Special Needs Parenting SOS: Recent Episodes

Nadya Tahri

Help, hope, encouragement and support for parents who have a child with special needs. Caring for a child with special needs has several challenges and I don’t want you to feel like you are all alone. I created this podcast to give you hope, support and encouragement 🤗💗

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In this podcast episode I am sharing straight from my heart some of the really difficult challenges we have faced this summer. It’s been one thing after the next. Sometimes when it rains, it pours!

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When was the last time you told your loved ones how much you love them? If it’s been a while, I urge you to reach out to them today. Because unfortunately tomorrow is never guaranteed. In this podcast episode I share about how my incredible father in law Tim Bryant just suddenly passed away. 😭😭 He was such a wonderful, kind, caring, intelligent, thoughtful and giving person. I miss him dearly. 😭

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Imagine getting up one morning and going to work…just like a normal day, but then all of a sudden, you lose everything in a matter of minutes. That is exactly what happened to my 24 year old daughter Gabriella Kielhorn. She left her apartment to go to work on Tuesday, May 16th, 2023 and while she was at work, the guy who lived directly below her, Garrett Repp intentionally started a massive fire in their apartment building because he was being evicted for non payment and clearly wanted to make sure that he wasn’t the only person forced to find a new place to live. My daughter is devastated not just from losing everything she owned and having to find another place to live and begin to rebuild all over again, she is beyond devastated that her 2 cats died in the fire. Nothing can or will replace her beloved cats that she bottle fed when they were babies. 😭 Please pray for my daughter and for everyone else who lost everything in the apartment fire. 🙏🏻

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In this podcast my mom shares what life is like caring for her 2 grandchildren who have special needs. #AllanHerndonDudleySyndrome #AHDS #MCT8

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Do you really need to take that handicap parking spot? This podcast episode talks about when you should and should not use a handicap parking spot.

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Needing to take your child to the ER is always a scary time. In this podcast episode you will find out why we had to take my 5 year old son Josiah to the ER this weekend.

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Are you tired of driving all over trying to find a park that has a special needs swing so that your child with special needs can enjoy swinging? I have some very good news 🥳 Listen to this podcast episode to see how easily you can get a special needs swing for your child.

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Are you wondering how to stay motivated to achieve your New Years resolution or goals for this year? If so, then you definitely want to listen to this podcast episode.

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Have you been stressing because you don’t have enough money to buy your kids gifts for Christmas? If so, no need to worry. Just listen to this podcast episode to say how you can make this Christmas one of the best Christmas’ ever…even without spending much money on gifts. 🎁

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Need a few ideas for how you can make Christmas time extra special for your child with special needs? If so, you will definitely want to listen to this podcast episode.

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Having your child with special needs get sick can be heartbreaking. Naturally we want to do everything we can to avoid that from happening. In this podcast episode I share a few simple tips to help your child from getting sick.

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In this podcast episode I share why having daily gratitude is so important. If you find it challenging to find things to be thankful for, you definitely want to listen to this podcast episode.

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Viewpoint from my oldest son Elijah on life with 2 younger brothers with special needs. The ups and downs. The highlights and the challenges. Elijah opens his heart and tells all.

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Kate Hamilton shares about a chapter she wrote in a book called “Navigating Motherhood”. A book written by Mothers for Mothers. Her son Mason has the same rare genetic syndrome that my 2 boys have called Allan Herndon Dudley Syndrome.

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If you have a child with autism…you definitely want to listen to this podcast episode. In this podcast episode my friend Kathleen Caldwell shares her story of life with her son who has autism. You definitely don’t want to miss this one.

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Some days can be really hard and it can feel overwhelming at times. But just know that you are a huge inspiration to so many people who are watching you. They see the heavy load you are carrying day in and day out and you inspire them more then you will ever know. Most people won’t ever tell you how much you inspire them…but just know…you are making a big difference in the lives of so many people.

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If you are tired of worrying about money or our economy….try allowing your subconscious to find solutions to what you are stressing about. This podcast episode explains how to do that.

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October 8th is Worldwide MCT8-Allan Herndon Dudley Syndrome Awareness Day. This is the rare genetic syndrome that my two youngest boys have. It is my hope and prayer that one day there will be a cure for AHDS.

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Pure panic set in as soon as I realized that I had accidentally locked my son inside our wheelchair van. This podcast episode talks about what you can do to prevent this from ever happening to you.

