The Bloodline with LLS: Recent Episodes

The Leukemia & Lymphoma Society

A Podcast for Patients and Caregivers

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Behind every policy is a patient, caregiver, or family whose story helped make change possible.

In this episode, we speak with Andrea Sanchez and Becki Chandler, volunteer advocates with Blood Cancer United, about the power of patient voices in shaping public policy. Drawing from their own family experiences with blood cancer, they discuss issues ranging from medical debt and insurance coverage to clinical trial access and research funding and explain how patients and caregivers can make their voices heard.

Learn why sharing your story matters and how personal experiences help lawmakers see that patients are more than numbers on a page. Behind every statistic is a real person, a unique story, and a family impacted by blood cancer.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Blood Cancer United Advocacy and Office of Public Policy – sign up for volunteer advocacy or sharing your voice here
  • Medical Debt Case Management Program
  • Financial support
  • Accelerating Kids Access to Care Act
  • Dare to Dream
  • Blood Cancer United Scholarship program
  • Blood Cancer Care Close to Home vlog episode
  • National Institutes of Health (NIH)
  • Advocating for Yourself: Insurance, Finances, and Your Rights podcast episode

Additional Blood Cancer United Support Resources:

  • Information Specialists
  • Clinical Trial Support Center
  • Young Adult Resources
  • Young Adult Online Chat
  • Free Nutrition Consultations
  • Free telephone/web patient programs
  • SHARE web series
  • Online videos
  • Free booklets
  • Patient Community
  • Caregiver support
  • Caregiver Workbook
  • Support groups
  • Survivorship Workbook
  • Mental Health Resources

The post Making Your Voice Count: The Power of Patient Advocacy first appeared on The Bloodline with Blood Cancer United Podcast.

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Monica Fawzy Bryant, Esq.Cancer affects more than your health. It can impact your finances, insurance coverage, employment, and daily life. In this episode, Monica Fawzy Bryant, Esq. of Triage Cancer joins us to discuss common financial and insurance challenges patients and caregivers may face after a cancer diagnosis, including understanding health insurance, managing medical debt, appealing insurance denials, finding financial assistance, and avoiding gaps in coverage. Monica also shares practical resources and strategies to help individuals make informed decisions and reduce the financial stress that can come with cancer.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Financial support
  • Medical Debt Case Management Program
  • Triage Cancer
  • No Surprises Act
  • No Surprises Act Help Desk – 1-800-985-3059
  • How Do I? Insurance Series
  • Insurance Coverage
  • Family and Medical Leave Act (FMLA)
  • Continuation of Health Coverage (COBRA)
  • Chart of State Laws
  • Appeals
  • Insurance Guides and Worksheets
  • October 2026 Webinar-Understanding Changes to Medicaid & the Marketplace: What Patients and Caregivers Need to Know
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy

Additional Blood Cancer United Support Resources:

  • Information Specialists
  • Clinical Trial Support Center
  • Young Adult Resources
  • Young Adult Online Chat
  • Free Nutrition Consultations
  • Free telephone/web patient programs
  • SHARE web series
  • Online videos
  • Free booklets
  • Patient Community
  • Support groups
  • Survivorship Workbook
  • Mental Health Resources

The post Advocating for Yourself: Insurance, Finances, and Your Rights first appeared on The Bloodline with Blood Cancer United Podcast.

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Jonathon Cohen, MD, MSWhen you hear the word “aggressive,” it can feel overwhelming, but in diffuse large B-cell lymphoma (DLBCL), it can also point to something encouraging – a potential cure.

In this episode, we speak with Dr. Jonathon Cohen, of Winship Cancer Institute in Atlanta, GA, about what a DLBCL diagnosis really means, from how this common type of non-Hodgkin lymphoma is identified to current treatment options and emerging therapies. We explain what patients and families need to know about side effects. We also look at new treatments, including CAR T-cell therapy and bispecific antibodies, and the importance of open communication with your care team.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Diffuse large B-cell lymphoma
  • CAR T-cell therapy
  • Stem cell transplantation
  • Bispecific antibodies (immunotherapy fact sheet)
  • Clinical Trial Support Center

Additional Blood Cancer United Support Resources:

  • Information Specialists
  • Young Adult Resources
  • Young Adult Online Chat
  • Financial support
  • Free Nutrition Consultations
  • Free telephone/web patient programs
  • SHARE web series
  • Online videos
  • Free booklets
  • Patient Community
  • Support groups
  • Caregiversupport
  • Caregiver Workbook
  • Survivorship Workbook
  • Advocacy and Public Policy
  • Mental Health Resources

Episode supported by Genmab US, Inc.

The post Diffuse Large B-Cell Lymphoma (DLBCL): Breaking Down an Aggressive Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

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Samuel Brotkin, PhD, Chelsea Kaye, LCSW and Elissa BaldwinRecorded onsite at CancerCon®, a young adult cancer conference presented by Stupid Cancer®, we talk about what resilience really means after a cancer diagnosis, and why it’s not about always being “strong.”

Join us alongside Sam Brotkin, PhD, a clinical psychologist at Bull City Behavioral Health and Chelsea Kaye, LCSW, an Information Specialist at Blood Cancer United. In this episode, we share compassionate, practical strategies for building lifelong resilience. Learn how to manage expectations, find trusted support, and give yourself grace exactly where you are today.

Although this discussion comes from a young adult cancer conference, the insights shared are relevant across all ages and experiences.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Information Specialists
  • Young Adult Resources
  • Young Adult Online Chat
  • Bobby’s Coaches
  • Stupid Cancer
  • The Bloodline Live: Emphasizing the Patient Voice in Young Adult Cancer Care – featuring Dr. Abby Rosenberg

Additional Blood Cancer United Support Resources:

  • Financial support
  • Free Nutrition Consultations
  • Clinical Trial Support Center
  • Free telephone/web patient programs
  • SHARE web series
  • Online videos
  • Free booklets
  • Patient Community
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Advocacy and Public Policy
  • Mental Health Resources

Episode supported by Merck & Co., Inc.

The post The Bloodline Live!: Redefining Resilience first appeared on The Bloodline with Blood Cancer United Podcast.

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Tania Jain, MBBSWhat does a myelofibrosis (MF) diagnosis really mean, and how does it fit within a group of conditions called myeloproliferative neoplasms, or MPNs? In this episode, we’re joined by Dr. Tania Jain of Johns Hopkins Sidney Kimmel Comprehensive Cancer Center in Baltimore, MD, who helps break it all down in a clear and approachable way.

She discusses how myelofibrosis affects the bone marrow, common symptoms to watch for, and how treatment options are tailored to each person. From managing day-to-day challenges to understanding when more advanced treatments may be considered, this conversation focuses on what matters most to patients and families.

As Dr. Jain shares, “every patient writes their own story,” noting that advancing research offers genuine hope.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Myelofibrosis (MF)
  • DIPSS/DIPSS plus myelofibrosis scoring
  • Myelofibrosis: Charting the Course for Care
  • Allogeneic stem cell transplantation
  • Acute myeloid leukemia (AML)
  • Clinical Trial Support Center
  • Online Chat

Additional Blood Cancer United Support Resources:

  • Information Specialists
  • Financial support
  • Free Nutrition Consultations
  • Free telephone/web patient programs
  • Free booklets
  • Patient Community
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Young Adult Resources
  • Survivorship Workbook
  • Advocacy and Public Policy
  • Mental Health Resources

Episode supported by Takeda Oncology.

The post Myelofibrosis (MF): More Options, More Hope first appeared on The Bloodline with Blood Cancer United Podcast.

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Some people with chronic lymphocytic leukemia (CLL) may feel well day to day, but that doesn’t mean life stays the same. In this episode, we hear from Annette Holloway, a clinical psychologist living with CLL, as she shares how her diagnosis, treatment decisions, and side effects have shaped her daily life. Also joining us is Elise Curry, RN, OCN, a Clinical Trial Nurse Navigator at Blood Cancer United’s Clinical Trial Support Center, who helps break down treatment options, side effects, and the importance of communication with your care team.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Chronic lymphocytic leukemia (CLL)
  • Clinical Trial Support Center
  • Minimal/measurable residual disease (MRD)
  • Patti Robinson Kaufmann First Connection ® program
  • Online Chat
  • Patient Community
  • Support groups
  • Caregiver support
  • Lessons in Blood Cancer Video: CLL
  • Shared Decision Making in Chronic Leukemias interactive program
  • CLL Society
  • Patient Power

Additional Blood Cancer United Support Resources:

  • Information Specialists
  • Financial support
  • Free Nutrition Consultations
  • Free telephone/web patient programs
  • Free booklets
  • Caregiver Workbook
  • Young Adult Resources
  • Survivorship Workbook
  • Advocacy and Public Policy
  • Mental Health Resources

Episode supported by AbbVie Inc.; BeOne Medicines; and Genentech, A Member of the Roche Group.

The post Chronic Lymphocytic Leukemia (CLL): Managing Treatment and Finding Balance first appeared on The Bloodline with Blood Cancer United Podcast.

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Rebecca Olin, MD, MSCEAcute myeloid leukemia (AML) is a complex diagnosis, and it can be difficult to know what to expect in those early conversations after diagnosis. In this episode, we speak with Dr. Rebecca Olin from the University of California, San Francisco (UCSF), who helps explain what AML is and how care is approached today.

Dr. Olin walks us through how doctors evaluate AML, what factors influence treatment decisions, and how therapies – including targeted treatments, stem cell transplant, and clinical trials – are helping improve outcomes and quality of life. We also discuss the importance of supportive care and ongoing research, offering listeners a clearer picture of how AML is treated now and where progress continues to be made.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Acute myeloid leukemia
  • Allogeneic stem cell transplantation
  • Clinical Trial Support Center
  • Beat AML® Master Clinical Trial
  • Beat AML® press release – January 2026

Additional Blood Cancer United Support Resources:

  • Information Specialists
  • Financial support
  • Online Chat
  • Free Nutrition Consultations
  • Free telephone/web patient programs
  • Free booklets
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Young Adult Resources
  • Survivorship Workbook
  • Advocacy and Public Policy
  • Patient Community
  • Mental Health Resources

Episode supported by Astellas Pharma US Inc.; Daiichi Sankyo Inc.; Debiopharm; Genentech, A Member of the Roche Group; and Kura Oncology, Inc.

The post Acute Myeloid Leukemia (AML): New Approaches For A Complex Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

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Chris Pagliarulo
A cancer diagnosis in your 20s or 30s can raise questions most people never expect to face so early in life.

In this episode, we speak with Chris Pagliarulo, who was diagnosed with Hodgkin lymphoma at the age of 29, about the medical, emotional, and practical realities of cancer during early adulthood. We explore issues that are especially relevant for adolescent and young adult (AYA) patients, including delayed diagnosis, fertility preservation, treatment side effects, career disruption, relationships, and finding connection with others who understand. While this conversation highlights experiences unique to AYAs, patients and caregivers of all ages may hear pieces of their own experience reflected in what Chris shares.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.

Mentioned on this episode:

  • Young Adult Resources
  • Hodgkin lymphoma
  • Fertility and family planning resources
  • Patti Robinson Kauffman First Connection®
  • Light The Night

Additional Blood Cancer United Support Resources:

  • Information Specialists
  • Financial support
  • Online Chat
  • Free Nutrition Consultations
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Advocacy and Public Policy
  • Patient Community
  • Mental Health Resources

Episode supported by Merck & Co., Inc.

The post A Young Adult Story: Cancer, Connection, and Life After Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

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Marlise Luskin, MDWith so many new advances in acute lymphoblastic leukemia (ALL), understanding today’s treatment landscape can give patients a clearer, more hopeful outlook.

In this episode, we speak with Marlise Luskin, MD of the Dana-Farber Cancer Institute, about what adults should know when facing a diagnosis of acute lymphoblastic leukemia. Dr. Luskin helps listeners understand how ALL develops, how subtypes are identified, and why genetics play an important role in guiding treatment. She discusses current therapies including chemotherapy, targeted agents and immunotherapies including CAR T-cell therapy, as well as how care teams monitor progress and manage side effects. While ALL is a complex disease, patients and caregivers will hear clear explanations, practical information, and meaningful reasons to feel hopeful about the advances shaping ALL care today.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Acute lymphoblastic leukemia (ALL)
  • Minimal/measurable residual disease (MRD) fact sheet
  • Allogeneic stem cell transplantation
  • Clinical Trial Support Center
  • ALL Children and Teens booklet

Additional Blood Cancer United Support Resources:

  • Information Specialists
  • Financial support
  • Online Chat
  • Free Nutrition Consultations
  • Free telephone/web patient programs
  • Free booklets
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Young Adult Resources
  • Survivorship Workbook
  • Advocacy and Public Policy
  • Patient Community
  • Mental Health Resources

Episode supported by Syndax Pharmaceuticals Inc.

The post Acute Lymphoblastic Leukemia (ALL): The New Tools Shaping Tomorrow first appeared on The Bloodline with Blood Cancer United Podcast.

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Andrew Yee, MDMultiple myeloma can feel unfamiliar and overwhelming at first, but today’s advances tell a much brighter story.

In this episode, Dr. Andrew Yee of Massachusetts General Hospital explains what myeloma is, how it’s diagnosed, and why new treatment options, from four-drug regimens to CAR T-cell therapy and bispecific antibodies, are transforming patient outcomes. With enthusiasm and relatable analogies, he highlights how patients may progress from periods of significant challenges to reaching a level of stability and well‑being that allows them to live fully. This conversation offers clarity, confidence, and real optimism for anyone navigating myeloma.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Multiple myeloma
  • Amyloidosis
  • Autologous stem cell transplantation
  • CAR T-cell therapy
  • Immunotherapy fact sheet
  • Clinical Trial Support Center

Additional Blood Cancer United Support Resources:

  • Information Specialists
  • Financial support
  • Online Chat
  • Free Nutrition Consultations
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Advocacy and Public Policy
  • Patient Community
  • Mental Health Resources

Episode supported by AbbVie Inc.; Bristol Myers Squibb; Genentech, A Member of the Roche Group; GSK plc.; Johnson & Johnson.

The post Facing Multiple Myeloma: A Guide to Choices, Care, and Confidence first appeared on The Bloodline with Blood Cancer United Podcast.

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CAR T‑cell therapy is redefining what personalized cancer treatment can look like, offering real promise for patients and families.

