocated for the sarcoidosis community through engagement with the National Institutes of Health. Mary joined the Foundation for Sarcoidosis Research as the organization’s first-ever Chief Executive Officer in 2020. As CEO, Mary serves as the primary representative and spokesperson for FSR and leads the organization’s strategic vision with patient engagement, strategic partnerships, fundraising, advocacy efforts, program direction, and an aggressive communications and research agenda. Mary brings 35 years of nonprofit leadership and management experience to the role. Prior to joining FSR, she served as Executive Director at The Myositis Association (TMA.) As Executive Director of TMA, McGowan was featured and highlighted as a preeminent rare disease leader by numerous entities including American Autoimmune Related Diseases Association, Global Genes and the National Organization for Rare Diseases for her innovative national campaigns including Women of Color and Myositis and her leading telemedicine initiatives for autoimmune patients during COVID-19. Prior to her time at TMA, Mary served as CEO of WomenHeart: The National Coalition for Women with Heart Disease. During her 8 years with WomenHeart, McGowan ensured the organization’s long-term growth and sustainability as the leading voice for the 48 million American women living with or at risk of heart disease. McGowan also served as Executive Director of the Allergy & Asthma Network, the leading nonprofit organization dedicated to eliminating suffering and death due to asthma, allergies and related conditions. She held various positions with the American Academy of Pediatrics during her service of 18 years. McGowan earned a Master’s Degree in Human Resources Development from the George Washington University and a B.A. from Trinity University. Listen in as Mary McGowan & Dr. Elliot discuss Living with Sarcoidosis. Learn More : Foundation for Sarcoidosis Research #sarcoidosisawarenessmonth
As we turn our focus to National Nutrition Month, I am so excited, Rachael Stricker, Nutritional Therapy Practitioner, real food lover. wife. mom. essential oil user. jesus follower. About Rachael : I am a mom to two teenage girls, a bonus 7 yr old boy, wife to a super cool husband, and a Nutritional Therapy Practitioner (NTP). And oh yeah, I am a self proclaimed really good cook. Good food just makes life better, doesn’t it?! I am super passionate about where our food comes from, what is in our food, and how food affects our bodies both physically, mentally, and emotionally. Life is about balance and I want to walk alongside you as you find the balance that is right for you and your family and begin to think about food in a whole new way. I can't wait to live a life well nourished with you. Listen in as Rachael shares all about Nutritional Therapy & how food affects our bodies physically, mentally, and emotionally.
As we spotlight National Colorectal Cancer Awareness Month , I am excited to welcome to the show, Stephen Estrada, Manager of Community Engagement at the Colorectal Cancer Alliance. About Stephen: At 28, I was diagnosed with Lynch Syndrome and inoperable, stage 4 colorectal cancer. After being told I had about a year left to live, I became an advocate for young-onset colorectal cancer. I also became an advocate for my health and my care. After 2 surgeries--one causing internal hemorrhaging during recovery that nearly killed me--chemotherapy, and a lot of research, I fired my care team and went elsewhere. This allowed me the opportunity to join a groundbreaking clinical trial with an experimental immunotherapy drug. I responded incredibly quickly to the drug and spent 5 years on the trial. After a year and a half on the drug, I was declared NED and have remained so, even after stopping treatment in November of 2019. I have been with the Colorectal Cancer Alliance for three and a half years, where it is an honor to help share the stories of patients and caregivers affected by this disease. Listen in as Stephen shares his personal journey, all about the Colorectal Cancer Alliance & how you can get involved this month. Let’s make colorectal health a priority again through our "Get Checked" Screening Pledge.The Screening Pledge will connect you with resources and reminders to get screened for colorectal cancer. Take the Pledge! pledge.getscreened.org Resource: Colorectal Cancer Alliance #GetScreened #TakeThePledge #TomorrowCantWait #ColorectalCancerAwareness
As we wrap up our Alport Awareness Series & support National Kidney & Alport Syndrome Awareness Month, I am so excited to welcome to the show, Cassandra Smith ICU Nurse and Volunteer Patient Advocate, Alport Foundation.
Cassie Smith, a Kentucky native, is a registered nurse and mom to three young children. She was first diagnosed with Alport syndrome in late childhood. Two of her three children were diagnosed in early 2019. Both her professional and personal experiences make her passionate about patient advocacy. Cassie recently accepted the opportunity to Co-Chair the newly established Emerging Leadership Council for Alport Syndrome Foundation. In this role, she is volunteering with others to better address the unique needs of Alport patients in the 25-35 year old age range.
Listen in as Cassie shares her journey of rare disease from the perspective of patient, parent and nurse.
As we kick of our Alport Awareness Series & support National Kidney & Alport Syndrome Awareness Month, I am so excited to welcome to the show, Kevin Schnurr, Director of Communications, Alport Syndrome Foundation. Kevin began volunteering for Alport Syndrome Foundation in 2012 at age 26 after experiencing unexpected renal failure. After two years on dialysis, he received a living donor transplant from a close friend. Kevin’s desire to help others in the rare disease community led to his position as ASF Social Media Specialist in 2014 and part-time Patient Outreach Coordinator in 2016. He has facilitated the Teen program at ASF Family Meetings, represented ASF at patient advocacy events and conferences, and co-moderates the ASF Facebook Support Group Page. In addition to his background in graphic design and experience in college administration, Kevin’s perspective and communication skills as a patient bring great value to ASF. Listen in as Kevin shares his personal journey with Alport as well all about the Alport Syndrome Foundation and the amazing resources they offer.
As we continue our Marfan Awareness Series, I am so excited to welcome, Grace Meyers, Volunteer, The Marfan Foundation.
Grace Meyers, 17, is a senior at Plymouth High School in Michigan. She be attending Eastern Michigan University next year to pursue a career in child development. Grace, who is affected by Marfan syndrome, enjoys getting involved with The Marfan Foundation. In the past, she has served as a legislative advocate and attended the Foundation's Hill Day in Washington, DC, in February 2020. She is also a member of the Foundation's Teen Council. She enjoys going to the Foundation's annual conference every year because being able to meet other teens with the same rare condition as she has "is an amazing feeling." Grace says, "Marfan Syndrome is tough, but there is definitely a positive side to it with the community."
Listen in as Grace shares her personal journey with having a complex medical condition and why she feels embracing your diagnosis and connecting with others is so very important.
Learn More: www.marfan.org
As we continue our Heart of it All Series for American Heart Month, I am so excited to welcome, Kim Christenson & Veloris Brooks, Volunteers & Heart Attack Survivors, American Heart Association About Kim: Kim Christenson suffered a major heart attack in September 2016. She had just finished up a training session with her friend, when she started to feel a burning in her chest and unimaginable pain in her neck, jaw and back. As the pain continued to worsen, she began to recognize that something was wrong and called 911. This is where her perfect chain of survival began. Because Kim did not hesitate one more second with calling 911, the paramedics came when they did. Because the paramedics are part of the American Heart Association’s Mission Lifeline program, they were able to use Kim’s EKG reading to alert the hospital that they needed to prepare a Cath lab for her. Because that Cath lab was ready upon arrival, doctors were able to determine that Kim was suffering from what is known as a widow maker’s heart attack: 100% blockage in the left descending artery and perform emergency surgery. Kim coded 6 times as doctors worked to place a stent in her artery, so she is forever grateful for the help and care that she received that day and for the perfect chain of survival that has given her the opportunity to share her story with other women and spread awareness about the prevalence of heart attacks in women. About Veloris : At age 40, Veloris Brooks was misdiagnosed for 5 months, traveling to the ER several times, with various symptoms. It was eventually discovered that her left artery was 90% blocked and the right was 50% blocked. She had to undergo a triple bypass surgery to repair her heart. Veloris has been an active volunteer with the American Heart Association for the last few years; she is extremely passionate about the AHA’s community impact and health equity work and uses her story as a testament to the importance of women advocating for themselves and their health. Listen in as Kim & Veloris’ share their personal heart journeys, why it’s so important to advocate for your health & always listen to your body.