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Are you tired of feeling stuck, confused or worried about what you should do? If so, you will definitely want to listen to this podcast episode where I share a simple solution you can use anytime you feel stuck or confused as to what you should do next.

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This podcast episode talks about what a huge blessing my mom is in my life and why we need to take the time to let our moms know how much they mean to us.

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This podcast episode talks about why you need to have at least 2-3 back up caregivers to help you incase of an emergency.

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If you have a child with special needs who is not able to walk or stand on their own…then you should definitely listen to this podcast episode.

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If you have a child with special needs…this podcast episode is meant to give you hope. Scientists are doing a lot of research to massively help improve many issues your child may be struggling with. So we have several things to look forward to.

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Suicide prevention needs to be talked about more. In this podcast episode I share the true story of when my son saved a man from killing himself.

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In this podcast episode I share about the wheelchair van update for my 2 boys who have special needs. If you are searching for a good wheelchair van, you might want to listen to this podcast episode.

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Are you struggling with how to cope on your loved ones birthday….after they are gone? This podcast episode talks about how to keep birthdays special year after year when grieving for your loved one.

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Feeling kinda down? It’s perfectly ok to feel sad sometimes. Give yourself the freedom to feel your true feelings.

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If you are a parent of a child with special needs and you are feeling overwhelmed and exhausted, you will definitely want to listen to this podcast episode.

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Are you having a really bad day? Or a really bad week? If so, you will definitely want to listen to this podcast episode about how we can turn challenging situations into opportunities for growth.

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If you have a child who has been diagnosed with a rare genetic syndrome, you will definitely want to listen to this podcast episode to see how Chive Charities can help your child.

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If you have a child who is non verbal, you will definitely want to listen to this podcast episode. My sister Malika shares some tips and stories from raising her son Amir, who was non verbal.

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If you would like to hear the update on the 24 Hour EEG that Isaiah had last week, then feel free to listen to this podcast episode.

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In this podcast episode I share about Isaiah being admitted to the hospital for a 24 Hour EEG to see if he is having seizures or not. If you’d like to follow Isaiah’s EEG journey, hit play to listen to this podcast.

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Are you thinking about taking an RV Roadtrip with your child with special needs? If so, you will definitely want to listen to this podcast episode.

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If you’ve ever wondered how to cope when you have a loved one who is addicted to alcohol…then you will definitely want to listen to this podcast episode.

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If you have a child or loved one who is self harming….this podcast episode is for you. My daughter use to be addicted to cutting herself. This is what I’ve learned from that experience. #selfharm #cutting

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Do you have a child or a loved one who struggles with a mental health issue? If so, please know that you are not alone. Listen to this podcast episode to see how I cope with my child who struggles with mental health issues.

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Are you tired of struggling to find G-Tube clothes for your child with special needs to wear so that you can feed them through the G-Tube easier? If so, you definitely want to listen to this podcast episode….which has the solution you’ve been looking for! 😊👏 With special guest Demet Dulkara

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What do you do when your child loses a tooth? In this podcast episode I share my take on it and encourage you to see it through a different viewpoint.

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If you think your child with special needs might be having seizures…you will for sure want to listen to this podcast episode.

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Is massage therapy really beneficial for your child with special needs? Listen to this podcast episode to find out the answer.

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The way we speak to ourselves really matters. Truth! If you find yourself thinking a lot of disempowering thoughts everyday…you will definitely want to listen to this podcast episode.

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Do you have something that you can’t wait to experience…maybe a trip or a concert or a fun convention? Something that when you think about it….you get a huge smile on your face. If not, you should listen to this podcast episode on why it’s so important to schedule things that light you up! 🥳💃🎉🎈

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In this podcast episode I share about how we should be in the moment and cherish every day we get with our children. Tomorrow is never promised. So let’s remember to enjoy each day and realize how blessed we are.

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In this podcast episode I share about a really hard day that I experienced last week when I took my son to an allergy specialist who lacked bedside manner.

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Join me and my guest speaker & friend Yolie Silva. Yolie is a health coach for women. In this podcast episode she shares some excellent tips for overall health.

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In this podcast episode I share details on my 2 youngest boys’ rare genetic syndrome called Allan Herndon Dudley Syndrome.