In this episode, we speak with Dr. Richard Maziarz and CAR T Nurse Coordinator Bashi Ratterree of Oregon Health & Science University (OHSU). Together, they explain how CAR T‑cell therapy works, who may be eligible, what patients can expect during treatment and recovery, and the promising advancements shaping the future of this innovative therapy.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • CAR T-cell therapy
  • Clinical Trial Support Center
  • CAR T-Cell Therapy: A Path of Hope and Healing Video Series
  • Bloodline Breakthroughs: innovations and inspiration video podcast: CAR T-cell Therapy
  • Hematology Horizons vlog: CAR T-Cell Therapy and the Patient Experience
  • CAR T-Cell Therapy: Side Effects video

Additional Blood Cancer United Support Resources:

  • Information Specialists
  • Financial support
  • Online Chat
  • Free Nutrition Consultations
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Advocacy and Public Policy
  • Patient Community
  • Mental Health Resources

Episode supported by Bristol Myers Squibb; Johnson & Johnson & Legend Biotech; Kite, a Gilead Company; Novartis Pharmaceuticals Corporation.

The post Inside CAR T‑Cell Therapy: How Innovation Is Changing Lives first appeared on The Bloodline with Blood Cancer United Podcast.

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Stefan Barta, MD, MSCutaneous T‑cell lymphoma (CTCL) is a rare condition that often raises important questions for patients and families.

In this episode, we sit down with Dr. Stefan Barta, of the University of Pennsylvania, to bring clarity to what CTCL is, how it’s diagnosed, and what patients can expect from staging and treatment. Dr. Barta breaks down the differences between CTCL subtypes, explains why diagnosing someone can take time, and shares the most up-to-date therapies, including skin directed treatments, immunotherapies, and emerging clinical trial options. Most importantly, he offers reassurance for those newly diagnosed: “The future is absolutely bright… there is a lot of hope for our patients with CTCL.”

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Cutaneous T-cell lymphoma
  • Cutaneous Lymphoma Foundation
  • Clinical Trial Support Center

Additional Blood Cancer United Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Financial support
  • Online Chat
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Advocacy and Public Policy
  • Patient Community
  • Mental Health Resources

Episode supported by Kyowa Kirin, Inc. and Cutaneous Lymphoma Foundation.

The post Cutaneous T-Cell Lymphoma (CTCL): Illuminating a Brighter Path Forward first appeared on The Bloodline with Blood Cancer United Podcast.

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Mikkael A. Sekeres, MD, MSCurious about what’s new in the world of myelodysplastic syndromes (MDS)? We’re bringing you the latest insights straight from one of the field’s leading experts.

In this episode, we speak with Dr. Mikkael Sekeres, of the Sylvester Comprehensive Cancer Center at University of Miami Health. Recorded onsite at the 2025 ASH (American Society of Hematology) Annual Meeting and Exposition, this conversation explores what MDS is, how it’s treated today, and what researchers are learning about managing side effects.

Dr. Sekeres also walks us through the most notable MDS updates presented at ASH, highlighting promising therapies and clinical trial data that may help shape future care. Whether you’re newly learning about MDS or following ongoing research, this episode offers an accessible look at where things stand and what’s on the horizon.

*This is not an official program of the ASH annual meeting

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Myelodysplastic syndromes
  • International Prognostic Scoring System for MDS
  • American Society of Hematology
  • Highlights from ASH vlog
  • Blood cancer research 2026: Meeting patients where they want to be | blog post

Additional Blood Cancer United Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Financial support
  • Clinical Trial Support Center
  • Online Chat
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Advocacy and Public Policy
  • Patient Community
  • Mental Health Resources

Episode supported by Geron Corporation and Taiho Oncology, Inc.

The post The Bloodline Live! Myelodysplastic Syndromes (MDS) Updates in Research first appeared on The Bloodline with Blood Cancer United Podcast.

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Ann Grace MacMullan, C-IAYTIn this episode, we sit down with Ann Grace MacMullan, Director of Integrative Wellness at the International Waldenstrӧm’s Macroglobulinemia Foundation (IWMF), to explore how wellness can become a powerful part of life after a cancer diagnosis. Ann Grace shares practical, calming techniques, including breathing exercises, “Bee’s Breath”, and guided meditation, that you can do anywhere to reduce stress and feel more grounded. We’ll also dive into what integrative wellness really means, why it matters for blood cancer patients, and how concepts like the “self-care sandwich” can help you start and end your day with intention.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Integrative oncology
  • Palliative care
  • How Do I Use Breathing To Manage Anxiety?
  • IWMF wellness videos
  • Integrative Oncology podcast episode
  • International Waldenstrom’s Macroglobulinemia Foundation (IWMF)

Additional Blood Cancer United Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Financial support
  • Clinical Trial Support Center
  • Online Chat
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Advocacy and Public Policy
  • Patient Community
  • Mental Health Resources

Episode supported by Merck & Co., Inc.

The post Hope Meets Healing: Simple Practices for Stress Relief first appeared on The Bloodline with Blood Cancer United Podcast.

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Jean Koff, MD, MScNon-Hodgkin lymphoma (NHL) can sound overwhelming, but what does it really mean for patients and families? In this episode, we speak to Dr. Jean Koff of Winship Cancer Institute of Emory University, who breaks down the big picture of NHL: what it is, how it’s an umbrella term for multiple subtypes, and what today’s treatments and tomorrow’s innovations could mean for you. From understanding subtypes and staging to exploring options like watchful waiting, chemotherapy, and cutting-edge immunotherapies, we cover what matters most: knowledge, clarity, and hope.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Non-Hodgkin lymphoma
  • The Lymphoma Guide
  • Lugano staging system
  • Immunotherapy fact sheet
  • CAR T-cell therapy
  • Allogeneic stem cell transplantation
  • Clinical Trial Support Center
  • Online NHL Chat

Additional Blood Cancer United Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Advocacy and Public Policy
  • Patient Community
  • Mental Health Resources

Supported by AbbVie Inc. and Genentech, A Member of the Roche Group.

The post The Big Picture on Non-Hodgkin Lymphoma: Treatments, Trends, and Tomorrow first appeared on The Bloodline with Blood Cancer United Podcast.

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Michell Fullmer, RDN, LDN, CSP, CNSCNutrition plays a powerful role in supporting children through cancer treatment, but it’s not always easy for caregivers to know what’s best, especially when there are taste changes, appetite shifts, and treatment side effects.

In this episode, we sit down with Michell Fullmer, a registered dietitian at Nemours Children’s Hospital, to share practical insights that simplify nutrition during cancer care, reduce mealtime stress, and empower caregivers to make choices that help their child feel better every day. Join us for myth-busting, actionable tips, and reassurance from an expert who has guided countless families through this important part of care.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Free Nutrition Consultations
  • Nemours Children’s Health
  • Blood Cancer United Dare To Dream Project
  • Navigating Cancer for Children and Teens
  • HealthyWeight.gov

Additional Blood Cancer United Support Resources:

  • Information Specialists
  • Free telephone/web patient programs
  • Clinical Trial Support Center
  • Advocacy and Public Policy
  • Free booklets
  • Financial support
  • Young Adult Resources
  • Support groups
  • Survivorship Workbook
  • Community
  • Caregiver support
  • Caregiver Workbook
  • Mental Health Resources

Supported by Nemours Children’s Health.

The post Nutrition Made Simple: Helping Kids Thrive During Cancer Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

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Abdulraheem Yacoub, MDIn this episode, we are joined by Dr. Abdulraheem Yacoub of The University of Kansas Cancer Center to discuss myeloproliferative neoplasms (MPN), a group of rare blood cancers that affect how blood cells are produced. We explore what MPNs are, the most common types, and the signs and symptoms that lead to diagnosis. We also answer real questions from members of our MPN online chat community, covering topics like life expectancy, genetic mutations, and managing side effects. Finally, we discuss current treatment options, emerging therapies, and share a message of hope for patients and their loved ones.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Myeloproliferative neoplasms (MPN)
  • MPN Online Chat
  • MPN-SAF Symptom Assessment Form
  • MPN Research Consortium Tissue Bank
  • Bispecific antibody/immunotherapy fact sheet
  • CAR T-cell therapy

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Free telephone/web patient programs
  • Clinical Trial Support Center
  • Advocacy and Public Policy
  • Free booklets
  • Financial support
  • Young Adult Resources
  • Support groups
  • Survivorship Workbook
  • Community
  • Caregiver support
  • Caregiver Workbook
  • Mental Health Resources

Supported by PharmaEssentia USA Corporation.

The post After Diagnosis: Finding Hope with Myeloproliferative Neoplasms first appeared on The Bloodline with Blood Cancer United Podcast.

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When cancer enters a family, it changes everything – routines, roles, and relationships.

In this episode, we talk with Lindsey and Thomas Kealey about what it means to navigate cancer together as a care partner and patient. From unexpected diagnoses to months spent living in a hospital room, Lindsey shares how she balanced caregiving, work, and self-care while learning to hold space for difficult emotions. Together, they offer practical tips for caregivers, like creating healing spaces, communicating with care teams, and finding small moments of gratitude amid uncertainty. This heartfelt conversation is a reminder that behind every patient is someone quietly carrying so much and they deserve to be seen too.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Caregiver support
  • Caregiver Workbook

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Free telephone/web patient programs
  • Clinical Trial Support Center
  • Write it Out Journal
  • Advocacy and Public Policy
  • Free booklets
  • Financial support
  • Young Adult Resources
  • Support groups
  • Survivorship Workbook
  • Community
  • Mental Health Resources

The post Supporting the Supporter: Real Talk for Caregivers first appeared on The Bloodline with Blood Cancer United Podcast.

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John Burke, MDMRD (minimal/measurable residual disease) testing is changing the way doctors understand and monitor blood cancers. In this episode, we talk with Dr. John Burke of the Rocky Mountain Cancer Center about how MRD testing works, what the results mean to patients and their care teams, and how ongoing clinical research is helping shape more personalized and hopeful approaches to treatment.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Minimal/Measurable Residual Disease (MRD) fact sheet
  • Minimal/Measurable Residual Disease (MRD) chart
  • CAR T-cell therapy

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Free telephone/web patient programs
  • Clinical Trial Support Center
  • Advocacy and Public Policy
  • Free booklets
  • Financial support
  • Young Adult Resources
  • Support groups
  • Survivorship Workbook
  • Community
  • Caregiver support
  • Caregiver Workbook
  • Mental Health Resources

Supported by Adaptive Biotechnologies Corporation and Allogene Therapeutics.

The post MRD Explained: What it Means for You and Your Care first appeared on The Bloodline with Blood Cancer United Podcast.

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Bethany LillyChoosing the right health insurance plan can make all the difference in protecting your health and finances.

In this episode, Bethany Lilly, Executive Director of Public Policy at Blood Cancer United, discusses important updates to healthcare insurance enrollment for 2026. Bethany explains what patients and caregivers need to know about changes to the Healthcare Marketplace and Medicare, how to avoid falling into medical debt, and the resources available to help you make informed decisions.

Whether you’re reviewing employer coverage, Marketplace plans, or Medicare options, this episode will help you prepare with confidence.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Medical Debt Case Management (help choosing the right plan)
  • How Do I? Insurance video series
  • Healthcare.gov (Marketplace open enrollment)
  • Medicare.gov (Medicare open enrollment)
  • SHIP (State Health Insurance Plan)
  • Get Involved: Renewing Enhanced Premium Tax Credits
  • Advocacy and Public Policy
  • State Marketplaces
  • Open Enrollment Information

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Free telephone/web patient programs
  • Clinical Trial Support Center
  • Free booklets
  • Financial support
  • Young Adult Resources
  • Support groups
  • Survivorship Workbook
  • Community
  • Caregiver support
  • Caregiver WorkbookMental Health Resources

The post Health Coverage for 2026 and Protecting Yourself from Medical Debt first appeared on The Bloodline with Blood Cancer United Podcast.

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Anand Jillella, MDIn this episode of The Bloodline with Blood Cancer United, Elissa and guest co-host, Kristen Parker, speak with Dr. Anand Jillella, of Georgia Cancer Center. Together, they explore acute promyelocytic leukemia (APL)—a rare but highly curable subtype of acute myeloid leukemia. Dr. Jillella explains the rapid onset of APL, its hallmark signs and symptoms, and how targeted treatments have transformed outcomes for patients. Kristen, an APL survivor and Blood Cancer United Patient & Community Outreach Manager, also shares her personal perspective. Listeners will gain valuable insight into why APL stands apart as one of the most treatable forms of leukemia today.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Acute promyelocytic leukemia (APL)
  • Differentiation syndrome
  • SEER (Surveillance, Epidemiology and End Results Program) database

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Free telephone/web patient programs
  • Clinical Trial Support Center
  • Advocacy and Public Policy
  • Free booklets
  • Financial support
  • Young Adult Resources
  • Support groups
  • Survivorship Workbook
  • Community
  • Caregiver support
  • Caregiver Workbook
  • Mental Health Resources

The post Acute Promyelocytic Leukemia (APL): Advances, Hope, and Healing first appeared on The Bloodline with Blood Cancer United Podcast.

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Andy Kolb, MDEric Cooks, PhDBryon DailyIn this special episode of The Bloodline, we introduce our new name and what it means for blood cancer patients, caregivers, and the wider community. Joining us from Blood Cancer United are Dr. Andy Kolb, President & CEO; Dr. Eric Cooks, Senior Director of the Equity & Access Research Program; and Bryon Daily, myeloma survivor and Senior Manager of National Community Outreach. Together, they share why inclusivity and unity are at the heart of Blood Cancer United and how this evolution strengthens our mission to support every person impacted by blood cancer.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Blood Cancer United
  • Patient-Doctor Perspectives: Hope for Myeloma Patients
  • Community Outreach In The Field: Blood and Chess Atlanta
  • Clinical Trial Support Center
  • Advocacy and Public Policy

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Free telephone/web patient programs
  • Free booklets
  • Financial support
  • Young Adult Resources
  • Support groups
  • Survivorship Workbook
  • Community
  • Caregiver support
  • Caregiver Workbook
  • Mental Health Resources

The post We are Blood Cancer United: a new name, an unstoppable community first appeared on The Bloodline with Blood Cancer United Podcast.

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Eduardo Bruera, MDEn este episodio damos la bienvenida al Dr. Eduardo Bruera, distinguido oncólogo médico y jefe del Departamento de Medicina Paliativa, Rehabilitación y Medicina Integrativa en la División de Medicina Oncológica del MD Anderson Cancer Center.

Acompáñanos mientras el Dr. Bruera nos ayuda a comprender mejor los cuidados paliativos, definiéndolos y desmintiendo ideas erróneas comunes, al mismo tiempo que explica su verdadero propósito y cómo los pacientes y cuidadores pueden experimentar una mejor calidad de vida al combinar este cuidado de apoyo con sus terapias activas contra el cáncer.