As we continue our Marfan Awareness Series, I am so excited to welcome Allison Pullins, Volunteer, The Marfan Foundation. Allison Pullins is a healthcare technology executive with 15 years of industry experience. She has guided and executed corporate strategy, and built teams across marketing, sales, product, and customer success. As COO of MD Ranger, Allison leads the operations of the company and charts its strategic vision. Allison serves as President of the Big City Parents Organization, which helps disadvantaged families access high-quality early childhood education in San Francisco, California. She is a member of the Strategic Development Committee of The Marfan Foundation, an organization that she volunteers for in many capacities. Allison lives in San Francisco, California, with her partner and their two children. Her oldest child James (age five) was diagnosed with Marfan syndrome when he was two years old. James lives with multiple heart conditions, including aortic aneurysm, low vision, and low muscle tone, among other disabilities. He is a bright, curious child who enjoys math, geography, Star Wars, and music (particularly grunge rock and hip hop). James inspires Allison to increase awareness for connective tissue conditions, advocate for the rights of disabled people, and fundraise for research to eventually cure these life threatening genetic conditions. Listen in as Allison shares her perspective and their journey with receiving the diagnosis of Marfan syndrome for their oldest son and the impact it has had on their family. Resource: The Marfan Foundation - www.marfan.org The On-Air Advocate - www.onairadvocate.com #MarfanSyndrome #MarfanAwareness
As we continue to drive awareness for National Cancer Prevention Month, I am so excited to welcome, Latarsha Ancrum, Breast Cancer Survivor. Listen in as Latarsha shares her personal journey with breast cancer and recently becoming a breast cancer survivor. Learn more about the OAA: www.onairadvocate.com #CancerPreventionMonth #BreastCancerAwareness
As we turn our focus to Cupid , I am excited to welcome back to the show, Tylia Flores, Author Radio show personality and Disability Activist. Tylia Flores is a 25-year-old born with cerebral palsy. Although her condition has affected her mobility, it has never affected her will and determination to make a difference in the world. Through her many life challenges and obstacles, she discovered her passion for writing. Tylia’s goal in life is to share her stories with the world. In doing so, she hopes to help others with disabilities realize that they, too, have the potential to make their dreams come true. Listen in as Tylia shares her experiences navigating dating with a disability. Learn more about the On-Air Advocate at - www.onairadvocate.com
As we continue our Marfan Awareness Series, I am so excited to welcome, Maya Brown-Zimmerman, Advisor to The Marfan Foundation's Professional Advisory Board. Maya Brown-Zimmerman, of Ohio, is a stay-at-home mom to four kids with a variety of diagnoses including Marfan syndrome, autism, and a brain injury. She has a Masters in Public Health and is the patient adviser to The Marfan Foundation's Professional Advisory Board. Previously, she served 9 years on the Foundation's Board of Directors and helped run the Foundation's Teen Program for 10 years. In her spare time, May is involved in health care advocacy and is going back to school to become a genetic counselor. She is also an HGTV aficionado and has a blog at Musings of a Marfan Mom. Listen in as Maya shares the importance of Creating Connections in the Marfan Community. Resources: www.Marfan.org www.OnAirAdvocate.com
As we continue our Heart of it All Series for American Heart Month, I am so excited to welcome, Dr. Nicole Lohr, Cardiologist & Board President, American Heart Association. Dr. Nicole Lohr is the current Board President of the Metro Milwaukee Board of Directors for the American Heart Association. She is also a cardiologist at the Zablocki VA Medical Center, as well as an Associate Professor and the Medical Director of Cardiovascular Clinical Trials at the Medical College of Wisconsin. Not enough women know that heart disease is their greatest health threat. Among females ages 20 and older, 44.7% had some form of cardiovascular disease, and 90% of women have one or more risk factors for heart disease at some point in their lives. Paying attention to risk factors and living a healthy lifestyle can help keep heart disease at bay.Women’s heart attack symptoms can also be different than symptoms in men, so it is very important than women know what to look for. Dr. Lohr is passionate about the mission of the American Heart Association and volunteers her time, sharing important heart health information and educating women on what they can do to lessen their risk. Listen in as Dr. Lohr shares the importance of women's heart health and making sure your listening to your body. Resource: American Heart Association at www.Heart.org The On-Air Advocate at www.OnAirAdvocate.com
As we support National Cancer Prevention Month, I am so excited to welcome back, Wendy Garvin Mayo, APRN, ANP-BC. Wendy Garvin Mayo is an Oncology Nurse Practitioner, Cancer Caregiver Consultant, Author and Speaker. She is also the Founder of SHAPE Partners, a collective resource with the mission of empowering current and former cancer caregivers, family members, and friends in optimizing their health and wellness. Wendy has clinical experience in caring for patients with solid tumors and hematology malignancies in both the outpatient and inpatient settings. She also has experience in Oncology Research and Development. Listen in as Wendy shares the Three Levels of Cancer Prevention. Thanks for listening in : www.onairadvocate.com
As we kick off our Marfan Awareness Series, I am so excited to welcome , Adam Bitterman, DO. Adam D. Bitterman, DO, is an Assistant Professor of Orthopaedic Surgery at the Donald and Barbara Zucker School of Medicine at Hofstra/Northwell. He is a board certified, fellowship trained foot and ankle orthopaedic specialist and has a focus in treating conditions of the lower leg. His clinical interests include arthritis of the foot and ankle, deformity correction, Achilles tendon disorders, and sports-related injuries to the ankle and foot. He is highly skilled in arthroscopic, minimally invasive, and open approaches for various conditions surrounding the lower foot and ankle. Dr. Bitterman is a graduate of Binghamton University and pursued his medical education at the New York College of Osteopathic Medicine. He completed his orthopaedic surgery residency at North Shore-LIJ Plainview Orthopaedic Consortium before graduating from Rush University Medical Center in Chicago, Illinois where he completed his foot and ankle fellowship training. While in Chicago, he worked alongside the team physicians for the Chicago Bulls and Chicago White Sox. Additionally, he won the Jorge A. Galante Research Fellow Award for his work on Achilles tendinosis. Adam serves as the co-chair of the Research Committee for the Plainview Hospital Orthopaedic Residency program. His research interests include clinical outcomes after foot and ankle surgery, Achilles tendon pathology, patient comprehension, infection control and residency training. He has co-authored several peer-reviewed articles in orthopaedic journals and book chapters in orthopaedic textbooks. Dr. Bitterman has lectured to his peers as well as allied health professionals on various topics involving the lower extremity at local, regional and national meetings. Dr. Bitterman, who has Marfan syndrome, has been a volunteer for The Marfan Foundation for many years, leading educational workshops at the Foundation's annual conference and presenting educational webinars. In 2020, he was named to the Foundation's Professional Advisory Board, which is comprised of the country's leading experts on Marfan and related conditions. Listen in as Dr. Bitterman helps us Get to Know Marfan. Learn More About Marfan at www.marfan.org or the On-Air Advocate at www.OnAirAdvocate.com
As we kick off our Heart of it All Series for American Heart Month, I am so excited to welcome , Stacy Amstadt, Communications Director and Kelsey Gumm, Heart Disease Survivor and Volunteer at American Heart Association.
About Stacy:
Stacy Amstadt has been with the American Heart Association for 4 years. Her career at the AHA, is driven by her own experience as a congenital heart defect survivor. She was born with Aortic Stenosis with a Bicuspid Aortic Valve, and when she was 17, she underwent open heart surgery to repair her valve. Going through a major surgery at such a young age taught her not to let her struggles define her and to take everything day by day. It also helped lead her to her current career path. Her heart journey is not over yet…she will need to have to have her aortic valve replaced sometime in the next few years.
About Kelsey:
Kelsey Gumm was just a few weeks into Navy boot camp training, when she first passed out, She woke up in the back of an ambulance and doctors sent her on her way, after telling her she had overexerted herself and was dehydrated. These episodes continued over the next ten years, each with a trip to the ER and a diagnosis of dehydration, exhaustion or an anxiety attack.
But in 2016, Kelsey experienced an intense blackout. She couldn’t feel her arms and legs and a colleague commented on how gray she looked. The nurse practitioner decided to put in a cardiology consult. After two echocardiograms and an EKG, the doctor said, “Petty Officer Gumm, I don’t know how to tell you this, but your career in the Navy is over” and went on to explain that she has a rare heart condition called left ventricular non-compaction. All of the fainting that she’d been experiencing, was ventricular tachycardia, irregular heart rhythms that could have killed her.