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Join me in this podcast episode on Self Love for parents who have a child with special needs🤗💗 With my guest and friend Amanda Millemon.

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Join me in today’s podcast episode with my guest Sharon Costanzo. She is an excellent relationship coach with very helpful tips and suggestions for how to improve your relationship with your partner.

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In this podcast episode I share the rest of the true story of what I did when an extremely rude doctor treated my son Isaiah and I with major disrespect. Part 2. I also share 3 tips for what you can do if you find yourself in a similar situation.

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In this podcast episode I share the true story of what I did when an extremely rude doctor treated my son Isaiah and I with major disrespect. 3 tips for what you can do if you find yourself in a similar situation. Part 1

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In this podcast episode I share how my son Isaiah, who is non verbal is able to communicate with us using his eye gaze device. Eye gaze devices are truly an incredible blessing for anyone who is non verbal to be able to communicate.

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Well, after 2 years of not getting Covid….our household finally got it. And let me tell you…it was NOT fun! It felt like I was being tortured. In this podcast episode I share what we experienced when we got Covid.

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Are you struggling to let go of something bad that happened? Do you find yourself going over it again and again in your mind? Is it ruining your day, week or month? Then you will definitely want to listen to today’s podcast episode on how to let it go.

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Trying to figure out what your New Years resolutions are going to be? If so, be sure and listen to this podcast episode first.

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Do you find it difficult to be present in the moment? Do your thoughts constantly recall things from the past or are you constantly focused on the future…next week, next month, next year? If so, you will want to listen to this podcast episode to learn how to enjoy living in the present moment.

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If you are feeling stressed with all the load on your shoulders as a parent of a child with special needs, you definitely want to listen to this podcast episode where I share 3 tips on how to reduce stress as a parent of a child with special needs.

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Have you lost a loved one? Are you struggling with asking “Why God”? If so, you will definitely want to listen to this podcast episode where I share about how I coped with my nephew Amir passing away at only 17 years old.

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Ever find yourself so angry or hurt by someone being SOO rude or disrespectful? Not sure how to handle it? If so, you will definitely want to listen to this podcast episode.

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In this podcast episode I share 40 prompts that you can use when writing in your Gratitude Journal. I hope you find them super helpful 🤗💗

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Are you up for a 30 Day Thanksgiving Challenge? If so, listen to this podcast episode to learn all about how you can incorporate gratitude and thankfulness first thing in the morning for 30 days straight. Are you up for the challenge?

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If you have a child with special needs that is being denied a service from their school….then you may want to listen to this podcast episode. Warning….this podcast episode is a Rant! I am one upset mama! If you don’t want to hear a Rant…then do not listen to this podcast episode.

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Taking your child with special needs to multiple doctors appointments and therapy appointments all the time can be exhausting…not just for you, but also for your child. That’s why in this episode I talk about how important it is to schedule “fun times” with your child on a regular basis. Listen to this podcast episode to find out more.

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If you have ever wondered how to cope when your child with special needs is going through a scary and stressful time, then you will definitely want to listen to this podcast episode of exactly what I did to cope when my 5 year old son wasn’t coming out of sedation after his surgery.

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This podcast episode is all about how to handle someone who puts you down for “JUST being a stay at home parent”. Don’t listen to them for even a second!! In one ear and out the other! You are an incredible parent!! 🙌❤️

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If you’ve been struggling to lose weight you will definitely want to listen to this podcast episode of my dear friend Luisa Morrone. She shares her incredible story of how she lost 145 pounds! 💃🎉🙌👍🏻

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If you would like to know more information about what Allan Herndon Dudley Syndrome is, then you will want to listen to this podcast episode. Both of my youngest 2 boys have this very rare genetic syndrome.

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Do you find yourself reaching for your phone first thing every morning? Do you spend more time on your phone then anywhere else? If so, you definitely want to listen to this podcast episode where we dive into the importance of making time to disconnect on a daily basis.

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Needing some excellent parenting tips and suggestions? You will definitely want to listen to this podcast episode where guests speaker Anne Moriarty shares several excellent parenting tips that you can implement right away! 🙌

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What are your goals and dreams? Do you have any? If not, I would really encourage you to come up with at least 3 things you would be tickled pink to achieve, to do or to experience. Listen to this podcast episode for some inspiration to set and achieve your goals 💗🙌

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Are you struggling with doubt about something? In today’s podcast episode I share 3 helpful tips to overcome doubt. 🙌 Check it out ⬇️

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Wanting some clarification on if getting vaccinated will ensure you don’t get Covid? Then you definitely want to listen to this podcast episode where I share people that I know personally, who have gotten Covid.