Esto es más que una conversación, es un paso hacia una mejor atención y días más brillantes.

DESCARGAR TRANSCRIPCIÓNHAGA CLIC AQUI para participar en la encuesta del episodio.Mencionado en este episodio:

  • Manejo de efectos secundarios
  • Atención paliativa
  • Comunicación con el equipo de profesionales médicos: tratamiento
  • Comunicación con el equipo de profesionales médicos: sin necesita tratamiento adicional

Recursos adicionales de soporte de LLS:

  • Apoyo Economico
  • Apoyo entre pares
  • Alimentos y nutrición
  • Centro de Apoyo para Ensayos Clinicos
  • Especialistas en Información
  • LLS.org/Espanol
  • Manuales del cuidador
  • Manuales del sobreviviente
  • Publicaciones informativas gratuitas
  • Webcast, Videos Y Episodios de Pódcast

The post Cuidados paliativos: Más de lo que piensas first appeared on The Bloodline with Blood Cancer United Podcast.

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Dianne CallahanIn this episode, we speak with Dianne Callahan, four-time cancer survivor, best-selling author, speaker, and patient advocate. Dianne shares her experiences with non-Hodgkin lymphoma and breast cancer, stem cell transplant, and survivorship while highlighting the importance of advocacy, joy, and intention in life after diagnosis. From her work with fundraising campaigns to legislative advocacy on Capitol Hill, Dianne offers inspiring insights on resilience, hope, and the power of living intentionally.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Non-Hodgkin lymphoma
  • Stem cell transplantation
  • Allogeneic stem cell transplantation animated video
  • NMDP (formerly Be The Match)
  • Light The Night
  • Visionaries of the Year
  • Team In Training
  • Advocacy and Public Policy
  • Caregiver support
  • Caregiver Workbook
  • Mental Health Resources

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Free telephone/web patient programs
  • Free booklets
  • LLS Clinical Trial Support Center
  • Financial support
  • Young Adult Resources
  • Support groups
  • Survivorship Workbook
  • LLS Community

Supported by Genentech, A Member of the Roche Group.

The post Joy, Hope, and Healing Beyond a Cancer Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

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What happens when a sibling match becomes the key to survival?

In this heartfelt episode, we speak with Peter and Susan Feinberg, a brother-sister duo connected by both family and a lifesaving stem cell transplant. Peter, an acute lymphoblastic leukemia (ALL) survivor, shares his experience from diagnosis to remission, while Susan offers a rare and intimate view into what it means to be a stem cell donor. Together, they reflect on the emotional and logistical challenges of transplant, the determination to succeed when miles apart, and the hope it represents. Their story sheds light on the real impact of donation—and why joining the registry can mean everything to someone waiting.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Stem cell transplantation
  • Allogeneic stem cell transplantation animated video
  • Acute lymphoblastic leukemia (ALL)
  • Patient-Doctor Perspectives: Acute Lymphoblastic Leukemia (ALL)
  • NMDP (formerly Be The Match)
  • BMT Infonet
  • PubMed
  • Caregiver support
  • Caregiver Workbook

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Free telephone/web patient programs
  • Free booklets
  • LLS Clinical Trial Support Center
  • Financial support
  • Young Adult Resources
  • Support groups
  • Survivorship Workbook
  • Advocacy and Public Policy
  • LLS Community
  • Mental Health Resources

The post Siblings, Stem Cells, and Second Chances first appeared on The Bloodline with Blood Cancer United Podcast.

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Sara Jahnke, PhDSteve FisherTommy SchroederFirefighters risk their lives every day—but what happens when some dangers aren’t in the flames, but in the long-term health risks they face on the job?

In this episode, we take a closer look at cancer in the fire service, especially the increased risk of blood cancer. Joining us are Dr. Sara Jahnke, Director and Senior Scientist at the Center for Fire, Rescue & EMS Health Research; Steve Fisher, a retired firefighter and cancer survivor; and Tommy Schroeder, a Portland Fire & Rescue Lieutenant and dedicated LLS volunteer. From occupational exposures to systemic change, this conversation dives deep into the science, personal experiences, and grassroots efforts to protect those who protect us. Whether you’re in the firehouse or supporting from the outside, this is a must-listen for anyone who advocates for firefighter health and safety.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • LLS Firefighter Support Resource Page
  • Firefighter and Cancer Risk Fact Sheet
  • Firefighter Cancer Support Network (FCSN)
  • Firefighter Presumptive Health Laws
  • Science To The Station
  • DetecTogether

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Free telephone/web patient programs
  • Free booklets
  • LLS Clinical Trial Support Center
  • Financial support
  • Young Adult Resources
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Advocacy and Public Policy
  • LLS Community
  • Mental Health Resources

The post Sound the Alarm: Firefighter Health, Cancer Risk, and Moving Forward first appeared on The Bloodline with Blood Cancer United Podcast.

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Marc Hoffman, MDIn this episode, we’re joined by Dr. Marc Hoffmann from The University of Kansas Cancer Center, to explore chronic lymphocytic leukemia (CLL)—what it is, how it’s treated today, and where research is headed. Dr. Hoffmann shares insights on treatment goals, side effect management, and the importance of shared decision making. We also touch on emerging therapies—including CAR T-cell therapy and bispecifics—and end with a message of hope for those navigating life after a CLL diagnosis.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Chronic Lymphocytic Leukemia
  • Shared Decision-Making Chronic Leukemias Interactive Program
  • CAR T-cell therapy
  • Allogeneic stem cell transplantation
  • LLS Clinical Trial Support Center
  • Financial support
  • How Far Have We Come: Mantle Cell Lymphoma – Dr. Jacob Soumerai

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Advocacy and Public Policy
  • LLS Community
  • Mental Health Resources

Supported by AbbVie Inc., BeOne Medicines and Genentech, A Member of the Roche Group.

The post Partnering in Care: Chronic Lymphocytic Leukemia (CLL) first appeared on The Bloodline with Blood Cancer United Podcast.

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Julie Larson, LCSWSimantinee Roy, Matt Hunt, Alfredo Martinez, and Casey KangThe cancer experience isn’t just physical—it’s deeply emotional.

Join us for this special episode recorded onsite while filming our SHARE Project video series, exploring emotional well-being in cancer survivorship. Listen in as four blood cancer survivors share how their diagnoses impacted their mental health and what helped them cope. Key Opinion Leader, psychotherapist Julie Larson, LCSW, then joins us to discuss signs of emotional distress, the role of therapy, and how resilience and support can shape the healing journey.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • SHARE Project Video Series
  • Young Adult Resources
  • YAconnect: Young Adults Living with Blood Cancer Online Chat
  • Mental Health Resources
  • How Do I Use Breathing To Manage Anxiety

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • LLS Clinical Trial Support Center
  • Advocacy and Public Policy
  • Free booklets
  • LLS Online Chat
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • LLS Community

The post LIVE! At SHARE: Emotional Wellness in Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

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Mary WellsIn this episode, we speak with Mary Wells, who was diagnosed with primary myelofibrosis in 2018, a rare blood cancer that falls under the umbrella of myeloproliferative neoplasms (MPN). Mary walks us through her journey, from the side effects and emotional toll of cancer to finding the right treatment that allowed her to reclaim her life.

Mary shares the ups and downs of watch-and-wait periods, switching medications, and navigating side effects. Along the way, she advocated for her own care and partnered closely with her doctor, making shared decisions that ultimately led her to a treatment that works best for her.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Primary Myelofibrosis
  • Shared Decision Making podcast episode
  • MPN Online chats
  • LLS Clinical Trial Support Center
  • Advocacy and Public Policy

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • LLS Community
  • Mental Health Resources

Supported by GSK plc.

The post Choosing the Path Forward: Shared Decisions in Myelofibrosis Care first appeared on The Bloodline with Blood Cancer United Podcast.

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Lakshmi Nayak, MDPrimary Central Nervous System Lymphoma (PCNSL) is a rare form of non-Hodgkin lymphoma that affects the brain, spinal cord, or eyes. In this episode, Dr. Lakshmi Nayak of Dana-Farber Cancer Institute, helps us better understand this uncommon type of lymphoma. From early signs and symptoms to diagnosis, treatment options, and the latest clinical trials, Dr. Nayak breaks it all down in a clear and compassionate way.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Non-Hodgkin lymphoma
  • Primary central nervous system (CNS) lymphoma (non-Hodgkin lymphoma) fact sheet
  • CAR T-cell therapy
  • Stem cell transplantation
  • Autologous stem cell transplantation video
  • LLS Clinical Trial Support Center
  • Bispecific antibodies – Immunotherapy fact sheet

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook
  • LLS Community
  • Mental Health Resources

Supported by ONO Pharmaceutical

The post Breaking Down Primary CNS Lymphoma: From Rare Diagnosis to Growing Progress first appeared on The Bloodline with Blood Cancer United Podcast.

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Sara Grisales Jaramillo, LMSWEn este episodio, conocemos a Sara Grisales Jaramillo, trabajadora social, gerente de Insight y del Centro de Llamadas de CancerCare. Únase a la conversación donde Sara nos identifica las disparidades en el tratamiento de cáncer, las comunidades más afectadas y les brinda consejos a los pacientes y sus cuidadores de cómo abogar por una mejor calidad de salud.

DESCARGAR TRANSCRIPCIÓNHAGA CLIC AQUI para participar en la encuesta del episodio.Mencionado en este episodio:

  • Apoyo entre pares
  • Atención Médica Para Personas Indocumentadas
  • CancerCon® (en Inglés)
  • CancerCare (en Español)
  • Comunicación con el equipo de profesionales médicos: tratamiento
  • Comunicación con el equipo de profesionales médicos: sin necesita tratamiento adicional
  • Comunidad de LLS
  • Cafecito con LLS: Hablemos de Decisiones Compartidas con su Doctor
  • Stupid Cancer® (en Inglés)
  • Chats en línea en inglés

Recursos adicionales de soporte de LLS:

  • Apoyo Economico
  • Apoyo entre pares
  • Alimentos y nutrición
  • Centro de Apoyo para Ensayos Clinicos
  • Especialistas en Información
  • LLS.org/Espanol
  • Manuales del cuidador
  • Manuales del sobreviviente
  • Publicaciones informativas gratuitas
  • Webcast, Videos Y Episodios de Pódcast

The post Atención Médica: Su Derecho de Abogar first appeared on The Bloodline with Blood Cancer United Podcast.

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Trent Wang, MDCurious about CAR T-cell therapy? We went straight to the source for answers.

In this episode, the LLS Patient Education team visited The University of Miami Sylvester Cancer Center to meet with Dr. Trent Wang. He answered some of the most frequently asked questions from our patients and caregivers about this innovative cancer treatment – from who’s eligible and what to expect, to side effects, caregiver roles, and exciting future developments.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • CAR T-cell therapy
  • Stem cell transplantation
  • Graft-vs-host disease (GVHD)
  • LLS Clinical Trial Support Center
  • Bispecific antibodies – Immunotherapy fact sheet

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook
  • LLS Community
  • Mental Health Resources

Supported by Bristol Myers Squibb; Johnson & Johnson & Legend Biotech; and Kite, a Gilead Company.

The post CAR T-cell Therapy: Your Questions Answered first appeared on The Bloodline with Blood Cancer United Podcast.

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Eytan Stein, MDAcute myeloid leukemia (AML) is one of the most aggressive blood cancers—but science is making real progress. In this episode, Dr. Eytan Stein of Memorial Sloan Kettering breaks down what makes AML so challenging to treat, how it’s classified, and the latest therapies changing the outlook for patients. From combination therapies and menin inhibitors to future research on CAR T-cell therapy and bispecifics, this is a hopeful, expert-led look at the future of AML treatment.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Acute myeloid leukemia
  • Differentiation syndrome
  • Stem cell transplantation
  • Graft-vs-host disease (GVHD)
  • LLS Clinical Trial Support Center
  • CAR T-cell therapy
  • Bispecific antibodies – Immunotherapy fact sheet
  • Genetics and Genomics: What are They, and Why Are They Important for Cancer Patients?

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook
  • LLS Community
  • Mental Health Resources

Supported by Abbvie Inc.; Astellas Pharma US Inc.; Genentech, A Member of the Roche Group; and Kura Oncology, Inc.

The post Understanding AML: The Challenges, The Progress, The Hope first appeared on The Bloodline with Blood Cancer United Podcast.

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Join us as we speak with Ashlee and Michael Cramer, the mother-son duo behind the Michael and Mom Talk Cancer podcast. Diagnosed at 19 with a rare and aggressive type of lymphoma, Michael endured intense treatments while Ashlee became his full-time caregiver. Together, they turned their pain into purpose—creating a platform to support other young adults and caregivers navigating cancer. In this episode, they open up about diagnosis, survivorship, and the unbreakable bond that grew from their shared experience. Tune in for an inspiring conversation about finding strength, hope, and beauty in life’s hardest moments.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Young Adult Resources
  • Non-Hodgkin lymphoma booklet
  • Hepatosplenic T-cell lymphoma
  • Stem cell transplantation
  • Graft-vs-host disease (GVHD)
  • Michael and Mom Talk Cancer podcast
  • CancerCon®
  • CureFest®
  • CancerBuddy®
  • Caregiver support
  • Caregiver Workbook

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations – LLS Nutrition Education Resources Center (NESC)
  • LLS Clinical Trial Support Center
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Online chats
  • Support groups
  • Advocacy and Public Policy
  • Survivorship Workbook
  • LLS Community
  • Mental Health Resources

The post Unbreakable: A Mother & Son’s Fight Against Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

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When it comes to cancer and nutrition, there’s a lot of misinformation out there. Can sugar fuel cancer? Should you cut out carbs? In this episode, we’re busting some of the biggest myths about cancer nutrition and breaking down what really matters when it comes to fueling your body during treatment and beyond.

Join us as we chat with LLS Registered Dietitians, Margaret Martin and Heather Knutson, about evidence-based nutrition strategies that can help support energy levels, manage side effects, and promote overall well-being. Plus, we’ll share how you can access free, personalized nutrition support through The Leukemia & Lymphoma Society’s Nutrition Education Services Center (NESC).

Get ready to separate fact from fiction and take the guesswork out of eating well during cancer!

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

Free Nutrition Consultations – LLS Nutrition Education Services Center (NESC)

Additional LLS Support Resources:

  • Information Specialists
  • LLS Clinical Trial Support Center
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook
  • LLS Community
  • Mental Health Resources

Supported by Johnson & Johnson.