Within a month of that doctor’s visit, Kelsey was medically retired from life in the Navy, a life that she had known and loved, and had to learn to live her new normal: a life with heart disease. She has since, had a pacemaker and defibrillator implanted in her chest and visits with her cardiologist regularly.
In 2019, Kelsey served as one of eight national spokeswomen for the American Heart Association’s Go Red for Women movement. She loves sharing her story, helping other women realize that there is still life after heart disease, and reminding them to be an advocate for their health.
Listen in as we learn more about the American Heart Association and Stacy & Kelsey share their personal Heart stories.
Learn more about : The On-Air Advocate at www.OnAirAdvocate.com or The American Heart Association at www.Heart.org
As we continue our Wellness Week, I am so excited to welcome Dr. Erin Ellis, Naturopathic Doctor. Dr. Ellis Shares : In 2010 I was diagnosed with a rare form of Non-Hodgkin’s Lymphoma at age 31. I never thought in a million years I would have been diagnosed with cancer at such a young age, but it was the turning point in my life. I always wanted to be a doctor, but gave up on those dreams because I was sick of being in school, and instead worked in the bar and restaurants, but always knew I could do and be more. After 6 rounds of chemotherapy, a positive attitude with a side of determination and sass I became a survivor. Receiving this diagnosis and kicking its butt gave me the drive, the motivation and determination to get out of my own way and become that doctor that I always wanted to be. Not only did it give me my defining purpose in life, but I learned a lot about myself and really how strong I truly was. Having had a cancer diagnosis at such a young age, my mission and passion now is to empower those to take control of their health now before it is too late. This diagnosis proved to me that life is too short to feel sub-optimal and given the right tools, your body has the innate ability to heal itself. Listern in as Dr. Ellis shares the Importance of Well Woman's Exams, Routine Labs, Diet and Lifestyle. Learn more about Dr. Ellis at www.drerinellis.com For Information & Services Visit : www.OnAirAdvocate.com
As we kick off our Wellness Week, I am so excited to welcome to tomorrow mornings show, Daisy Vogt, Integrative Nutrition Health Coach.
Daisy is a born German but has lived in many different countries and cultures around the world. As a child she left Germany to Kenya, then to Thailand, the Dominican Republic, Mexico and most recently Jamaica. Now she resides with her husband, 2 kids and 2 fur babies in Orlando, Florida. She cares for her 18 year-old step son and is an Integrative Nutrition Health Coach, working with moms who also have special needs kids at home, utilizing mind and biohacking techniques to activate themselves to their fullest potential, so they can be happier and care better for their families.
Listen in as Daisy shares 8 Hacks for Good Caregiver Health.
As we kick off our Wellness Week, I am so excited to welcome to tomorrow mornings show, Anim Aweh, Licensed clinical therapist and clinical health educator. Anim is a licensed mental health therapist and health educator from Boston committed to helping her clients take control of their health before it controls them. Listen in as Anim explores ideas and strategies to help us take control of our health before it takes of us. Resource: Anim Aweh LCSW Therapy Over Silence
As we Kick Off our Spotlight Series for National Blood Donor Month, I am so excited to welcome to tomorrow’s show, Craig Butler, National Executive Director and Radhika Sawh, Genetic Counselor, Board Member of the Cooley's Anemia Foundation. Craig Butler has been leading the fight against thalassemia for over half a century. Mr. Butler himself has been an active participant in that fight for over a decade, starting with the Foundation as National Communications Director in 2001. In addition to directing all communications-related activities in that capacity, he also served as the Principal Investigator on the Foundation’s collaborative agreement with the Centers for Disease Control and Prevention (CDC) to help educate the thalassemia community about effective prevention strategies that can contribute to better outcomes for those with thalassemia. In addition to advocating on behalf of individuals with severe forms of thalassemia, Mr. Butler directs Cooley’s Anemia Foundation efforts aimed at informing both the general public and specific at-risk populations about thalassemia trait. He also oversees programs to encourage all members of the public to donate blood, as treatment for thalassemia involves frequent lifelong transfusions. Mr. Butler is proud to be the author of “The Cooley’s Anemia Foundation Storybook,” a publication for children with thalassemia. Radhika holds a master's degree in genetic counseling and worked as the National Director of Patient Services for the Cooley's Anemia Foundation prior to joining the faculty of the Joan H. Marks Graduate Program in Human Genetics at Sarah Lawrence College. She is also a wife, a mother as well as an individual living and thriving with beta thalassemia major who frequently speaks on behalf of the New York Blood Center as a volunteer blood donor advocate. Listen in as Craig & Radhika share the great need for Blood Donors & Why Blood Donations Mean Life for Those with Thalassemia. Resource: Cooley's Anemia Foundation
As we continue our Spotlight Series for National Blood Donor Month, I am so excited to welcome to tomorrow’s show, Laura McGuire, External Communications Manager for the American Red Cross.
Listen in as Laura of the American Red Cross - shares the essential need for blood donors, critical need for convalescent plasma and how you can give blood, give life & give back.
Learn More: www.redcrossblood.org
As we turn our focus back to National Family Caregivers Month, I am so excited to welcome to tomorrows show, Wendy Garvin Mayo, Nurse Practitioner, Cancer Caregiver Coach, Consultant & Advocate. Wendy Garvin Mayo is a Nurse Practitioner, Cancer Caregiver Coach, Consultant & Advocate, Author, Speaker. She is also the Founder of SHAPE Partners, a collective resource with the mission of empowering current and former cancer caregivers, family members, and friends in optimizing their mental and physical health. Wendy has clinical experience in caring for patients with solid tumors and hematology malignancies in both the outpatient and inpatient settings. She also has experience in Oncology Research and Development. She has a natural passion to help cancer patients and caregivers thrive in difficult situations. Wendy’s nursing practice and personal experience have provided her with a firm understanding of the difficulty cancer diagnoses has on caregivers. A few years ago Wendy’s aunt was diagnosed with glioblastoma and passed away in 2014. Wendy observed her aunts’ transition from sisters to caregivers as they struggled through the initial diagnosis to treatment to hospice and untimely beyond her aunt’s death. Wendy’s professional and personal experiences with cancer caregivers motivated her to found SHAPE Partners and its four pillars – Partnership, Advocacy, Coaching, and Education. Listen in as Wendy shares the great need for cancer caregiver community’s and strategies to empower cancer caregivers to optimize their mental and physical health through partnership, advocacy, coaching and education. Resource: SHAPE Partners
As we turn our focus to Pancreatic Cancer Awareness Month and World Pancreatic Cancer Day (11/19), I am so excited to welcome to the show, Steve Lipshetz Communications Chair - Milwaukee Affiliate of the Pancreatic Cancer Action Network & Barbara Poepping , Mission Chair for the Pancreatic Cancer action Network, Milwaukee affiliate and 8 year pancreatic cancer survivor. About Steve : Steve started volunteering with the Pancreatic Cancer Action Network in January 2011 as the Communications Chair after my wife's mother and one of her sisters died of pancreatic cancer within 6 months of each other in 2010. Has participated in PanCAN's Advocacy Summit in Washington, DC to raise awareness and lobby for funding from Congress. Lived most of my life in NY area and moved to Wisconsin 14 years ago. Lives in Mukwonago with wife, Jeanne, and has 3 sons and 4 grandchildren. About Barbara: I am an 8 year pancreatic cancer survivor. I had a sister who passed from Pancreatic Cancer 14 yrs ago and also 2 first cousins and my step-mother passed from pancreatic cancer. Listen in as Steve & Barbara share current Pancreatic Cancer statistics, updates on research, the mission of the PanCAN organization & how you can help wage hope by getting involved with All the amazing events during Pancreatic Cancer Awareness Month, World Pancreatic Cancer Day (11/19) & PurpleLight Milwaukee (11/18). #PancreaticCancer #PancreaticCancerAwarenessMonth #WorldPancreaticCancerAwarenessDay #WageHope