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If you have a child with special needs who will be going to school, you will definitely want to listen to this podcast episode of how to prepare for your child’s IEP meetings.

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Cherish your kids and your loved ones because tomorrow is never promised. In this podcast episode I share about my nephew Amir who passed away at just 17 years old. He had the same syndrome that my 2 boys have. It’s called Allan Herndon Dudley Syndrome.

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Having to take your child to the ER is a very scary thing. In this podcast episode I share what happened leading up to us having to take our 4 year old to the ER last week.

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Are you tired of insurance denying equipment that your child with special needs really needs? Then you definitely want to listen to this podcast episode of what I did when insurance denied equipment that my son needed.

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You definitely want to listen to this episode where I interview Margi Nazario Ruiz. She shares 3 awesome tips for how we can incorporate self care into our crazy busy lives. She is an incredible person and I am so happy she was willing to share her story with us as well as 3 awesome tips for how we can incorporate self care into our busy days.

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Have you ever been in a super stressful and dangerous situation wondering how to cope? If so, you’ll want to listen to this episode. I share a true story of a very stressful and dangerous situation that we were recently in and 2 ways that helped me cope.

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Do you ever find yourself wondering what in the world you should have for dinner? If so, you are going to want to listen to this podcast episode which covers 2 quick tips on making meal time a breeze.

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Have you ever found yourself wondering “Why in the world is this happening to me?” If so, you will definitely want to listen to this podcast episode where I dive into how to deal with this question.

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Trying to figure out what is the best way to travel with your child who has special needs? Then you definitely want to listen to this podcast episode. I cover 8 tips on the best way to travel and I have 2 kids who have special needs. #travel #Specialneedskids #SpecialNeedsParenting

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No one ever wants to think about when they die but the fact is, we all know that it is going to happen one day. In this podcast episode I share about the importance of having a life insurance policy and a will set up in case something happens and you suddenly pass away. Are you prepared?

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In this podcast episode I share about why it is SOO important to go for your dreams and goals regardless of when others try to convince us otherwise. Go for it 100%! You do YOU! 🤗💗

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Before you speak.....think. We can sometimes be so quick to speak that we end up saying something we regret. In today’s podcast episode I share a few tips on what to think about first, before we speak.

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Have you ever wondered if there is a better way to handle your emotions when you are really struggling with feeling stressed, hurt or frustrated? In today’s podcast episode I share some tips for how to handle negative emotions.....because let’s face it....life isn’t always easy!

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Do you have a child with special needs as well as a child without special needs? How much time should you be spending with your child who doesn’t have special needs? Join me in this podcast episode as I share what has worked for me and my 4 kids, 2 of which don’t have special needs & 2 who do have special needs.

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In this podcast episode I share 3 benefits of how beneficial horse therapy has been for my son Isaiah who is not able to sit up on his own, nor does he have head control.

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Have you ever struggled to put your child’s shoes on over their orthodics? Well I have some good news! In today’s podcast episode I share the absolute best shoes if your child wears orthodics. 😊👍🏻

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Should your child with special needs go to school during this Covid Pandemic? During this episode I share why I initially did not want my boys going to school and why I changed my mind. Curious to know your thoughts on how you feel regarding your child going to school or not?

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“The happiest people don’t have the best of everything. They just make the best of everything.” - Anonymous Do you ever wonder how in the world some people can be happy when they have what looks to be a horribly difficult life? Join me in this podcast as we dive into the secret to true happiness. 😊

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In this episode I share the big differences between my son Josiah who received levothyroxine injections during my pregnancy with him verses Isaiah who did not receive any levothyroxine injections....and Isaiah has the exact same syndrome as Josiah. There is quite a big difference between what Josiah can do verses what Isaiah can do.

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Find out how my mom did after her stroke and seizures as well as dive into my 4th pregnancy and signing up for a never done before...new experimental treatment during pregnancy.

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As a mom of 4, with my youngest 2 kids having special needs....in this episode I share part 1 of my kids and I’s backstory so you get a better understanding of where I’m coming from for future episodes. I share about our search for trying to get a diagnosis for my son with special needs.