The post Cancer Nutrition: Myth Busters Edition first appeared on The Bloodline with Blood Cancer United Podcast.

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Cesar Rodriguez, MDIn this episode, we sit down with Dr. Cesar Rodriguez of Mount Sinai Hospital in New York, NY to discuss the evolving landscape of myeloma treatment. Groundbreaking innovations are bringing new hope to patients and caregivers. Dr. Rodriguez breaks down the latest advancements in immunotherapy, including CAR T-cell therapy and bispecific antibodies. Hear how researchers and physicians are working to make myeloma into a manageable, long-term disease, while ultimately searching for a cure.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Myeloma
  • Monoclonal Gammopathy of Undetermined Significance (MGUS) and Related Conditions
  • Amyloidosis
  • Revised International Staging System (R-ISS)
  • LLS Clinical Trial Support Center
  • Autologous stem cell transplantation
  • Autologous stem cell transplant animated video
  • CAR T-cell therapy
  • Bispecific antibodies – Immunotherapy fact sheet

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook
  • LLS Community
  • Mental Health Resources

Supported by Abbvie Inc.; Genentech, A Member of the Roche Group; and Johnson & Johnson.

The post Hope in Myeloma: The Road to Long-Term Survival first appeared on The Bloodline with Blood Cancer United Podcast.

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Francine Foss, MDA Cutaneous T-cell Lymphoma (CTCL) diagnosis can raise many questions, from understanding symptoms to exploring treatment options. In this episode, we talk to Dr. Francine Foss of Yale University to break down what CTCL is, how to manage side effects, and the latest advancements in treatment—including promising immunotherapies like CAR T-cell therapy and bispecific antibodies. We also discuss the critical role of clinical trials in shaping the future of CTCL care.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Cutaneous T-cell Lymphoma Fact Sheet
  • Recent LLS T-cell lymphoma webcast
  • LLS Clinical Trial Support Center
  • ClinicalTrials.gov
  • Stem cell transplantation
  • CAR T-cell therapy
  • Bispecific antibodies – Immunotherapy fact sheet

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook
  • LLS Community
  • Mental Health Resources

Supported by Kyowa Kirin, Inc.

The post Cutaneous T-Cell Lymphoma (CTCL): From Diagnosis to Innovation first appeared on The Bloodline with Blood Cancer United Podcast.

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Bilal Abid, MDIn this episode, we sit down with Dr. Bilal Abid from University of Texas Health Science Center in Houston to discuss how healthcare disparities have an effect on cancer care — especially when it comes to cutting-edge treatments such as stem cell transplantations and CAR T-cell therapy. We discuss how race, socioeconomic status, education, and geographic location can determine a patient’s access to cancer care. With travel, insurance, and systemic barriers in the mix, we explore what patients can do to navigate these challenges, and how treatment centers and policymakers are contributing to ensure equitable access to care for all patients.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Bloodline Breakthroughs: Innovations & Inspiration video podcast
  • American Society of Transplantation
  • ACCESS Initiative
  • NMDP (formerly Be The Match)
  • LLS Clinical Trial Support Center
  • Stem cell transplantation
  • CAR T-cell therapy
  • Ronald McDonald House Charities
  • American Society of Hematology
  • Bispecific antibodies – Immunotherapy fact sheet
  • CIBMTR Analysis

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook
  • LLS Community
  • Mental Health Resources

Supported by Genentech, A Member of the Roche Group.

The post Impact of Disparity: Navigating Treatment Equality in Cancer Care first appeared on The Bloodline with Blood Cancer United Podcast.

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Alison Loren, MDA stem cell transplant for blood cancer is just the beginning – what may come next for the patient can be a complex journey. In this episode, Dr. Alison Loren of the University of Pennsylvania discusses graft-vs-host disease (GVHD), a possible complication of transplantation – exploring the latest advancements in treatment and how patients and caregivers can navigate the challenges ahead.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Graft-vs-host disease
  • Stem cell transplantation
  • Stem cell transplantation booklet
  • Allogeneic stem cell transplant video
  • Autologous stem cell transplant video
  • Clinical Trial Support Center
  • NMDP (formerly Be The Match)
  • Autologous GVHD Syndrome

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook
  • LLS Community
  • Mental Health Resources

The post Beyond the Transplant: Navigating Graft-vs-Host Disease (GVHD) first appeared on The Bloodline with Blood Cancer United Podcast.

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William Shomali, MDResearch continues to accelerate for myelodysplastic syndromes (MDS), giving hope to patients and their loved ones. In this episode, Dr. William Shomali of Stanford University dives into cutting-edge treatments for both low and high-risk MDS. Learn about the innovative therapies that are enhancing quality of life and explore the promising strides towards curative treatments. Don’t miss this inspiring conversation filled with valuable insights and hope for a brighter future.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Myelodysplastic syndromes (MDS)
  • Acute myeloid leukemia (AML)
  • IPSS-Molecular (IPSS-M) risk stratification
  • Bone marrow transplantation
  • Iron chelation
  • CAR T-cell Therapy
  • Bispecific Antibodies
  • Clinical Trial Support Center

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook
  • LLS Community
  • Mental Health Resources

Support for this episode provided by Geron Corporation and Taiho Oncology, Inc.

The post There’s Always Hope: Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.

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Mateo Mejia Saldarriaga, MDEn este episodio conocemos al Dr. Mateo Mejia Saldarriaga de Weill Cornell Medicine, hospital NewYork-Presbyterian. Únase para aprender cómo los avances científicos han transformado el tratamiento de mieloma dándole lugar a mejores resultados y pronósticos para pacientes.

DESCARGAR TRANSCRIPCIÓNHAGA CLIC AQUI para participar en la encuesta del episodio.Mencionado en este episodio:

  • Mieloma
  • Ensayos clínicos
  • Inmunoterapia
  • Terapia de células T con receptor de antígeno quimérico (CAR-T)
  • Administración de Alimentos y Medicamentos

Recursos adicionales de soporte de LLS:

  • Apoyo Economico
  • Apoyo entre pares
  • Alimentos y nutrición
  • Atención Médica Para Personas Indocumentadas
  • Centro de Apoyo para Ensayos Clinicos
  • Especialistas en Información
  • LLS.org/Espanol
  • Manuales del cuidador
  • Manuales del sobreviviente
  • Programa de Administracion de Casos de Deuda Medica
  • Publicaciones informativas gratuitas
  • Webcast, Videos Y Episodios de Pódcast

The post Nuevos Avances Para Mieloma Múltiple first appeared on The Bloodline with Blood Cancer United Podcast.

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Mousa GhannamJoin us as we speak to Mousa Ghannam, who was diagnosed with chronic myeloid leukemia (CML) at the age of 24. He shares his ups and downs over the past 20 years and how he has persevered to become the happy and healthy husband and father he is now.

Don’t miss this inspiring episode of a blood cancer survivor who chooses to bet on life and not cash in his chips.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Chronic myeloid leukemia
  • Patient-Doctor Perspectives: Groundbreaking Research in CML podcast episode
  • Shared Decision Making In Chronic Leukemias
  • CML Online Chat

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook
  • LLS Community
  • Mental Health Resources

The post Not Cashing In My Chips: Living with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

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Yasmin Karimi, MDDiffuse large B-cell lymphoma is the most common subtype of non-Hodgkin lymphoma. Tune in as we chat with Dr. Yasmin Karimi from the University of Michigan about the latest breakthroughs in treatment, including combination therapies, CAR T-cell therapy and bispecific antibodies. Discover how these innovations are offering new hope and pathways to cures for patients.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Diffuse large B-cell lymphoma
  • CAR T-cell Therapy
  • Bispecific Antibodies
  • Diffuse Large B-Cell Lymphoma: Effective Practices for Meaningful Care Conversations in a Changing Landscape
  • You and Your Doctor: Actively Participating in Your Care: A Toolkit For Those Living With Or Caring For Someone With Diffuse Large B-Cell Lymphoma (DLBCL)

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook
  • LLS Community
  • Mental Health Resources

Support for this episode provided by Genmab US, Inc.

The post Emerging Therapies and Hope: Diffuse Large B-cell Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

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Rashad Hayes, LMSWJoin us for a powerful message of hope and perseverance after a cancer diagnosis. In this episode, Rashad Hayes shares his experience of being diagnosed with follicular lymphoma at 22 years old and how it motivated him to reevaluate his mindset and push forward. Now a social worker and motivational speaker, Rashad introduces his C.A.K.E. methodology, a unique approach to embracing life’s challenges.

Don’t miss out on this uplifting episode of resilience and adaptation in the face of cancer.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Follicular lymphoma
  • Rashad Hayes Speaks
  • Mental Health Resources

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook
  • LLS Community

The post Don’t Burn Your CAKE: Embracing Life’s Challenges first appeared on The Bloodline with Blood Cancer United Podcast.

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Sara Grisales Jaramillo, LMSWNavigating the maze of cancer care can be overwhelming.

Join us as Sara Grisales Jaramillo, LMSW, of CancerCare® discusses the challenges patients face in accessing affordable treatment and strategies to improve cancer outcomes.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • CancerCare
  • Navajo Nation: The First Cancer Center on a Reservation podcast episode
  • Cafecito con LLS: Hablemos de los Ensayos Clínicos
  • (Coffee with LLS: Let’s talk about clinical trials – English subtitled)
  • Survivorship Workbook
  • LLS Community

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy

Support for this episode is provided by Genentech, a member of the Roche Group.

The post Overcoming Barriers: Navigating Cancer Care first appeared on The Bloodline with Blood Cancer United Podcast.

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Ambreen Maan, MSW, LSWMegan Gilman, MDPeter Drahms, RN, BSN, C.
Robert Bennett, PhD, CPNP-ACPlease join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®.

A diagnosis of cancer can present many challenges when it comes to relationships with others and the relationship you have with yourself. In this episode, we speak with experts about rediscovering yourself after cancer, exploring mental health treatment, and cancer “ghosting”.

Be sure to tune into our prior LIVE! At CancerCon episode, where we interviewed young adult patients and survivors to hear their thoughts on transitioning from their oncologist to a primary care provider.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Stupid Cancer®
  • CancerCon® for adolescents and young adults
  • Seven Stages of Grief
  • Psychiatric Oncology
  • Onco-psychology: Helping people manage cancer-related distress
  • Mental Health Resources
  • Follow up care and survivorship
  • Survivorship Workbook
  • Beyond Treatment fact sheet

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Online chats
  • LLS Community
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy

Support for this episode is provided by Genentech, a member of the Roche Group.

The post LIVE! At CancerCon: Ghosts, Growth and Guidance first appeared on The Bloodline with Blood Cancer United Podcast.

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Brian ConnellThere are new Medicare changes starting in January 2025 that will benefit cancer patients. LLS Vice President of Federal Affairs, Brian Connell, joins us again on The Bloodline to inform us about these new changes and how they will impact Medicare patients.

In this episode, you will learn about the key changes for Part D, the prescription drug plan for Medicare, as well as the drug plan for Medicare Advantage. One of these new changes requires action on the part of the Medicare enrollee, so be sure to tune in to learn more about how you can benefit.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Medicare Change Information
  • Medicare.gov
  • SHIP counselors
  • Be Informed: Beneficial Medicare Changes podcast episode
  • Inflation Reduction Act and Medicare
  • Information Specialists
  • Advocacy and Public Policy
  • Financial support

Additional LLS Support Resources:

  • Free Nutrition Consultations
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Online chats
  • LLS Community
  • Support groups
  • Caregiver support
  • Caregiver Workbook

The post Medicare Updates: What You Need to Know for 2025 first appeared on The Bloodline with Blood Cancer United Podcast.

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Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®.

Following a cancer diagnosis and treatment, oncologists often become the default primary care for patients. Transitioning away from the oncologist to a primary care provider for general healthcare may be challenging at times for patients but may have tremendous benefits. In this episode, we ask young adults with cancer about their experiences transitioning to primary care during or after treatment.

Be sure to stay tuned for the next episode from CancerCon, where we will be hearing from experts who presented on cancer “ghosting”, rediscovering yourself after cancer and mental health.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Stupid Cancer®
  • CancerCon® for adolescents and young adults
  • Follow up care and survivorship
  • Survivorship Workbook
  • Beyond Treatment fact sheet
  • Stem cell transplantation

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Online chats
  • LLS Community
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy

Support for this episode is provided by Genentech, a member of the Roche Group.

The post LIVE! At CancerCon: Transitioning to Primary Care first appeared on The Bloodline with LLS.

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Mayur Narkhede, MDLiving with chronic lymphocytic leukemia (CLL) can be a challenging journey for both patients and caregivers.

However, there is a beacon of hope. Tune in to our latest episode, where we speak to Dr. Mayur Narkhede of the University of Alabama about groundbreaking research and innovative treatments for CLL. Discover the potential of CAR T-cell therapy, bispecific antibodies and other cutting-edge options that bring the promise of new hope and possibilities for those affected by CLL. Don’t miss this inspiring and informative discussion!

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Chronic lymphocytic leukemia (CLL)
  • CAR T-cell Therapy
  • Bispecific Antibodies – Immunotherapy Fact Sheet
  • Stem cell transplantation
  • Graft-vs-host disease
  • Copay Assistance for CLL patients

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • LLS Community
  • Clinical Trial Support Center
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook

Support for this episode is provided by Genentech, Inc.

The post Hope on the Horizon: Chronic Lymphocytic Leukemia first appeared on The Bloodline with LLS.

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Chronic myelomonocytic leukemia (CMML) has been a challenging disease to tackle, historically treated with therapies meant for other conditions. But there’s a new wave of hope!

Join us as Dr. Eric Padron of Moffit Cancer Center and Dr. Lee Greenberger of The Leukemia & Lymphoma Society unveil the groundbreaking new CMML Initiative, fueled by recent funding aimed at revolutionizing treatment. Discover how this initiative is paving the way for individualized therapies that promise to enhance the quality of life for CMML patients and bring us closer to a cure.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Chronic myelomonocytic leukemia
  • CMML classification system
  • National Institutes of Health (NIH)
  • National Cancer Institute (NCI)
  • CMML Special Initiative
  • Stem cell transplantation
  • Graft-vs-host disease
  • Clinical Trial Support Center
  • Mike & Sofia Segal Foundation
  • Treating Rare Disease with Compassion: Chronic Myelomonocytic Leukemia (CMML) podcast episode

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • LLS Community
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook
  • Treating Rare Disease with Compassion: Chronic Myelomonocytic Leukemia (CMML) podcast episode

Support for this episode is provided by Taiho Oncology, Inc.