As we continue to support and drive awareness for World Sanfilippo Awareness Day, I am so excited to welcome to the show, Dr. Cara O'Neill, Chief Science Officer & Co-Founder of Cure Sanfilippo Foundation. Dr. Cara O'Neill completed her medical education at West Virginia University School of Medicine and subsequently her Pediatric Residency training at the University of South Carolina. She has worked both in private practice and academic settings. During her tenure as an Assistant Professor of Clinical Pediatrics at the University of South Carolina, she practiced in a clinic specific to children with special healthcare needs. These uniquely-paired career and life experiences allow her to bridge gaps between scientists, clinicians, industry, and families, helping foster patient-centered research and translational paths forward for rare disease treatments.She and her husband founded Cure Sanfilippo Foundation after receiving her daughter’s diagnosis in 2013. Since then, they have spread awareness around the globe about Sanfilippo Syndrome via talk shows, news media, online platforms, and international newspapers. As Chief Science Officer, Cara leads the Foundation’s patient-focused research efforts and has presented at international conferences and authored peer-reviewed journal articles. In addition, she collaborates with other non-profit groups on mutual advocacy and research interests, as well as oversees the foundation’s funding of external scientific programs.Cara was awarded the international 2020 Patient Advocacy Leader Award by WorldSymposium for her exceptional thought leadership and contributions. Glenn and Cara were awarded the Portraits of Courage Honor by the National Organization of Rare Disorders in 2015, as well as a Tribute to Champions of Hope finalist for Global Genes. In 2017, they received the South Carolina Child Advocate Award from the SC American Academy of Pediatrics. Listen in as Dr. O'Neill shares their family’s personal journey with Sanfilippo Syndrome, key signs parents should watch for, the Mission of the Cure Sanfilippo Foundation and how you can get involved and help spread awareness. #WorldSanfilippoAwarenessDay #CureSanfilippo #Sanfilippo #ACureCantWait
As we celebrate World Kindness Day I am so excited to welcome, Macy Gilson, M.S. CCC-SLP. Macy is a speech language pathologist, disability advocate and children’s author. While working with children with a multitude of diagnoses, she has cultivated a passion for not only treating their impairments, but sharing their stories. Her goal is to continue spreading awareness and celebrating diversity through her words and her writing.Macy's debut children's book, Kindness is Golden, was published in July 2020. Macy hopes for this to become the first in a series of inclusive children's books to help parents and educators talk to their children about those with disabilities. Macy is also the owner of Macy Gilson Co., an online shop featuring custom gifts for family and friends of the disability community. The mission of Macy Gilson Co. is to continue to support families with children with disabilities, to spread awareness and inclusion, and most of all, to remind others of the importance of kindness. Listen in as Macy shares the mission of Macy Gilson Co. and all about her new children's book, Kindness is Golden - Come help us throw around buckets of kindness everywhere
As we kick off our month long series on Care for the Caregiver during National Family Caregivers Month, I am so excited to welcome Nicole Dauz Self-Care Expert. Nicole Dauz is a self-care coach and advocate who has committed to choosing happiness despite her circumstances. She’s also the proud mother of a neurotypical son and a daughter with a rare genetic disease and autism. Her mission is to change the story around caregiving and celebrate the journey. She honours the role of the caregiver by helping them recognize their worth and their true gifts. As a self-care coach, she works with family caregivers who feel overwhelmed and at the end of their rope. She understands how caregivers are feeling as she spent the first five years of her caregiving journey in complete denial of all emotions as she was in shock that her daughter had an intellectual disability and would need weekly therapy to learn how to walk, feed and dress herself. Nicole’s clients come to her because they feel stressed to the max. She provides them the tools and strategies needed to shift them from feeling stressed and overwhelmed to regaining control of their lives and feeling gratitude and joy in their lives. Listen in as Nicole explores with us the importance of self-care for caregivers and why so many caregivers don’t believe they’re worthy.
World Cerebral Palsy Day 2020 Last night I invited a few AMAZING CP Warriors & Advocates to the show.Some Facts About CP : - There are 17 million people across the world living with cerebral palsy (CP). - Another 350 million people are closely connected to a child or adult with CP. - It is the most common physical disability in childhood. - CP is a permanent disability that affects movement. Its impact can range from a weakness in one hand, to almost a complete lack of voluntary movement. - It is a complex disability: 1 in 4 children with CP cannot talk 1 in 4 cannot walk 1 in 2 have an intellectual disability 1 in 4 have epilepsy. CP is a lifelong disability and there is no known cure. Listen In & Learn More! #MakeYourMark #CerebralPalsy #WorldCPDay2020 #CerebralPalsyAwareness
As we spotlight Childhood Cancer Awareness Month, I am so excited to welcome , Jessica Cook, Vice President of Patient and Family Services and Lori Millner, VP of Marketing at The National Children’s Cancer Society. Ms. Cook joined The National Children’s Cancer Society in May, 2000. In her capacity as Vice President, Ms. Cook oversees all programs and services benefitting children with cancer and their families in the United States. Her responsibilities include development, management, and evaluation of all program services, strategic planning, staff supervision, budgeting, grant writing and outreach. Ms. Cook has been an integral part of the department evolution from providing financial assistance to families confronted by childhood cancer, to incorporating all aspects of patient advocacy, education, emotional support, and survivorship for those diagnosed with pediatric cancer. Lori Millner spent the majority of her career working in an ad agency business followed by having her own consulting practice. After doing that for more than five years, Lori decided she wanted to contribute her expertise to something more meaningful and looked for an opportunity in nonprofit. She discovered that The National Children's Cancer Society (NCCS) was looking for its first director of marketing and she submitted her resume. Lori was hired and subsequently promoted to its first VP of marketing. Ten and a half years later she still is reaping great satisfaction from working with such an important organization. The Mission of the NCCS- The National Children’s Cancer Society (NCCS) provides emotional, financial and educational support to children with cancer, their families and survivors. Listen in as Jessica and Lori share all about the history of the NCCS, current program services that they offer and how you can join them in spreading awareness, giving support and making a huge impact on Childhood Cancer. Resource: The National Children's Cancer Society (NCCS) #childhoodcancerawarenessmonth #gogold
As we spotlight Childhood Cancer Awareness Month, I am so excited to welcome, Christina Gonzalez, Advocate & Founder Go Gold For Childhood Cancer. Christina advocates for children with cancer. She is a passionate advocate due to her own experiences and life long illnesses. Christina was 11 months old when her journey with chronic pain began. While she was advocating and making sure childhood illnesses were not over looked, she discovered childhood cancer. Christina was heartbroken by the lack of funding and knew she had to be a voice for these children. In March of 2014, GoGoldForChildhoodCancer was formed. Christina and her friend ran the page until together till 2017, then Christina took it over solo. Christina personally understands how incredibly hard this journey can be and continues to be an amazing advocate and voice for others. Listen in as Christina shares with us her personal journey with chronic illness and more about the mission & impact that Go Gold For Childhood Cancer has been able to provide. Plus, how you can support and help spread the word about Childhood Cancer Awareness Month #GoGold #ChildhoodCancerAwareness #GoGoldThisSeptember
As we spotlight Craniofacial Acceptance Month (CAM) this September, I am so excited to welcome, Erica Mossholder Executive Director of Children’s Craniofacial Association. Erica has served CCA in the past as a Board member and volunteer. She brings her experience from the fields of higher education and business development to CCA to help continue the strong, 30+ year legacy of empowering and giving hope to families affected by facial differences. Erica has a undiagnosed craniofacial difference, and CCA helped her find a surgeon and confidence in the future. Erica seeks to find new ways to connect our community and help make the world a kinder place. Listen in as Erica shares all about the Children’s Craniofacial Association and their mission to empower and give hope to individuals and families affected by facial differences. Resource: Children's Craniofacial Association #CraniofacialAcceptanceMonth
As we wrap up our Resource Series, I am so excited to welcome, Rhonda Parker, Executive Director & Founder of Parker Autism Center.
Rhonda Parker Executive Director-Founder of Parker Autism Center a 501C3 nonprofit located in Dallas, Texas. Rhonda has a background in nonprofit and forprofit. She has held positions as a Employment Consultant, Mentor Teacher, General and Special Education Teacher, and Transition Specialist. Rhonda received a Resolution from the Stste of Texas as Outstanding Educator snd Suppirt in the field of Special Education. She has served in numerous educational and business organizations. She Founded PAC in 2013. She created a Summer Camp Program focusing on individualized skill development. She believes it is important to foster independence and help individuals with Autism/learning and physical differences achieve their purpose and goals in life. PAC is developing programming offering solutions in Employment Services, Social-Emotional Services and Parent Services. Her motto "Everyone has potential within and given the opportunity they can achieve their personal level of success ."