The post Advancing the Science: Chronic Myelomonocytic Leukemia (CMML) first appeared on The Bloodline with LLS.

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David Bond, MDThe treatment landscape for non-Hodgkin lymphoma has significantly evolved over the past few decades. With groundbreaking advancements in CAR T-cell therapy and bispecific antibodies, researchers are making strides toward curative treatments and enhancing patients’ quality of life.

In this episode, we speak with Dr. David Bond from The Ohio State University about the latest developments in treating both aggressive and slow-growing non-Hodgkin lymphomas. He discusses innovative, newly approved therapies for patients, as well as how improvements in supportive care better manage the physical and emotional side effects of treatment.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Non-Hodgkin lymphoma
  • CAR T-cell Therapy
  • Bispecific Antibodies – Immunotherapy Fact Sheet
  • Mental Health Support
  • Patti Robinson Kaufmann First Connection Program®

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • LLS Community
  • Clinical Trial Support Center
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Advocacy and Public Policy
  • Survivorship Workbook

Support for this episode is provided by Genentech, Inc.

The post Innovative Therapies: Transforming Non-Hodgkin Lymphoma Care first appeared on The Bloodline with LLS.

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Shernan Holtan, MDPaul RothweilerJoe GreyExercise, or simply moving the body, can be an important part of cancer recovery, both physically and emotionally. In this episode, Dr. Shernan Holtan of Roswell Park Comprehensive Cancer Center and blood cancer survivors, Paul Rothweiler and Joe Grey, share about a clinical trial they developed to introduce a personalized strength training program to patients and caregivers.

Dr. Holtan highlights the benefits of strength training for all patients, while Paul and Joe share how exercise has aided their physical and emotional recovery during and after their treatments. For patients and survivors who may be fearful or nervous about starting an exercise program, this episode is for you!

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Mental Health
  • Let’s Talk About Stem Cell Transplantation: Benefits and Side Effects podcast episode
  • Quality-of-Life: Managing Cancer-Related Fatigue podcast episode
  • Powerful Benefits – article on clinical trial
  • Survivorship Resources

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • LLS Community
  • Clinical Trial Support Center
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Patti Robinson Kaufmann First Connection Program®
  • Advocacy and Public Policy
  • Survivorship Workbook

Support for this episode is provided by Genentech, Inc.

The post Exercise and Cancer: Celebration That You CAN first appeared on The Bloodline with LLS.

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Alissa Huston, MDJulie Larson, LCSWShirley D’Sa, MD, FRCP, FRCPathFor patients with chronic blood cancers, such as Waldenström Macroglobulinemia (WM), quality of life is a main priority. Physical and emotional side effects of the disease or treatment may present several challenges for patients and caregivers.

In this episode, we were onsite at the International Waldenström‘s Macroglobulinemia Foundation’s 2024 IWMF Educational Forum in Renton, WA. Elissa met with experts who discussed how integrative oncology, wellness, mental health, and peripheral neuropathy affects WM patients and their caregivers.

While this episode focuses on WM, the topics discussed are relevant to all types of cancer. We encourage you to listen and learn!

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Waldenström Macroglobulinemia Fact Sheet
  • International Waldenström ‘s Macroglobulinemia Foundation (IWMF)
  • Integrative Medicine and Complimentary Therapies Fact Sheet
  • Mental Health
  • Peripheral Neuropathy
  • American Society of Clinical Oncology (ASCO)
  • Society for Integrative Oncology (SIO)
  • Nation Comprehensive Cancer Network (NCCN)
  • Side effect management

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • LLS Community
  • Clinical Trial Support Center
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Patti Robinson Kaufmann First Connection Program®
  • Advocacy and Public Policy
  • Survivorship Workbook

The post LIVE! At IWMF: Living with Waldenström Macroglobulinemia first appeared on The Bloodline with LLS.

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Marco Davila, MDExplore the cutting-edge of oncology as we delve into the revolutionary world of CAR T-cell therapy, a more recent medical advancement in the fight against blood cancer.

Join our conversation with Dr. Marco Davila of Roswell Park Comprehensive Cancer Center in Buffalo, NY, as he highlights the significant impact CAR T-cell therapy has made on treating various blood cancers. Dr. Davila discusses the current uses of this therapy and gives us a look at the ongoing clinical trials that are broadening the horizons of this innovative treatment.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • CAR T-cell Therapy
  • CAR T-cell educational video
  • Stem Cell Transplantation
  • Graft-vs-host disease
  • Side effect management
  • National Cancer Institute

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Online chats
  • LLS Community
  • Clinical Trial Support Center
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Patti Robinson Kaufmann First Connection Program®
  • Advocacy and Public Policy
  • Survivorship Workbook

Support for this episode provided by Bristol Myers Squibb; Johnson & Johnson & Legend Biotech; Kite, a Gilead Company; and Novartis Pharmaceuticals Corp.

The post Cellular Revolution: CAR T-cell Therapy first appeared on The Bloodline with LLS.

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In this episode, we speak with Dr. Matthew Matasar of Rutgers Cancer Institute, and Elizabeth Stone, who was diagnosed with Hodgkin lymphoma in 2012.

Dr. Matasar discusses the current and emerging treatments for Hodgkin lymphoma. Elizabeth shares her story of resilience as a refractory patient throughout multiple treatments, and how she has navigated a life of hardships, joy, love and friendship while in a highly immunocompromised state.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Hodgkin Lymphoma
  • Stem Cell Transplantation
  • Stem Cell Transplantation Animated Videos
  • CancerCon by Stupid Cancer®
  • LLS COVID Vaccine Study
  • Side effect management
  • Young Adult Resources
  • Online chats
  • LLS Community
  • Clinical Trial Support Center
  • Support groups

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Caregiver support
  • Caregiver Workbook
  • Patti Robinson Kaufmann First Connection Program®
  • Advocacy and Public Policy
  • Survivorship Workbook

Support for this episode provided by Affimed Inc.

The post Patient-Doctor Perspectives: Resilience in Relapsed/Refractory Hodgkin Lymphoma first appeared on The Bloodline with LLS.

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Ricardo Lopez, Dietista Oncológico MSHA, RD, CSO, LDNUnase a nosotros en nuestra conversación con Ricardo Lopez, Dietista Oncológico. En este episodio él nos explicará la importancia de tener una nutrición adecuada antes, durante y después de un tratamiento, y nos proveerá consejos para aliviar efectos secundarios causado por el cáncer.

DESCARGAR TRANSCRIPCIÓNHAGA CLIC AQUI para participar en la encuesta del episodio.Mencionado en este episodio:

  • La American Heart Association (AHA)

Temas y recursos de LLS:

  • LLS en Español
  • Consultas personalizadad sobre de nutrición
  • Alimentos y Nutrición
  • Applicación de Salud de LLS
  • Assistencia Alimentaria Recursos Y Consejos
  • Especialistas en Información
  • Publicaciones informativas gratuitas Webcast, Vídeos, Episodios de Pódcast

The post La Nutrición y el Cáncer first appeared on The Bloodline with LLS.

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Ashlie D’AndreaEmma D’AndreaLynn Steele, LSW, OSW-CIn this episode, we speak to a myeloma patient and her teenage daughter about the impact that myeloma had on her family. Lynn Steele, a social worker and Information Specialist at LLS, then joins us to share tips and resources on how families can navigate a cancer diagnosis together.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Multiple myeloma
  • Talking to children and families about cancer
  • Parenting with cancer
  • Caregiver support
  • Caregiver Workbook
  • Online chats
  • LLS Community
  • Patti Robinson Kaufmann First Connection Program®
  • Pickles Group: Kids Supporting Kids

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Clinical Trial Support Center
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Advocacy and Public Policy
  • Survivorship Workbook
  • Support groups

Support for this episode provided by: AbbVie Inc.; Genentech, Inc. & Biogen; and Johnson & Johnson.

The post Family Ties: Navigating Multiple Myeloma Together first appeared on The Bloodline with LLS.

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Sharon Castellino, MD, MScIn this episode, Dr. Sharon Castellino, a pediatric oncologist at Children’s Healthcare of Atlanta, examines the impact of healthcare equity and barriers to care for patients and caregivers dealing with blood cancer.

Dr. Castellino sheds light on how groundbreaking treatments have transformed the landscape of cancer care, emphasizing the crucial role that LLS, patient advocates and government entities can play in ensuring accessible and quality care for all.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Clinical Trial Support Center
  • Shared decision making interactive program
  • Advocacy and Public Policy
  • American Association for Cancer Research (AACR)
  • Resources for Children and Young Adults
  • Acute lymphoblastic leukemia
  • Hodgkin lymphoma

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Online chats
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program

Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.

The post Bridging the Gaps: Striving for Accessible Cancer Care first appeared on The Bloodline with LLS.

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Teresa AltemeyerJoin us on a heartfelt journey woven by support and education, as we speak to Teresa Altemeyer, who was diagnosed with chronic lymphocytic leukemia in 2009. In this episode, Teresa shares her experience with CLL from diagnosis through long-term survivorship. On the advice of her doctor, she went out to live her life, and found herself supporting other blood cancer patients and survivors in doing the same. Despite her own physical and mental health struggles with this disease, she shares beautiful advice learned along the way.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Chronic lymphocytic leukemia
  • Mental health resources
  • Minimal/Measurable Residual Disease
  • Clinical Trial Support Center
  • Financial support
  • Finances podcast
  • Shared decision making interactive program
  • Shared decision making for CLL podcast
  • Light The Night
  • Advocacy

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Free telephone/web patient programs
  • Free booklets
  • Young Adult Resources
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Online chats
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program

Support for this episode provided by: AbbVie Inc.; BeiGene USA, Inc.; Genentech, Inc. & Biogen.

The post Live Your Life: Navigating Mental Health and Chronic Lymphocytic Leukemia (CLL) first appeared on The Bloodline with LLS.

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Elie Traer, MDKarin Rodland, PhDLee Greenberger, PhDThe fight to effectively treat and cure the complex disease of acute myeloid leukemia (AML) continues.

In this episode, we speak to Dr. Elie Traer, Dr. Karin Rodland and Dr. Lee Greenberger about an exciting new study for AML. The doctors share about a longtime collaboration between Oregon Health & Science University (OHSU) and Pacific Northwest National Laboratory (PNNL) using patient samples from LLS’s Beat AML Master Clinical Trial to further understand the proteins on the cancer cells, resulting in the development of more targeted treatments for AML patients.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Acute Myeloid Leukemia
  • Beat AML Master Clinical Trial
  • Beat AML Documentary
  • Stem Cell Transplant
  • Mapping The Proteogenomic Landscape Enables Prediction of Drug Response in Acute Myeloid Leukemia

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Online chats
  • LLS Community
  • Support groups Patti Robinson Kaufmann First Connection Program

Support for this episode provided by: Abbvie Inc. and Genentech, Inc. & Biogen.

The post Visions of Hope: Continuing to Beat AML first appeared on The Bloodline with LLS.

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Monica Fawzy Bryant, Esq.Dealing with cancer extends beyond physical health, often bringing financial challenges that can overwhelm patients and their loved ones.

In this episode, we offer a beacon of support as we speak to Monica Bryant, Esq., a cancer rights attorney and Co-founder/Chief Operating Officer of Triage Cancer. She reviews the financial hurdles that may arise during treatment and provides practical strategies to help with economic hardships. She also highlights a wealth of resources designed to aid patients, covering everything from financial grants to transportation, Social Security benefits and navigating the complex world of health insurance.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Financial support
  • Triage Cancer
  • Continuation of Health Coverage (COBRA)
  • State Health Insurance Marketplace
  • Health Insurance Appeals Guide
  • Family and Medical Leave Act (FMLA)
  • Social Security Disability (SSDI)
  • Social Security Return To Work program
  • Road to Recovery – transportation
  • Be Informed: Beneficial Medicare Changes – podcast episode
  • Inflation Reduction Act and Medicare

Additional LLS Support Resources:

  • Information Specialists
  • Free Nutrition Consultations
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Online chats
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program

Support for this episode provided by: Genentech, Inc. & Biogen.

The post You Aren’t Alone: Navigating The Financial Impact of Cancer first appeared on The Bloodline with LLS.

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Mayra Gomez Padua, PhDSer cuidador, para muchos es una muestra de compasión. Sin embargo, a medida que pasa el tiempo, muchos cuidadores se encuentran abrumados por el estrés, la carga, y la tristesa asociado con ser un cuidador de alguien dianosticado con cáncer. En muchas ocaciones los cuidadores se encuentran dejando su salud al lado.

En este episodio, la Dra. Mayra Gómez Padua, psicóloga clínica bilingüe nos explica la importancia de mantener el equilibrio entre ser cuidador y manteniendo su autocuidado. Aquí, ella ofrece herramientas y alternativas que ayudarán a los cuidadores navegar de manera efectiva su papel sin tener que sacrificar su bienestar.

DESCARGAR TRANSCRIPCIÓNHAGA CLIC AQUI para participar en la encuesta del episodio.Mentionado en este episodio:

  • Medicare en Español
  • Especialistas en Información

Recursos Addiciónales de LLS:

  • LLS en Español
  • Apoyo entre pares
  • Consultas personalizadad sobre de nutrición
  • Manuales del cuidador
  • Manuales del sobreviviente
  • Publicaciones informativas gratuitas
  • Webcast, Vídeos, Episodios de Pódcast

The post Soy cuidador de un paciente con cáncer. ¿Y ahora qué? first appeared on The Bloodline with LLS.

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Naveen Pemmaraju, MD“If you have a rare disease, it’s not rare to you.”

In this episode, Dr. Naveen Pemmaraju of MD Anderson Cancer Center in Houston, TX, sheds light on the latest treatment advancements for myelofibrosis. The pace of scientific discovery for rare diseases is moving at a fast rate, resulting in better outcomes for myelofibrosis patients.

*This episode was recorded on Rare Disease Day, February 29, 2024

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Myelofibrosis
  • Myeloproliferative Neoplasms (MPNs)
  • Acute Myeloid Leukemia
  • CAR T-cell Therapy
  • Immunotherapy Fact Sheet (Bispecific Antibodies)
  • Stem Cell Transplant
  • TRANSFORM-1 trial
  • American Society of Hematology (ASH)

Additional LLS Support Resources:

  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Online chats
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program
  • Free Nutrition Consultations

Support for this episode provided by: GSK plc.

The post Hope for a Rare Disease: Myelofibrosis first appeared on The Bloodline with LLS.

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Nishi Shah, MD, MBBSRemarkable progress has been made in the treatment of myeloma over the past decade, giving patients and families much hope for the future. In this episode, we speak to Dr. Nishi Shah of Montefiore Einstein Comprehensive Cancer Center in New York City. While the wide variety of therapies available to patients are discussed, this episode also focuses on the newest, cutting-edge therapies for myeloma, such as CAR T-cell therapy and bispecific antibodies.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Multiple Myeloma
  • CAR T-cell Therapy
  • Bispecific Antibodies – Immunotherapy Booklet
  • Stem Cell Transplant
  • Multiple Myeloma and Agent Orange

Additional LLS Support Resources:

  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Online chats
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program
  • Free Nutrition Consultations

Support for this episode provided by: AbbVie Inc.; Genentech, Inc. & Biogen; and Johnson & Johnson.**

The post How New Therapies Are Changing The Future of Myeloma first appeared on The Bloodline with LLS.

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In the episode, we explore the family of diseases called myeloproliferative neoplasms (MPNs). Dr. Anand Patel and Dr. Olatoyosi Odenike of The University of Chicago Medicine share the latest advances in treatments for MPNs, including myelofibrosis (MF), polycythemia vera (PV) and essential thrombocythemia (ET). We also highlight how treatment teams prioritize the improvement of patients’ quality of life as a key aspect of care.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Myeloproliferative Neoplasms (MPN)
  • MPN Booklet
  • Chronic Myeloid Leukemia
  • Acute Myeloid Leukemia
  • Hopeful Advancements for Chronic Myeloid Leukemia (CML) – podcast episode
  • Stem Cell Transplant
  • American Society of Hematology (ASH)

Additional LLS Support Resources:

  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Online chats
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program
  • Free Nutrition Consultations

Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

The post Living with Myeloproliferative Neoplasms (MPNs) first appeared on The Bloodline with LLS.

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Nutrition is a crucial part of cancer care. Many patients and caregivers play an active role in managing their nutrition during and after treatment. In this episode, we discuss nutrition after a cancer diagnosis with Luz Chavez and Susanne Massarani, Registered Dietitians from The University of Chicago. Learn the basics of oncology nutrition and how a good diet can help combat treatment-related weight loss and side effects. Caregivers will also benefit from tips on how to care for their loved ones when they experience appetite changes or other gastrointestinal symptoms.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • LLS Nutrition Resources and Free Consults
  • New American Plate
  • Graft-vs-host disease (GVHD)
  • CAR T-cell Therapy
  • Stem Cell Transplant

Additional LLS Support Resources:

  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Online chats
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program
  • Free Nutrition Consultations

Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

The post Bite By Bite: Supporting Cancer Patients Through Nutrition first appeared on The Bloodline with LLS.

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Caner Saygin, MDA diagnosis of cancer can cause significant emotional distress to a patient. A diagnosis of a rare leukemia can leave patients and caregivers feeling unsure and nervous about the future. In this episode, we speak to Dr. Caner Saygin of University of Chicago Medicine about hairy cell leukemia, a rare, but treatable cancer. Dr. Saygin delves into this disease, highlighting the need for an accurate diagnosis, as well as current and emerging treatments. Patients will be given hope for a good quality of life while managing this disease.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Hairy Cell Leukemia
  • Flow Cytometry and Next Generation Sequencing Tests
  • MRD (Minimal/Measurable Residual Disease)
  • Hairy Cell Leukemia Foundation

Additional LLS Support Resources:

  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Online chats
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program
  • Free Nutrition Consultations

Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

The post Exploring Hairy Cell Leukemia first appeared on The Bloodline with LLS.

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Colin Vale, MDMyelodysplastic Syndromes (MDS) is a group of diseases that have a variety of different treatments and outcomes. In this episode, we speak to Dr. Colin Vale of Emory University in Atlanta, GA, about the treatments for MDS, the potential for transforming into acute myeloid leukemia (AML), and new strategies to give patients the quality of care that they deserve.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Myelodysplastic Syndromes (MDS)
  • IMerge Phase 3 Study (Imetelstat)
  • Classification Systems
  • Germline Predisposition Article
  • Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS) | The Bloodline with LLS
  • International Prognostic Scoring System
  • Allogeneic Stem Cell Transplantation

Additional LLS Support Resources:

  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Online chats
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program
  • Free Nutrition Consultations

Support for this episode provided by: Taiho Oncology, Inc.

The post Improving Quality of Care for Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with LLS.

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Adriana Rossi, MDTesting for minimal or measurable residual disease (MRD) in blood cancer has transformed the way we look at remission and treatment planning.

In this episode, we speak to Dr. Adriana Rossi of Mt. Sinai Hospital in New York about how MRD testing is being utilized for blood cancer patients. Join us as we explore minimal/measurable residual disease (MRD) testing for blood cancer and its role in guiding treatment decisions and predicting relapse and prognosis.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Minimal/Measurable Residual Disease
  • Minimal/Measurable Residual Disease Chart
  • Tests (FISH, Flow Cytometry, Next-generation Sequencing)
  • The Revolution of Genomics: How Testing Leads to Individualized Treatment
  • Multiple Myeloma
  • Acute Lymphoblastic Leukemia

Additional LLS Support Resources:

  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • Young Adult Resources
  • Caregiver support
  • Caregiver Workbook
  • Survivorship Workbook
  • Online chats
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program
  • Free Nutrition Consultations

Support for this episode provided by: Adaptive Biotechnologies

The post Mission To Complete Remission: Utilizing MRD Testing In Blood Cancer first appeared on The Bloodline with LLS.

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Cliff Davis was only sixteen weeks away from graduating medical school when he received the shocking news that he had…

The post Continuing The Dream: An Inspiring Story of Resilience first appeared on The Bloodline with LLS.

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Have you ever wondered how doctors determine the treatment for a blood cancer patient? In this episode, we’re speaking with…

The post The Revolution of Genomics: How Testing Leads to Individualized Treatment first appeared on The Bloodline with LLS.

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Caregivers can come from many places in a patient’s life. They may be a spouse, family member, neighbor or “chosen…

The post Supporting the Patient: Caregiving Takes a Village first appeared on The Bloodline with LLS.

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Please join us for this second live episode from CancerCon® 2023, a young adult cancer conference presented by Stupid Cancer®.…

The post LIVE! At CancerCon: Coping with Cancer first appeared on The Bloodline with LLS.

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Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In…

The post LIVE! At CancerCon: The Roadmap of Survivorship first appeared on The Bloodline with LLS.

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Tune in to the latest episode of the Patient-Doctor Perspectives series, featuring an enlightening conversation with Dr. Judith Shizuru of…

The post Patient-Doctor Perspectives: Adult Acute Lymphoblastic Leukemia (ALL) first appeared on The Bloodline with LLS.

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Deborah Stephens, DOJoin us as we sit down with Dr. Deborah Stephens from the University of Utah, as we discover the latest breakthroughs in treating chronic lymphocytic leukemia (CLL). We also gain valuable insights into enhancing patient’s quality of life

In this episode, Dr. Stephens emphasizes the importance of effective communication with your healthcare team, unveiling strategies that not only optimize disease management, but also minimize the impact of side effects. Your path to empowered long-term care with CLL begins here.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Chronic lymphocytic leukemia (CLL)
  • Quality-of-Life: Managing Cancer-Related Fatigue podcast episode
  • S1925 High-risk CLL study
  • Stem Cell Transplantion
  • CAR T-cell Therapy
  • Graft-vs-host Disease (GVHD)
  • Clinical Trial Support Center

Additional LLS Support Resources:

  • Information Specialists
  • Free telephone/web patient programs
  • Free booklets
  • Financial support
  • Caregiver support
  • Young Adult Resources
  • Survivorship Workbook
  • Online chats
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program
  • Free Nutrition Consultations

Support for this episode provided by: AbbVie Inc.; BeiGene USA, Inc.; Genentech, Inc. & Biogen.

The post Empowering Lives: Advancements in Chronic Lymphocytic Leukemia appeared first on The Bloodline with LLS.

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Delve into the complex landscape of non-Hodgkin lymphoma research, where a cure is pursued amidst a backdrop of over 100…

The post Accelerating Hope for Aggressive Non-Hodgkin Lymphoma appeared first on The Bloodline with LLS.

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While chronic myelomonocytic leukemia (CMML) is a rare disease, it is not rare to the patients and loved ones who…

The post Treating Rare Disease with Compassion: Chronic Myelomonocytic Leukemia (CMML) appeared first on The Bloodline with LLS.

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When adolescents and young adults (AYA) are diagnosed with cancer, they face unique challenges that aren’t seen as frequently in other…

The post The Bloodline Live: Emphasizing the Patient Voice in Young Adult Cancer Care appeared first on The Bloodline with LLS.

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Cancer related costs can be an overwhelming burden for patients on Medicare. However, new changes in Medicare will directly impact…

The post Be Informed: Beneficial Medicare Changes appeared first on The Bloodline with LLS.

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Please join us for the latest episode of our Community Outreach In The Field series, where our field correspondents, comprised…

The post Community Outreach in The Field: Red, Bred & Led Houston appeared first on The Bloodline with LLS.

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Myeloproliferative Neoplasms (MPNS) is an umbrella term that includes myelofibrosis (MF), essential thrombocythemia (ET) and polycythemia vera (PV). In this…

The post Living A Full Life: Exploring Myeloproliferative Neoplasms (MPNs) appeared first on The Bloodline with LLS.

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Nourishing your body after a cancer diagnosis can seem like an impossible task when your mind is focused on survival.…

The post Fueling Hope: Nutrition Insights for Chronic Myeloid Leukemia (CML) appeared first on The Bloodline with LLS.

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Cancer-related fatigue can be a tremendous burden on patients and caregivers. In this episode, we speak to Dr. Mariam Nawas…

The post Quality-of-Life: Managing Cancer-Related Fatigue appeared first on The Bloodline with LLS.

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Join us as we highlight how pivots in therapy and self-advocacy were used to treat a young woman’s diagnosis of non-Hodgkin lymphoma.

In this episode, Caitlyn Householder, diagnosed with diffuse large B-cell lymphoma in 2019, shares her incredible journey after finding out that she was pregnant the day she was admitted to the hospital to treat her lymphoma. An ever-evolving plan was then set into motion to not only save Caitlyn’s life but allow for her pregnancy to continue.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Non-Hodgkin lymphoma
  • Diffuse large B cell lymphoma
  • Shared decision making podcast
  • Fertility information
  • Fertility and cancer fact sheet

Additional LLS Support Resources:

  • Information Specialists
  • Free telephone/web patient programs
  • Free booklets
  • Financial support
  • Patti Robinson Kaufmann First Connection Program
  • LLS Community
  • Young Adult Resources
  • Survivorship Workbook
  • Online chats
  • Clinical Trial Support Center
  • Caregiver support
  • Support groups
  • Free Nutrition Consultations

Support for this episode provided by: Bristol Myers Squibb, Eli Lilly and Company, Genentech, Inc. & Biogen, and Merck & Company.

The post Non-Hodgkin Lymphoma: Cancer & Pregnancy appeared first on The Bloodline with LLS.

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Tina Bhatnagar, DOMost blood cancer patients can experience side effects from their cancer diagnosis, or its treatments. In certain blood cancers, an urgent condition called tumor lysis syndrome (TLS) can develop. Dr. Tina Bhatnagar of the West Virginia University Cancer Institute joins us in this episode to explain why tumor lysis syndrome occurs and how it is treated. Although considered a medical emergency, Dr. Bhatnagar reviews how prevention and treatment can be successful in the treatment of TLS.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Tumor Lysis Syndrome
  • Acute Lymphoblastic Leukemia
  • B cell lymphomas

Additional LLS Support Resources:

  • Information Specialists
  • Free telephone/web patient programs
  • Free booklets
  • Financial support
  • Patti Robinson Kaufmann First Connection Program
  • LLS Community
  • Young Adult Resources
  • Survivorship Workbook
  • Online chats
  • Clinical Trial Support Center
  • Caregiver support
  • Support groups
  • Free Nutrition Consultations

Support for this program is provided by: Sanofi US.

The post Tumor Lysis Syndrome: What Patients Need to Know appeared first on The Bloodline with LLS.

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Steve BuechlerAs a cancer patient or caregiver, telling your story can not only be a way to update loved ones about your condition or be a comfort to current patients, it can be healing for yourself. In this episode, we speak to Steve Buechler about his treatment for acute myeloid leukemia as well as his experience through survivorship.

Steve shares how writing helped him heal from the emotional effects of cancer. As an LLS volunteer, he now facilitates writing workshops for our LLS Community and wrote an article about how language matters when speaking to patients.

Join us to hear about Steve’s “odyssey” through AML, which he describes as not something he chose, but something that taught him more about life and himself.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Acute Myeloid Leukemia
  • Stem Cell Transplant
  • Cord Blood Transplant Resources
  • Graft-Vs-Host Disease (GVHD)
  • How Steve Became Ralph
  • Language Matters: What Supporters Say is Not Always What People with Cancer Hear
  • Patti Robinson Kaufmann First Connection Program
  • LLS Community – be informed of upcoming writing workshops

Additional LLS Support Resources:

  • Information Specialists
  • Free telephone/web patient programs
  • Free booklets
  • Financial support
  • Young Adult Resources
  • Survivorship Workbook
  • Online chats
  • Clinical Trial Support Center
  • Caregiver support
  • Support groups
  • Free Nutrition Consultations

Support for this program is provided by: Bristol Myers Squibb.

The post Healing Through Writing: An Odyssey Through Acute Myeloid Leukemia (AML) appeared first on The Bloodline with LLS.

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Carlos Silva, MD and ElissaPlease join us as we speak about CAR T-cell therapy with Dr. Carlos Silva of Memorial Healthcare in Miami, Florida. In this episode, we explore the latest advances and what the future holds for CAR T-cell therapy.

This comprehensive view of CAR T-cell therapy will give blood cancer patients and their families hope. Through the utilization of targeted therapies, we can now see a future filled with better outcomes and potential cures.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • CAR T-cell Therapy
  • Cytokine release syndrome
  • Stem Cell Transplant
  • Graft-Vs-Host Disease (GVHD)
  • Clinical Trial Support Center

Additional LLS Support Resources:

  • Information Specialists
  • Free telephone/web patient programs
  • Free booklets
  • Financial support
  • Young Adult Resources
  • Survivorship Workbook
  • Online chats
  • Caregiver support
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program
  • Free Nutrition Consultations

Support for this program is provided by: Allogene Therapeutics; Bristol Myers Squibb; CRISPR Therapeutics Ltd; Janssen Oncology & Legend Biotech; Kite, A Gilead Company and Novartis Pharmaceuticals Corp.