Listen in as Rhonda shares an overview of the Parker Autism Center (PAC) and Employment Services.
Resource:
Rhonda Parker
As we continue our Resource Series, I am so excited to welcome, Samantha Johnson, Wife of 1, Mom of 3 and Co-Founder of Champions Club.
Samantha is the Co-Founder of Champions Foundation and Champions Club Developmental Centers for special needs with over 75 across the world. Sam serves on staff with the Lakewood Missions Team and Lakewood Champions Club. She is a wife and mom of three children, Cory, Courtney, and Connor. Sam is a special needs advocate and inspiration to mothers with special needs all around the globe. Sam and her husband Craig have been in full time ministry for over 28 years.
Listen in as Samantha shares information on the Champions Foundation and Champions Club Developmental Centers across the world!
As we continue our Resource Series, I am so excited to welcome, Paula & Rosie Quinn Founders of Coming Up Rosies.
Paula and Rosie Quinn are the founders of Coming Up Rosies, a nonprofit dedicated to fulfilling Rosie’s dream to make bald kids like her smile confidently.
At 2 years old, Rosie was diagnosed with Alopecia Universalis, an incurable autoimmune disease that results in baldness. From a young age, Rosie taught her parents how to embrace her difference by coming up with magical adventures of her hair each night before bed.
Despite Rosie’s confidence, awkward questions and comments about her baldness started to bother Rosie. One day, her parents surprised her with a head scarf made from one of her paintings. Rosie immediately felt confident again, and wanted to share this feeling of pride with all bald children.
Rosie lives in Chicago, with her sister Caroline, her parents Paula and Larry, and their bernedoodle, Enzo. As a family, they love to go to Cubs games, have dance parties, and cook Italian dinners at home.
Listen in as Paula & Rosie share all about their New Book 📚 My Hair Went on Vacation and how Coming Up Rosies, their nonprofit is continuing to fulfill Rosie’s dream to make bald kids like her smile confidently.
Learn More : www.ComingUpRosies.com
Many Thanks :
Kendra Scott
Little Big Shots
American Red Cross
Grant Thornton US
#Alopecia
#AlopeciaAwareness 
As we continue our Resource Series, I am so excited to welcome, Evan Schermer Founder and President of The SEED Center.
Evan Schermer is the Founder and President of the Center for Social Enrichment and Educational Development, The SEED Center.
Mr. Schermer is a New York State certified school psychologist and has worked in the field of special education and autism for over 25 years. Prior to starting The SEED Center, Mr. Schermer helped build and establish several private schools for individuals with autism and related disabilities. Mr. Schermer was the former Chairman of the Custom Education Foundation, which is a not-for-profit (501c3) organization that provides resources and support to individuals with special needs and their families.
Evan Schermer is a certified instructor in Nonviolent Crisis Intervention (CPI) and trains and certifies all therapists employed by The SEED Center. Mr. Schermer is proud to have been awarded the U.S. Small Business Administration’s Entrepreneurial Success Award in May 2015. Finally, , The SEED Center is accredited as a Center of Excellence by the BHCOE. Mr. Schermer’s experience and knowledge, clinically and professionally, ensure a solid foundation and strength for The SEED Center to excel and grow.
The SEED Center offers a wide range of services to children, adolescents and adults with Autism Spectrum Disorder (ASD) and related disabilities including:
Applied Behavior Analysis (ABA) - The SEED Center staff integrates the practical applications of ABA principles across a variety of everyday experiences.
Listen in as Evan shares with us all about The SEED Center and the wide range of services they offer for children, adolescents and adults with Autism Spectrum Disorder and related disabilities.
#Autism #ABA #ASD
As we continue our Resource Series, I am so excited to welcome , Dr. Jennifer Edwards, Wellness Scientist and Entrepreneur.
Jennifer started her career working in public health at the federal and local levels. She submitted presidential appointee health testimony to the U.S. Congressional Record and has served as Principal Investigator for Centers for Disease Control, Health Resources and Services Administration, and Robert Wood Johnson Foundation grants.
She was an invited TEDx speaker on women’s wellness, but the event was canceled due to the pandemic. That didn’t stop her dedication to wellness. Brands like Tieks and Rothy’s have supported her mission.
She speaks to women about reversing burnout and created a four-step system to restore balance called Wellthy. Today, she is immersed in wellness and growing her multicultural clean beauty brand, Refinne. Grab a socially distant latte with her if you’re ever in Dallas where she lives with her husband and two children.
Listen in as Jennifer discusses the great importance overall wellness in our lives and tools to avoid burnout.
As we continue our Resource Series, I am so excited to welcome, Andy Petro, Chief Operations Officer at The Hope Learning Center.
Andy Petro is an executive, coach, author, and educator. Throughout his career, he has worked in traditional, charter, and private education, both bricks-and-mortar, and online. In his role as COO at The Hope Learning Center, Andy works with therapists, teachers, paraprofessionals, behavior analysts, psychologists and counselors to provide the systems and supports necessary to enable our amazing staff members to deliver life-changing academic, therapeutic, and behavioral services to the children and families in various school, community, and outpatient settings.
Our Mission : The Hope Learning Centers and Schools will be the premier provider of educational and therapeutic services for children with special needs. It will be a model for excellence, a safe haven for students and a vibrant and outspoken advocate for those who need our support. Our committed, talented and compassionate staff will exude the characteristics of patience, perseverance and trust by using a multi-disciplinary approach of best practices. Individual success will be celebrated and students lives will be improved.
Listen in as Andy shares all about The Hope Learning Center and their services, along with some useful strategies!
Resource:
The Hope Learning Center
As we continue our Resource Series, I am so excited to welcome,
Erin Galyean, Professional Author, Speaker, and Trainer.
Erin has spent two decades honing her communication and interpersonal skills in the corporate sector. As a professional trainer, author, and public speaker, Erin is passionate about inspiring and encouraging others to live the life they truly desire. Daily she equips sales professionals with the skills needed to better communicate and connect with healthcare providers and mentors a small group of top-rated sales trainers. Erin’s favorite training workshops are those that focus on developing relational skills like emotional intelligence, advanced communication, and leadership.
Erin lost her father in 1997 to Non-Hodgkin's Lymphoma and her sister Meghan in 2018 to a rare lung disease. These heartbreaking life events taught her how to effectively advocate for a patient. The most recent loss of her sister led her to a vision of helping others powerfully advocate for the patient in their life.
Listen in as Erin shares how family members and friends can get their seriously ill loved one the best care possible with the right knowledge and tools.
Resource:
Badass Advocates
As we continue our Covid Conversations Series, I am so excited to welcome back , Sarah Sweeney.
More About Sarah : My name is Sarah Sweeney, and I am 35 years old. I have my Masters's degree in Social Work, and I am interested in many causes. I have Cerebral Palsy, and because of this I have sometimes found it difficult to show employers my skill-set, and be given the opportunity to prove myself and my capabilities. In addition, I am always grateful to be a part of many different projects or organizations I love to travel and would love the opportunity to travel and share my story in order to help others.
Listen in as Sarah shares how the challenges 2020 & Covid 19 have affected her and our differently abled community.
As we continue our Covid Conversations Series, I am so excited to welcome back to the show , Chris Blezien.
Chris has mild Cerebral Palsy and is 38 years old. He has had several jobs including Cashier at the Kane County Cougars. He had the privilege of interning at Disney World in Orlando Florida in 2003 as a Guest Services Host. Chris attended College Of Dupage and worked at Walmart as a greeter from 2007-2014 . His most recent job was as a Guest Services Ambassador in 2017. Chris has tried getting employment services from Department of Rehab but, it ended up being a dead end. At the initial meeting a counselor assigned to Chris told him that he had done too much for employment services and that she had people waiting five years just to get a part time job. Then he found Achieving Independence and Mobility Center for independent living who he is working with to this very day. Chris can't begin to express how much they have helped and encouraged him. They have given Chris housing leads, helped him with resume writing and encouraged Chris to go back to college and complete his degree.