The post Attacking the Cancer Cell: Advances in CAR T-Cell Therapy appeared first on The Bloodline with LLS.

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Join us live from Miami, FL, as we talk about healthcare disparities and equity with Dr. Erin Kobetz of Sylvester Comprehensive Cancer Center and Seth Berkowitz, Director of Patient and Community Outreach at LLS.

In this episode, we discuss how organizations like Sylvester and LLS work together to address healthcare gaps and barriers that patients may face in accessing quality and affordable cancer care.

The diverse population in South Florida has provided opportunities for researchers, cancer advocates and community health workers to implement new, innovative programs with the goal of giving every person the same access to care.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Sylvester Community Advisory Committee
  • National Cancer Institute
  • LLS Blood Cancer Conferences
  • The Paradox of Prevention – Geoffrey Rose
  • Game-changer vehicles
  • Medical Care for Undocumented People (En Español)

Additional LLS Support Resources:

  • Information Specialists
  • Caregiver support
  • Free telephone/web patient programs
  • Free booklets
  • Financial support
  • Young Adult Resources
  • Survivorship Workbook
  • Clinical Trial Support Center
  • Online chats
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program
  • Free Nutrition Consultations

Support for this program is provided by: Bristol Myers Squibb; Eli Lilly and Company; GSK and Pharmacyclics, An AbbVie Company & Janssen Biotech.

The post Chipping Away at the Iceberg: Addressing Healthcare Disparities and Equity appeared first on The Bloodline with LLS.

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Join us as we hear two different perspectives from people living with chronic myeloid leukemia (CML); Tim Sohn, a 16-year survivor and Becky Dame, a 32-year survivor. In this episode, we hear how CML treatment has changed since 1991, when Becky was diagnosed. Becky had a difficult journey through cycles of relapse, transplant, and remission, while Tim shares his experience using newer therapies. Both share their stories and how CML has impacted their lives.

Both Tim and Becky have worked to build and maintain a good quality of life and have used their experiences to help others in the cancer community and find connection.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Chronic Myeloid Leukemia (CML)
  • Tyrosine Kinase Inhibitors (TKIs)
  • Leukapheresis
  • Stem Cell Transplant
  • Donor Lymphocyte Infusion (DLI)
  • Graft-Vs-Host-Disease (GVHD)
  • Showing Up: Perspectives On Cancer Show
  • Perspectives On Cancer Book
  • PodcastNotPodcast: Tim Sohn. Leukemia and Livestreaming.
  • Information Specialists
  • Caregiver support

Additional LLS Support Resources:

  • Free telephone/web patient programs
  • Free booklets
  • Financial support
  • Young Adult Resources
  • Survivorship Workbook
  • Clinical Trial Support Center
  • Online chats
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program
  • Free Nutrition Consultations

Support for this episode providedby: Novartis Pharmaceuticals Corporation.

The post Perspectives on Quality of Life: Chronic Myeloid Leukemia (CML) appeared first on The Bloodline with LLS.

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Join us as we speak to Dr. Richard Larson and Dr. Anand Patel from University of Chicago Medicine about chronic myeloid leukemia (CML). In this episode, they discuss the latest advances in treatment for CML and what is on the horizon.

With decades of progress with targeted treatments, CML patients are now given more hope of achieving deep remission and potentially discontinuing medication. A cure for an incurable disease may now be in sight.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Chronic Myeloid Leukemia (CML)
  • Tyrosine Kinase Inhibitors (TKIs)
  • FISH test
  • Stem Cell Transplant
  • Cellular Therapies
  • Instilling Hope Through Progress: Myelodysplastic Syndromes (MDS)

Additional LLS Support Resources:

  • Information Specialists
  • Free telephone/web patient programs
  • Free booklets
  • Financial support
  • Young Adult Resources
  • Survivorship Workbook
  • Clinical Trial Support Center
  • Online chats
  • Caregiver support
  • LLS Community
  • Support groups
  • Patti Robinson Kaufmann First Connection Program
  • Free Nutrition Consultations

Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

The post Hopeful Advancements for Chronic Myeloid Leukemia (CML) appeared first on The Bloodline with LLS.

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Unase a nuestro anfitrión, Javier Macias, y nuestra invitada Susan Moscoso,BSN, RN, BMT-CN, una de las enfermeras orientadoras del Centro de Apoyo para Ensayos Clínicos de La Sociedad de Lucha contra la Leucemia y el Linfoma. Explican importancia de los ensayos clínicos, los beneficios de participar en ensayos clínicos y cómo los enfermeros orientadores ayudan a los pacientes encontrar ensayos clínicos apropiados mientras los apoyan durante el proceso.

DESCARGAR TRANSCRIPCIÓNMencionado en este episodio:

  • Apoyo Economico
  • Cafecito con LLS: Hablamos de los Ensayos Clinicos
  • Centro de Apoyo para Ensayos Clinicos (siglas CTSC)
  • Comunicandose con su medico y hablando sobre ensayos clinicos
  • Especialistas en Información (siglas IRC)

Recursos additionales de apoyo de LLS:

  • LLS.org/Espanol
  • Alimentos y nutrición
  • Aplicación de Salud de LLS
  • Apoyo Entre Pares
  • Atención Médica Para Personas Indocumentadas
  • Manuales del sobreviviente
  • Publicaciones informativas gratuitas
  • Webcast, Videos Y Episodios de Pódcast

The post En Espanol: Navegando Ensayos Clínicos appeared first on The Bloodline with LLS.

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Join us as we speak to Veronika Panagiotou, a non-Hodgkin lymphoma survivor and Alique Topalian, a two-time AML survivor. In this episode, Veronika and Alique discuss the long-term side effects they have been experiencing as a result of their chemotherapy treatments.

While their lives have been impacted by these treatments, they have been able to find joy and peace as they work to overcome these side effects. Don’t miss out on this important episode, as blood cancer patients learn to give themselves grace during challenging days in treatment and beyond.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Diffuse large b cell lymphoma (DLBCL)
  • Acute myeloid leukemia (AML)
  • LIVE! At CancerCon: A Journey Through Survivorship podcast episode
  • Armenian Bone Marrow Donor Registry
  • Cancer-related cognitive impairment
  • The Gathering Place
  • Gilda’s Club Kentuckiana (other cities available)
  • Caring for Kids and Adolescents Workbook
  • Survivorship Workbook

Additional LLS Support Resources:

  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Patti Robinson Kaufmann First Connection Program
  • Clinical Trial Support Center
  • LLS Financial Assistance Program
  • LLS Community
  • Online chats
  • Caregiver support
  • Support groups
  • Caregiver Workbook
  • Free Nutrition Consultations
  • LLS Advocacy

Support for this episode providedby: Pharmacyclics, An AbbVie Company and Janssen Biotech.

The post Give Yourself Grace: Overcoming Long-term Side Effects appeared first on The Bloodline with LLS.

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Heidi MacAlpineJoin us as we speak to Heidi MacAlpine, a chronic lymphocytic leukemia (CLL) patient and occupational therapist. In this episode, Heidi talks to us about her diagnosis of CLL and how she has utilized wellness techniques to reduce inflammation and maintain a good quality of life while on a watch and wait protocol.

This episode will help patients, caregivers and healthcare professionals understand the benefits of adding wellness practices to conventional therapies, such as yoga, mindfulness, journaling, and massage, to decrease side effects and improve the life of patients following a cancer diagnosis.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Chronic Lymphocytic Leukemia (CLL)
  • Watch and Wait (Active Monitoring) protocol
  • LLS Write It Out Journal
  • Genetic predisposition to CLL
  • National Center for Complementary and Integrative Health
  • Patient-Doctor Perspectives: Shared Decision Making podcast episode
  • Shared Decision Making in Chronic Leukemias interactive program
  • American Association for Cancer Research
  • Interleukin 8
  • Caregiver support

Additional LLS Support Resources:

  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Patti Robinson Kaufmann First Connection Program
  • Clinical Trial Support Center
  • LLS Financial Assistance Program
  • LLS Community
  • Online chats
  • Support groups
  • Caregiver Workbook
  • Free Nutrition Consultations
  • LLS Advocacy
  • Survivorship Workbook

Support for this episode providedby: BeiGene USA, Inc.; Bristol Myers Squibb; Genentech, Inc. & Biogen; Loxo Oncology at Lilly and Pharmacyclics, An AbbVie Company & Janssen Biotech.

The post Improving Quality of Life Through Wellness Practices appeared first on The Bloodline with LLS.

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Tim CooperJoin us as we speak to Tim Cooper, a multiple myeloma patient and caregiver. In this episode, Tim discusses how he was diagnosed with myeloma after sustaining a neck fracture. Unlike many patients, he was familiar with myeloma, as his mother had been diagnosed with myeloma years prior.

After multiple treatments, including chemotherapy and stem cell transplantation, Tim is doing well and enjoying life. He finds that sharing his story is therapeutic and encourages other patients to keep pushing forward and find hope after a blood cancer diagnosis.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Multiple Myeloma
  • LLS Financial Assistance Program
  • Autologous Stem Cell Transplantation
  • Beating Incurable podcast episodes
  • Caregiver support

Additional LLS Support Resources:

  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Patti Robinson Kaufmann First Connection Program
  • Clinical Trial Support Center
  • LLS Community
  • Online chats
  • Support groups
  • Caregiver Workbook
  • Free Nutrition Consultations
  • LLS Advocacy
  • Survivorship Workbook

Support for this episode providedby: Bristol Myers Squibb; GSK plc.

The post Making The Decision To Live: A Myeloma Story appeared first on The Bloodline with LLS.

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Laurie AdamiJoin us as we speak to Laurie Adami, a follicular lymphoma (non-Hodgkin lymphoma) survivor. In this episode, Laurie shares her long journey through multiple cancer treatments, which eventually led to CAR T-cell therapy and complete remission.

Hear one patient’s story of hope, as new treatments continued to come out, keeping her stable until the one that finally worked was approved for her disease. Her story of resilience and determination to stay alive for her young son is the inspiration that so many blood cancer patients need.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • Follicular Lymphoma
  • CAR T-cell Therapy
  • Sjorgren’s Syndrome
  • Patti Robinson Kaufmann First Connection Program
  • Allogeneic Stem Cell Transplant
  • Graft-Vs-Host Disease (GVHD)
  • LLS Public Policy & Advocacy
  • Light The Night
  • Woman of The Year (Visionaries of the Year)
  • Student of The Year
  • Team In Training

Additional LLS Support Resources:

  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • Clinical Trial Support Center
  • LLS Community
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Free Nutrition Consultations
  • LLS Advocacy
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Support for this episode providedby: Allogene Therapeutics; Bristol Myers Squibb; CRISPR Therapeutics; Janssen Oncology & Legend Biotech; Kite, A Gilead Company; Novartis Oncology.

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Lee Greenberger, PhDJoin us as we speak to Dr. Lee Greenberger, the Senior Vice President and Chief Scientific Officer of The Leukemia & Lymphoma Society. In this episode, Dr. Greenberger gives us updates on the COVID-19 pandemic. As the virus has continued to evolve at a rapid pace, we discuss how the national approach to this pandemic has changed and what measures we can use to stay safe.

Patients and their families will be given updated and accurate information to stay safe as we all move into the winter season, where we gather indoors and celebrate holidays with family and friends.

DOWNLOAD TRANSCRIPTCLICK HERE to participate in our episode survey.Mentioned on this episode:

  • LLS COVID Website
  • LLS Patient Registry
  • Protecting Patients: COVID and Vaccine Updates podcast episode
  • COVID variant soup is making winter surges hard to predict – Nature
  • CDC Weekly Covid Tracker
  • Coronavirus (COVID-19) Online Chat for Patients and Caregivers: Banding Together: Feeling Good Fridays
  • Caregivers: Banding Together: Feeling Good Fridays

Additional LLS Support Resources:

  • Information Specialists
  • Financial support
  • Free telephone/web patient programs
  • Free booklets
  • LLS Public Policy & Advocacy
  • Patti Robinson Kaufmann First Connection Program
  • Clinical Trial Support Center
  • LLS Community
  • Online chats
  • Support groups
  • Caregiver support
  • Caregiver Workbook
  • Free Nutrition Consultations
  • LLS Advocacy
  • Survivorship Workbook

Support for this episode provided by: BeiGene; Bristol Myers Squibb; Genentech, Inc.; Kite, A Gilead Company; Pfizer, Inc.; Pharmacyclics, An AbbVie Company & Janssen Biotech.