Listen in as Chris shares how the challenges 2020 & Covid 19 have affected him and our differently abled community.
#CovidConversations
As we kick off of our Covid Conversations Series, I am so excited to welcome back to the show Authors, Writers & Cerebral Palsy Advocates Tylia Flores & Juliana Ruggiero.
Listen in as we take a look at how the challenges of 2020 & Covid 19 have affected our differently abled communities.
Resources:
Stomping on Cerebral Palsy with Tylia
Juliana Ruggiero
Tylia L Flores
As we continue our Resource Series, I am so excited to welcome, Dr. Lilach Saperstein, Audiologist, Parent Coach, Speaker & Host of the All About Audiology Podcast.
Dr. Lilach Saperstein helps families navigate life and parenting at the intersection of hearing loss, special needs, and other chronic health challenges. She is the host of the All About Audiology podcast has been downloaded more than 16,000 times.
Dr. Saperstein is on a mission to help parents connect with and advocate for their children. From her speaking engagements to her clinical work, she has empowered hundreds of people with information and support in their time of need. Her F-I-G Method™ put tools to process, grieve, understand, and advocate in the hands of families.
Dr. Saperstein had been an expert guest on many podcasts like Good Things In Life, Smashing the Ceiling, Glass Half Full, Raise a Legend, and Married to Doctors. When not supporting other families, she’s busy raising her own. She and her husband have three bilingual daughters and live in Israel.
Listen in as Dr. Saperstein shares tools of Advocacy- Learning To Speak Up! / Deciding What To Say.
As we kick off our month long Resource Series, I am so excited to welcome , Sonia Fragapane President of 2BEID.
Listen in as Sonia shares all about the creation and benefits of the 2BEID Medical Identification Bracelet with QR code. Peace of mind that can help save a life!
Resource:
soniamcreations
#MedicalBracelet
As we turn to our Spotlight feature for July, I am excited to welcome, Lily Meierhoefer Founder of Kids Get Arthritis Too Instagram Page.
Lily Shares - Although I am only 16 years old, I have had arthritis for almost 5 years now. Being a teenager with a chronic disease is challenging for a multitude of reasons. Not only is the physical pain tough, but it is also easy to feel alone and have no one to relate to. Most people do not even know that kids can get arthritis and explaining your condition over and over again can be exhausting. Earlier this year, I started the Instagram Page @kidsgetarthritistoo_ to raise awareness for juvenile arthritis, build community, and encourage other teens with arthritis to take action or get involved with the Arthritis Foundation.
Listen in as Lily discusses Juvenile arthritis information, awareness, advocacy and the best ways to help support Juvenile Arthritis Awareness Month.
Resource:
https://www.instagram.com/kidsgetarthri…
Arthritis Foundation
As we get ready for Changing Spaces Awareness Day, I am so excited to be catching up with these 5 AMAZING “Moms On A Mission” as they continue fighting to create change in our public restroom facilities across the United States.
Resource :
Changing Spaces Campaign
#adultsizechangingtables
As we continue our MinorityMental Health Awareness Series, I am so excited to welcome, Rashad Mills, Author, Speaker and Licensed Clinical Professional Counselor.
Rashad Mills is a licensed clinical professional counselor, author, and Radio show host.
Listen in as Rashad shares “The Relationship with You” taking a deeper look at Mental Health & Self Love.
As we continue our MinorityMental Health Awareness Series, I am so excited to welcome Na’Kole Watson, The Life Protector.
Na’Kole Watson is a thirty-five-year-old trailblazer who hails from the small town of Kenly, North Carolina. As a survivor of over twenty-two suicide attempts (she stopped counting after the twenty-second), she is extremely familiar with the effects that suicidal ideation, bullying and abuse can have on an individual. Because of the things she endured, she began to position herself as a resource and a place of safety for those who have endured (or are currently enduring) similar situations and circumstances. These organic outreach methods have transformed into the Na’Kole Watson brand, as well as #NotOnMyWatch™, a nonprofit suicide prevention and anti-bullying organization.
Na’Kole is an accomplished author who published her first book, “I Speak Life: A 30-Day Journey from Suicidal Ideation to Victorious Living” in early 2016. She has since written a series of motivational books for teen girls called “Good Morning, Young Butterfly!” that has a total of six books, and three more that will be released in November of 2019.
A prolific speaker, Na’Kole travels far and near speaking about her testimony as well as equipping and empowering people of all ages to overcome adversity in their lives. She speaks in a candid and impactful manner about a lot of things that are often swept under the rug. Her speaking platform includes schools, businesses, childcare centers, conferences, church events and concerts. Na’Kole also conducts empowerment seminars designed to teach participants about how to identify and properly handle suicidal ideation and bullying.
Na’Kole has the following certifications: Applied Suicide Intervention Skills Training (ASIST), SafeTALK, More than Sad (facilitator certification), Mental Health First Aid for Adults, Mental Health First Aid for Youth.
Na’Kole works hard to make a difference in the lives of all she meets. She is very active in several community organizations, and she desires to change the narrative as it relates to suicidal ideation so that people know that it’s okay to not be okay, and that there is hope and help for any situation.
To date, Na’Kole has talked almost hundreds of people out of suicide. Her life experience coupled with her unique gifting and purpose have allowed her to achieve this monumental success.
Listen in as Na’Kole shares with us her incredible journey & passion for driving awareness and education for suicide prevention.
As we continue our Spotlight on National Headache & Migraine Awareness Month excited to welcome, Jennifer Bertram, Advocate, Special Needs Mom & Migraine Sufferer 💁🏻♀️
Listen in as Jennifer and I discuss some of our experiences as Migraine Sufferers, Triggers and multiple tools/strategies we use to help control our migraines. Plus, some additional great resources.
Minority Mental Health Awareness Month , Disability Pride Month & Tylia's Birthday :)
Learn More About Tylia at : Stomping on Cerebral Palsy with Tylia
As we continue our Mental Health Awareness Series, I am excited welcome, Abbie Miller, Professional Photographer and Founder of The Good Side Project.
Abbie is the owner of Stories Framed Photography based out of Milwaukee, Wisconsin. Her specialty is portrait photography for families, kids, high school seniors and businesses. While running a successful business for eight years, there was something else she was drawn to do. Between a lot of contemplation, personal experience and listening to people talk, The Good Side Project was born. This is a passion project focusing on starting the conversation about mental health. Abbie photographs people who volunteer to share their stories, their struggles and their wins. Their REAL STORIES. The goal of the project is to simply start an open dialog about real life with mental health.
Listen in as Abbie shares all about The Good Side Project and the journey that lead her to it❤️
Resources:
The Good Side Project
Stories Framed Photography
As we SPOTLIGHT Skin Care Awareness Month, I am so excited to welcome, Amanda Cummins, wife, proud mother of 5 and owner of Functional Fitness LLC. Listen in as Amanda shares her personal journey with Skin Cancer! Resources: The Skin Cancer Foundation National Council on Skin Cancer Prevention American Cancer Society #skincancer
As we continue our Minority Mental Health Awareness Series, I am so excited to welcome, Dr. Joanne Frederick-Leiva, licensed professional counselor, speaker, mental health activist and advocate.  Listen in as Dr. JoAnne discusses why Black/Minority Mental Health Matters and is needed now more than ever.  Resources: NAMI American Foundation for Suicide Prevention jflcounseling
As we kick of our National Minority Mental Health Awareness Series, I am so excited to welcome, Adrienne Terry Mental health Counselor, Advocate and Evangelist.
Listen in as Adrienne & I discuss National Minority Mental Health Awareness Month, self care during COVID, multiple resources for individuals and our communities.
As we continue our Mental Health Awareness Series, I am excited to welcome, Tammi King, Licensed Psychotherapist & Trauma Strategist. Utilizing proven, practical strategies coupled with biblical principles, Tammi helps Christian women in healthcare professions confront and heal hidden emotional wounds, so they won’t show up in other areas of their lives. Tammi founded TK Wellness Solutions, an agency dedicated to empowering Christian women in healthcare to take care of their OWN emotional, mental, physical and spiritual well-being. Tammi is skilled in guiding her clients step-by-step to confront and heal emotional wounds, replace maladaptive coping strategies, and identify and leverage your innate strengths to catapult them into the balanced, healthy, and happy life they deserve. Listen in as Tammi shares the importance of Self-Care for healthcare professionals.
As we continue our month long focus on Mental Health/ Mental Wellness, I am so excited to welcome, Dr. Narketta Sparkman-Key (AKA Dr. Key) , Associate Professor/ Published Researcher/ Diversity Expert. Dr. Narketta Sparkman-Key is a passionate speaker, an mental wellness advocate, diversity and inclusion expert and a researcher of vulnerable populations. She currently serves as an Associate Professor of Human Services and Academic Affairs Director of Faculty Diversity and Retention at Old Dominion University. Her research focus is geared towards further defining the professional identity of human services practitioners and delineating practice with diverse populations. She holds the HS-BCP (Human Services Board Certified Practitioner) designation and certificates in global health and college teaching. Dr. Sparkman-Key has been recognized for her accomplishments by a number of community organizations like the Urban League and YWCA. More recently she was recognized for her international community impact by the University of West Indies. Dr. Sparkman-Key supports and builds the capacity of women through community efforts, coaching and her recent podcast, Making It Plain available on Spotify, iHeart and GooglePlay. Listen in as Dr. Narketta Sparkman-Key shares the Impact of COVID 19 on professional women and their mental health, career implications & more! Visit Dr. Key at: Website: www.thedrkey.com Facebook : Dr. Narketta Sparkman-Key
As we turn our focus to this very Special Edition, I am so excited to welcome, Jennifer Rebollo - Community Relationship Manager, Steve Lipshetz - Media Chair and Holly Ignatowski- Co-Affiliate Chair for the Milwaukee Pancreatic Cancer Action Network 💜 Listen in as the Pancreatic Cancer Action Network team discusses their upcoming virtual event and exploring all of the new ways of doing charity events in the virtual world.  Fundraising from home 🏡 Resource: Pancreatic Cancer Action Network
As we continue our Mental Health Awareness Series, I am excited welcome, Crystal Goliday Author, Corporate/Nonprofit Executive and Engineer.
Listen in as Crystal shares her journey of Grief, Wellness & Prosperity.
As we continue our Mental Health Awareness Series, I am excited welcome, Chanel McCord MA, LPC, Licensed therapist, Minister and Author. Chanel McCord is the Owner,/Founder, Clinical Director and Lead Therapist of Oasis Counseling Center & Wellness Group. Chanel received a Bachelor of Arts in Psychology from Seton Hall University and a Master of Arts in Professional Counseling from Liberty University where she graduated with distinction. Chanel is licensed as Professional Counselor (LPC) in the state of New Jersey. She holds several certifications including Crisis Prevention Intervention (CPI), Psychological First Aid (PFA) and Posttraumatic Stress Management (PTSM) and is a member of the American Counseling Association (ACA). Chanel is also a Licensed Minister. With 9+ years of experience, Chanel seeks to restore and assist in the healing process of individuals through counseling, psychoeducation, mentoring and wellness initiatives targeting the mental, social and spiritual paradigms of one’s life. Education, empowerment, encouragement, enrichment and hope are aims that Chanel seeks to share with others. Through Oasis, Chanel hopes to provide a voice and outlet for the many issues that are faced in life from public affairs and mental health to self-esteem and spiritual matters. As a motivational speaker, Chanel touches on issues and topics that span psycho-social and spiritual realms. Delivering transformational, fun, high energy and impactful messages to leave the target audience educated, empowered and encouraged. Listen in as Chanel shares Mental Health Tips for Managing During the Pandemic. Resources: Oasis Counseling Center & Wellness Group
As we kick off our Mental Health Awareness Series, I am excited welcome Andy Riggs - Morning Radio Show Host, AFSP Wisconsin Co-Chair, and Out of the Darkness Walk Chairperson. Listen in as Andy and I have a #RealConvo about these uncertain times, the on going pandemic, isolation, social distancing, trying to find our new normal and how important it is to take care of our mental health now more than ever.
As we Spotlight Alcohol Awareness Month , I am excited to welcome back Vicki Fitch, Author, Speaker, Business Consultant & Direct Sales Expert!
Listen in as Vicki & I dive into some raw & really conversation about Alcoholism & more.
Did you know ...
Alcohol is the oldest and most widely used drug in the world. In the United States alone more than 15 million people are affected by alcohol abuse or dependency.
As we spotlight this IBS/Autism combo Special Edition , I am so excited to welcome Dr. Lisa De Rogatis Sulsenti.
Dr. Lisa is a Christian chiropractor, nutritionist, author and speaker. She currently owns Atlantic Coast Chiropractic, a wellness center in Brick, NJ. Over the past 20 years, she has adjusted and coached patients with various health problems such as heart disease, high blood pressure, digestive problems, thyroid and hormonal imbalances, fibromyalgia, allergies, back and joint pain, headaches, Autism Spectrum Disorders and weight gain. Dr. Lisa is the creator of DrLisaSulsenti.com, a website dedicated to creating healthy and thriving families with chronic health issues and ASD.
She is author of The Overtilted Child: Creating a Sensational Classroom for Kids with Autism Spectrum Disorders, Sensory Processing Disorders and ADD/ADHD and upcoming book, The Kind Kitchen: She is owner of her one-on- one and DIY The Kind Gut® programs, improving chronic health issues by repairing leaky gut imbalances. She is also co-owner of The Kind Body®, an incredible organic skincare company. Her mission is to serve God by helping others create healthy lives. She truly is an expert and warrior on removing harmful ingredients from foods and body products so her patients can live illness-free, active and happy lives. Dr. Lisa lives in NJ with her husband and three boys who all enjoy spending time together- the boys love computers, art and NYC where Lisa and her husband embrace the flip-flop life of the beach, surfing and paddle-boarding. Together, they embrace God and all He provides in this life.
Listen in as Lisa shares The Gut-Brain Connection - How to overcome ASD Challenges by Tacking a Leaky Gut.
Resource:
Dr. Lisa Sulsenti
As we kick off our IBS Series , I am so excited to welcome Derek Holm Chief Development Officer & Lead Formulator of Neogenics Nutrition. Derek started his journey in the world of supplements working on a semi-automatic capsule machine. Spurred by absolute boredom, but having found a passion for the industry, Derek worked his way through manufacturing and into packaging. From there he was hands-on in quality control, FDA compliance, formulating, flavoring, sourcing, etc. Now, after more than 15 years in the industry, Derek has become extremely experienced in just about every aspect of dietary supplements. He has been involved in creating more than 1,000 formulas and has been a part of many different products that are still on the shelves today. He has also consulted with many different supplement manufacturers and helped implement strategies focused on improving quality and efficiencies of the day-to-day. Listen in as we tackle the in's and out's of the supplement industry - what you need to know, optimal gut health, immune support and much more.
As we wrap up our Autism Acceptance & Awareness Series, I am so excited to welcome, Robin Portanova, President & Founding Member of Stamford Education 4 Autism.
Listen in as Robin shares her family’s journey with Autism, all about how Stamford Education 4 Autism, SE4A Buddies and Just A Peace Gift-shop got started. Plus, helpful strategies, tools & support to take with you along the journey!
As we continue this months focus on Autism Acceptance & Awareness, I am excited to welcome Jackie Dorshorst, Soma® Certified RPM Provider in Southeastern Wisconsin.
RPM is an academic teaching method that leads to communication. RPM can be used to teach students who have a variety of abilities.
Listen as Jackie shares lots of information on RPM & how to adapt during quarantine times. Plus, some of her other best tools, strategies and supports.
Connect w/ Jackie at:
RPM+ for Autism, LLC
As we continue our Autism Acceptance & Awareness Series, I am excited to welcome back Maria Davis-Pierre, Licensed Mental Health Counselor, Author & Founder of Autism in Black Inc.
Listen in as Maria shares her family’s journey with Autism, why staying educated/ informed is key, the importance of mental health/self care through the journey, the upcoming launch 🚀 of her newest book “Include the Excluded”, plus learn all about her April Autism webinar series and what lead her to establishing Autism in Black, Inc.
Free Webinar Series
www.autisminblack.org/aprilwebinar
As we continue our Cerebral Palsy Awareness Series, I am excited to welcome back Tylia Flores, writer & cerebral palsy advocate.
Tylia was born with cerebral palsy. Although her condition has affected her mobility, it has never affected Tylia’s will and determination to make a difference in the world. Through her many life challenges and obstacles, she discovered her passion for writing. Tylia’s goal in life is to share her stories with the world. In doing so, she hopes to help others with disabilities realize that they, too, have the potential to make their dreams come true.
Listen in as Tylia Flores shares her inspirational journey with cerebral palsy & how you can get involved and help spread awareness Cerebral Palsy Day
Resource:
Stomping on Cerebral Palsy with Tylia
As we kick off our Autism Acceptance & Awareness Series, I am excited to welcome back Vicki Fitch 💙
🧩 Vicki is an Author, Speaker, Business Consultant and an expert in the Direct Sales Industry who built and sold 4 companies all while raising a family, including a child with Asperger's. Helping him navigate a world that didn't understand him was just as important as helping him navigate a world he didn't understand. His FEAR that he was "weird" and different inspired her to remind him he was "Quirky" and that #QuirkyIsCool.
🧩 Those persistent reminders lead her to #12Books12Months last year, including 2 that were inspired by her son, Evict the Bully in Your Head, which has his likeness on the cover, and
Own It, How to Step Up and Stand Out, #QuirkyIsCool, Normal is so... Yesterday.
🧩 She is on a mission to rid the world of NES (Not Enough Syndrome) and to help people live by the motto: #YouAreEnough... just the way you are.
Listen in as @Vicki.HainaultFitch shares with us about raising a family, having a son on the Spectrum, entrepreneurship and her current mission #YouAreEnough💙
As we kick off our Autism Acceptance & Awareness Series , I am excited to welcome Jacqualine Folks, mother, author and autism community leader🧩 🧩 In 2003 Jacqui’s middle son, Ethan, was diagnosed with Autism. His diagnosis came at a time when resources for Autism were scarce, so Jacqui found herself on a journey of self-education to enrich the life of her child. Learning all she could about Autism education, therapies, and advocacy🧩 🧩 In 2005 Jacqui started a support group for parents in her local community. Several years later, the ladies she met through that journey joined forces and co-founded the Eudora ACES (Autism Community Education and Support). ACES is a successful non-profit organization dedicated to helping other families with their journey through Autism and supplying necessary equipment and resources for special education classes in their school district. 🧩 Then in 2019 Mascot Books announces the release of Adventures With Big E: Help With Hygiene- Jacqui’s first children’s book. 🧩 Listen in as Jacqui shares their family’s incredible journey with Autism, her road to becoming an Author and much more 💙 Resources: Adventures With Big E Mascot Books
As we turn our focus to Cerebral Palsy Awareness Month, I am so excited to welcome, Nicole Luongo Author, Cerebral Palsy Advocate and Writer.
Nicole Luongo is an author, disability advocate, and a writer. She became well-known in the cerebral palsy community after her article about having selective dorsal rhizotomy surgery (SDR) with Dr. TS Park (SDR: Life-Changing Surgery for Cerebral Palsy) was published in HuffPost. Her work has been featured in myriad places including The Mighty, MSN and Yahoo!
In 2019, Nicole became the first person ever to get a least one building or landmark in almost every state to light up in green on both National Cerebral Palsy Awareness Day (March 25) and World CP Day (October 6). She’s passionate about raising awareness for cerebral palsy, and she’s proud to have been a World CP Committee member since it’s inception in 2016.
Listen in as we discuss Cerebral Palsy Awareness Month & how you can get involved.
As we continue our Cerebral Palsy Awareness Series, I am so excited to welcome, Marie & Cindy of Reflection of an Adult with Cerebral Palsy.
Listen as Marie & Cindy share more about their platform, what life is currently like in Connecticut and Australia dealing with Covid-19 & ways you can still get involved with Cerebral Palsy Awareness Month!
As we kick off our Cerebral Palsy Awareness Series, I am so excited to welcome, Neha Siddiqui, Author, Blogger & Co- Owner of Neha Adaptive.
Neha is the Co-Owner of Neha Adaptive and manages all the social media for their company. Neha Adaptive Clothing was established by the belief that life should be accessible to all. In affiliation with Silvert’s Adaptive Clothing and Footwear, we feature high quality and affordable adaptive products.
Neha also has a passion for writing and creating content as a blogger and a self-published Author. Her book Brave Soul is an autobiographical on her personal journey with CP and how to live life to the fullest.
Listen in as Neha shares all about her journey with cerebral palsy and how even through struggle she lives her life to the fullest.
As we continue to support & drive awareness for Rare Disease, I am excited to welcome back to the show, Kerry Morgan Hughes,M.Ed Harmony 4 Hope Founder and President.
Listen In & Learn more about Harmony 4 Hope, Rare Disease Awareness & an AMAZING Event taking place for Rare Disease !!! Fact: 350 million people worldwide who are collectively impacted by 7,000 different life-limiting and life-threatening rare diseases.
As our Hope Series continues, I am excited to welcome Catlin Smith, mental health advocate and author.📚
Catlin Shares : I am 21 years old. I'm from Dallas, Texas. I moved to Kansas when I was 12 year old. It's been home ever since! I struggle with anxiety and depression and going through my journey of healing, I was able to find my voice in something so many people struggle with. I express myself through writing and connecting with people! I run a blog on Facebook called Inspired by Catlin where I blog about Mental Health and Women Empowerment! I addition, I am the other of a book called From Failure to Success.
Listen in as Catlin shares her personal journey with mental health, information about her book from Failure to Success and how she provides hope to other those her blog Inspired By Catlin.
Blog: https://www.facebook.com/inspiredbycatlin
As we continue our Hope Series, I am so excited to welcome Dr. Hokehe Effiong wife, mother, pediatrician and Founder of Kits of Hope- A project of The Effiong Foundation.
Dr. Effiong knows that Early Childhood Trauma can happen to anyone and the cycle continues when there is a lack of knowledge about its effects and how to break the cycle as an adult. Dr Effiong, Board Certified Pediatrician also known as The Thrive strategist, Wife and mother of three Lovelies is passionate about the care of children. She advocates for children in foster care and is the founder of Kits of Hope, 501 (c) 3 Organization, that shares love and hope by providing children going into foster care with bags filled with comfort and essential items.
Listen in as we learn more about Kits of Hope and all of Dr. Effiong’s efforts within the community.
As our Hope Series continues, I am excited to welcome back, Mary Tutterow. Mary is a wife, mom, caregiver, speaker, teacher and author.
Mary has developed The Heart of the Caregiver © - community and support for anyone feeling overwhelmed by the responsibilities and emotions of caring for someone with disabilities, chronic illness or age-related issues.
A former anchorwoman and marketing executive, Mary now leads online and in person small groups for caregivers – as well as workshops, webinars and retreats. Mary has been featured on numerous podcasts, vlogs and talk shows.
Listen in as Mary shares all about her new book “The Peaceful Caregiver” and some little rays of hope from her own personal journey ❤️
To learn more visit www.theheartofthecaregiver.com
As our Hope Series continues, I am excited to welcome, Annalee Kruger, MBA Family Caregiver Concierge , Senior Advocate and President, Care Right, Inc.
Listen in as Annalee & I discuss the great need for putting the CARE back in Healthcare
As we kick off our Hope Series, I am so excited to welcome, Doaa Shayea Disability Advocate & Beautician.
Doaa is truly passionate about creating change in our world. She regularly advocates for topics around employment for the differently abled, wheelchair living, mental health and body image.
Doaa shares her personal journey with us. Plus, how she looks to create change around the world for those with different abilities.
Connect with Doaa on her Social Media Sites :
Facebook: https://www.facebook.com/DoaaShayea/
YouTube - Doaa Shayea https://m.youtube.com/watch?v=RSsD50Qfo0c
📷Instagram - https://www.instagram.com/doaa.shayea/
🐦Twitter - https://mobile.twitter.com/DoaaShayea
👻Snapchat - doaashayea01
As we continue our All Things Employment Series. I am excited to welcome Evelyna Castro.
Listen in as Evelyna shares her personal story and journey along with valuable insight into some of the difficulties those with different abilities face when seeking employment.