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Join us as we speak to lymphoma patient, Leona, her husband and caregiver, Howell, and Tia Newcomer, the CEO of…

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Join us as we speak to John Falco, who was diagnosed with chronic myeloid leukemia (CML) in 2019 and then…

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Join us as we speak to Dr. Anand Patel and Dr. Satyajit Kosuri from The University of Chicago Medicine about…

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Don’t miss this story of a patient who refuses to let cancer define his life.   Join us as we speak…

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Please join us for a brand new series called, Community Outreach In The Field, where our field correspondents, comprised of…

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Please join us as we speak to Dr. Matthew Davids of Dana-Farber Cancer Institute. In this episode, Dr. Davids discusses…

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Please join us for our second live episode from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In…

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Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In…

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Please join us as we speak to Dr. Shernan Holtan and guest co-host from LLS, Christina Neilsen. In this episode,…

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Please join us as we speak to Dr. John Leonard of Weill Cornell Medicine. In this episode, Dr. Leonard discusses…

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Únase a nosotros mientras hablamos con Ana Zermeño y Ana Victoria Portillo sobre asistencia financiera y recursos para pacientes que…

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Please join us as we speak to Dr. Daniel Pollyea from the University of Colorado School of Medicine.  In this…

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Please join us as we speak to Howard Willens, a chronic myelomonocytic leukemia (CMML) patient. In this episode, Howard shares…

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Join us as we speak to Dr. Benjamin Lampson of Dana-Farber Cancer Institute in Boston, MA. In Part Two of…

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Join us as we speak to Dr. Benjamin Lampson of Dana-Farber Cancer Institute in Boston, MA. In Part One of…

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Join us as we speak to Damion Davis, a myeloma patient and licensed professional counselor. In this episode, Damion talks…

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Join us as we speak with Charles Huang and Dr. Gabriel Mannis in honor of AML Awareness Day (April 21st).…

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Join us as we speak to Dr. Hongtao Liu and Dr. Adam DuVall from University of Chicago Medicine, about current…

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Join us as we speak to Gregory Proctor, a myeloma patient, and Erica Ali, the Senior Manager of Copay and…

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Join us as we speak to Dr. Lee Greenberger, the Chief Scientific Officer of The Leukemia & Lymphoma Society, and…

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Join us as we speak with Donnie Hill, a chronic lymphocytic leukemia (CLL) / small cell lymphocytic lymphoma (SLL) patient…

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Join us as we speak to Dr. Peter Riedell and Dr. Benjamin Derman from University of Chicago Medicine, about the…

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Join us as we speak to Dr. Lorna McNeill, a Professor and Associate Director for Health Disparities and Community Outreach…

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Join us as we speak to Michelle Bratton, a registered dietitian and certified oncology nutritionist with LLS’s PearlPoint Nutrition Services®.…

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Join us as we speak to Donnie Hill, a patient living with chronic lymphocytic leukemia (CLL) and small cell lymphocytic…

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Join us as we speak to Dr. Brady Stein, a clinical hematologist and researcher at the Northwestern University Feinberg School…

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Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this…

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Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this…

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Join us as we speak to Dr. Mariam Nawas and Dr. Satyajit Kosuri from University of Chicago Medicine, about graft-vs-host…

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Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this…

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Join us for our special series where we focus on adult child caregivers of a parent with cancer. In this…

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Join us in this next installment of our series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a…

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Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we…

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Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we…

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Join us as we speak to Lyneshia Johnson-Woodland, an internet radio show host, actress and comedian who was diagnosed with…

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Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we…

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Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we…

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Join us as we speak to Erin Galyean, a pharmaceutical sales trainer, professional speaker, and published author.  In this episode,…

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Join us as we speak to Dr. Areej El-Jawahri, a physician researcher at Massachusetts General Hospital and Associate Professor of…

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Join us as we speak to Dr. Eunice Wang, the Chief of Leukemia Service and Professor of Oncology at Roswell…

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Join us in this next installment of our series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a…

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Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series…

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Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series…

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Moving Home appeared first on The Bloodline with LLS.

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Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series…

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Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series…

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Diagnosis appeared first on The Bloodline with LLS.

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Join us in this next installment of our series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a…

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Join us as we speak to Nikki Steltenkamp, a young adult, non-Hodgkin lymphoma survivor.  Nikki, an engineer, was 24 years old…

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Join us as we speak to Dr. Grzegorz (Greg) Nowakowski, a physician researcher and Professor of Medicine at the Mayo…

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Join us as we speak to Dr. Caron Jacobson, an Assistant Professor of Medicine at Harvard Medical School and a…

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Join us as we speak with Chelsea Brickham, a transgender model, actress, and professional cosplayer who was diagnosed with Stage…

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Join us as we speak with David Wallace, a polycythemia vera (PV) patient and advocate.  In this episode, David shares…

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Join us as we speak to Alex Okafor, a defensive end with the Kansas City Chiefs. Alex lost his mother…

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Join us as we speak with Jan White, a survivor and thriver of Stage IV Non-Hodgkin Lymphoma.  In this episode,…

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Join us as we speak to Dr. Johanna DiMento and Dr. Frank Dalichow, oncologists at the first cancer center on…

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Join us as we speak to William Yank, a 23-year-old, three-time Acute Lymphoblastic Leukemia (ALL) survivor. In this episode, we hear…

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Join us as we speak to Dr. Lori Muffly and Dr. Matthew Frank from Stanford Medicine in Stanford, CA, about…

The post Exploring Minimal/Measurable Residual Disease (MRD) appeared first on The Bloodline with LLS.

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Join us as we start a brand new series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of…

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Join us as we report from the 2020 Virtual CancerCon and speak to Kyle Benner, a young adult survivor of…

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Join us as we speak to Ola Ojewumi, a patient and health advocate with Post-Transplant Lymphoproliferative Disorder (PTLD), a type…

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Join us for Part Two of a special two-part series as we speak to Dr. Christabel Cheung, a two-time Hodgkin…

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Join us for a special two-part episode as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In…

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Join us as we speak with Shelly Rosenfeld, Esq. from the Cancer Legal Resource Center and Dr. Steven Pergam from…

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Join us as we report on the latest developments in immunotherapy from the 62nd American Society of Hematology (ASH) Annual…

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Join us as we speak to Dr. Courtney DiNardo from MD Anderson Cancer Center in Houston, TX. about the recent…

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Join us as we speak to Dr. Meredith Hemphill Ruden, who had an informative session at CancerCon on Parenting with…

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Join us as we speak with Dr. Aaron Goldberg from Memorial Sloan Kettering Cancer Center in New York City.  Dr.…

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Join us as we speak to Kristin Furhrmann-Simmons, a caregiver and an LLS volunteer. Kristin talks to us about caring…

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Dr. Hoffman from the Sylvester Comprehensive Cancer Center, University of Miami Health System in Miami, Florida speaks to us about…

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Join us as Ellin Berman, MD a leukemia expert from Memorial Sloan Kettering Cancer Center discusses the advancements in treatment…

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We will be speaking with WWE Superstar, actor, and former professional football player, Joseph Anoai, who many may know as…

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Dr. Mary Ninan speaks to Alicia, Lizette, and Edith about the most common subtype of non-Hodgkin lymphoma (NHL), known as…

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Has the Coronavirus (COVID-19) affected your non-Hodgkin lymphoma treatment? Join Alicia, Lizette and Edith as they speak with Dr. Lori…

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Join this conversation as Alicia, Edith and Lizette sit down to chat with Brett Hagler.  Brett is an author, cancer…

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Join this insightful conversation as Alicia, Edith and Lizette sit down to chat with Dr. Stephen B. Thomas, one of…

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Join Alicia, Lizette and Edith as they speak with Dr. Benjamin Lampson.  Dr. Lampson is an instructor in medicine at…

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Join Alicia, Lizette and Edith as they speak with Viviana Onofre about her follicular lymphoma diagnosis that she received in…

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Join Alicia and Lizette as they speak with Dr. Shella Saint Fleur-Lominy, MD, PhD, a hematologist and physician scientist from…

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May is Mental Health Awareness Month. The Leukemia & Lymphoma Society (LLS) recognizes the unique issues faced by blood cancer…

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What does the effect of the virus have on blood cancer patients? What are hospitals doing to ensure cancer patients…

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Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society speak with Bishoy Tadros.  Bishoy was diagnosed with…

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Oya knew he was sick, but his inclinations were met with people telling him he was a hypochondriac.  Oya recounts…

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When you think about a pediatric patient, they are not a child living in a vacuum. They are part of…

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One of the most important reasons to seek a second opinion is to protect yourself from misdiagnosis. Researchers have found…

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They say hindsight is always 20/20. Looking back, Tim Card remembers how his body may have been sending signals that…

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Did you know that if somebody is eligible for Medicaid and also eligible for COBRA coverage, some states may actually…

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Eating a well-balanced diet is important, especially with a diagnosis of multiple myeloma. A proper diet during and after cancer…

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Listen in as Alicia and Lizette speak with Casey Biltz Marsh. Casey is a high school mathematics teacher and acute…

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Listen in as Alicia speaks with Jason Khalipa. Jason is a devoted father, world champion, and global businessman.  Jason is…

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Mirinda   David   Alejandro To kick off Caregiver Awareness Month, we invite you to join the conversation as…

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Listen in as Alicia and Lizette speak with Alan Kraimer. Alan is an acute lymphoblastic leukemia (ALL) survivor who owns…

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Listen in as Alicia and Lizette speak with Stan Friedman. Stan is a trial lawyer and mantle cell lymphoma (MCL)…

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On this episode, Alicia and Lizette speak with Chuck Colletti, a two-time survivor of Stage 4 follicular lymphoma. Chuck was…

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Survivor’s guilt is not an unusual reaction among those who have experienced a traumatic event, especially those impacted by cancer.…

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On this episode, Alicia and Lizette speak with Dr. Rayne H. Rouce. Dr. Rouce is a pediatric hematologist and oncologist…

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Join in as Shona sits down with Elissa Baldwin onsite at CancerCon 2019. CancerCon is an annual conference held every…

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Join Alicia and Lizette as they speak with Dr. Rayne H. Rouce. Dr. Rouce is a pediatric hematologist and oncologist…

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Join in as Shona sits down with Ellen Polamero onsite at CancerCon 2019. Ellen is a clinical social worker at…

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Like any therapy that is administered in oncology, there is great promise but also, unfortunately, several toxicities and side effects…

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Join Alicia and Lizette as they speak with Dr. Mohammad Maher Abdul-Hay, a hematologist and bone marrow transplant physician in…

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There have been few advances in treatment for AML in 40 years. Why is acute myeloid leukemia (AML) so difficult…

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As a junior in college and an intramural volleyball player who attributed the increasing pain in her right arm to…

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Join Alicia as she speaks with young adult leukemia survivor, Stephen and his wife, Rebecca. This episode was recorded onsite…

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Join Alicia and Lizette as they speak with Dr. Martha Arellano, Associate Professor of Hematology and Oncology and Program Director…

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Join Alicia and Lizette as they speak with Dr. Mohammad Maher Abdul-Hay, a hematologist and bone marrow transplant physician in…

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Join Alicia and Lizette as they speak with Dr. Marc Braunstein, a Board-certified hematologist, medical oncologist at NYU Winthrop in…

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Join Alicia and Shona from The Leukemia and Lymphoma Society as they speak with Dr. Racquel Innis-Shelton, Associate Professor of Medicine…

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Join Alicia and Lizette as they speak with Dr. Marc Braunstein, a Board-certified hematologist, medical oncologist at NYU Winthrop in…

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Join Alicia and Lizette as they speak with a young adult and Stage II Hodgkin lymphoma survivor, Merissa Pemberton. Having…

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Join Alicia and Lizette from The Leukemia and Lymphoma Society as they speak with Dr. Ann LaCasce, Program Director of the Dana-Farber/…

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Join Alicia and Shona from The Leukemia and Lymphoma Society as they speak with Dr. Racquel Innis-Shelton, Associate Professor of…

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Listen in as Alicia and Lizette chat with Dr. Ann LaCasce, a Program Director of the Dana-Farber/ Partners CancerCare Fellowship, the…

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Join Alicia and Lizette as they speak with Dr. Robert Chen about the treatment of mantle cell lymphoma (MCL). Dr.…

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November is Caregiver Awareness Month! On behalf of The Leukemia & Lymphoma Society, we’d like to thank caregivers for their…

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With over 60 types of lymphomas, a lymphoma diagnosis can be very confusing.  Listen in as Alicia and Lizette speak with hematologist/oncologist Dr.…

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Emotions are complex. We all can agree on that. On this episode, Alicia and Lizette speak with Julie Larson, a…

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Hearing the words, “you have cancer” rattles your core, regardless of who you are. On this episode, Alicia and Lizette…

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Young adult cancer survivors have unique needs, different from pediatric and adult patients. Live on June 21, 2018, the first…

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Most people are aware of common side effects of cancer treatment such as nausea and hair loss. However, most people…

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Many may be familiar with graft versus host disease (GVHD) however, veno-occlusive disease (VOD), otherwise known as sinusoidal obstruction syndrome…

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Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with psycho-oncologist, Elizabeth Harvey. Elizabeth works…

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Describing her life as a ‘storybook’, Kimberly Alexander shares with Alicia and Lizette from The Leukemia & Lymphoma Society how…

The post No Playbook for Caregiving: Kimberly’s Story appeared first on The Bloodline with LLS.

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Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Founder of Stupid Cancer,…

The post Live at CancerCon with Matthew Zachary: Founder of ‘Stupid Cancer’ appeared first on The Bloodline with LLS.

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Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Heather Juliet, a young…

The post Live at CancerCon with Heather Juliet: Young Adult Advocate & Mentor appeared first on The Bloodline with LLS.

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Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Melanie Stachelski onsite at…

The post Live at CancerCon with Melanie Stachelski: Therapist & Young Adult Survivor appeared first on The Bloodline with LLS.

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Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Sara Davenport, a young…

The post Live at CancerCon with Sara Davenport: Panelist & Young Adult Survivor appeared first on The Bloodline with LLS.

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Join us on this episode as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Dr. Pallawi…

The post A Bright Future for Hodgkin Lymphoma appeared first on The Bloodline with LLS.

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Mother’s Day is a celebration honoring mothers, motherhood, maternal bonds, and the influence of mothers in society. In this episode,…

The post Motherhood & Survivorship appeared first on The Bloodline with LLS.

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Caring for a patient means caring for the entire patient. Listen in as Alicia and Lizette from The Leukemia &…

The post Encouraging Empathy Within Cancer Care appeared first on The Bloodline with LLS.

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In its early stages, cutaneous t-cell lymphoma (CTCL) may be mistaken for a skin condition like eczema. Many people have…

The post CTCL: Skin Lymphoma, Not Skin Cancer appeared first on The Bloodline with LLS.

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Rachelle is a commercial actor, model, mother, wife and lymphoma survivor, who shares with Alicia and Lizette from The Leukemia…

The post I Am a Person, Not a Percentage: Rachelle’s Story appeared first on The Bloodline with LLS.

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Good nutrition is important for cancer patients. Eating the right kinds of foods can help patients feel better and stay…

The post Remembering Nutrition Throughout Your Cancer Journey appeared first on The Bloodline with LLS.

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After crossing the finish line at the Madrid Marathon, Ethan Hawes felt a shooting pain in his hip. Assuming it…

The post Ethan: Myeloma Survivor & Trailblazer appeared first on The Bloodline with LLS.

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Twenty-three years old and living in New York City, Glamour magazine Editor Erin Zammett Ruddy finds herself writing her biggest…

The post Stopped Treatment, Started a Family appeared first on The Bloodline with LLS.

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La fatiga es el síntoma más frecuentemente reportado por individuos con cáncer. Sin embargo, la fatiga relacionada con el cáncer…

The post Fatiga Relacionada Con El Cáncer: Síndrome, No Síntoma appeared first on The Bloodline with LLS.

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Fatigue is the symptom most frequently reported by individuals with cancer. However, cancer-related fatigue (CRF) is very different from daily…

The post Cancer-Related Fatigue: Syndrome Not Symptom appeared first on The Bloodline with LLS.

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Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Carma Bylund, Ph.D, a behavioral…

The post Effective Communication within Cancer Care appeared first on The Bloodline with LLS.

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After a cancer diagnosis, people with cancer and their loved ones may feel “out of step” during the holidays. A…

The post Coping with the Holidays after Cancer appeared first on The Bloodline with LLS.

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Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Timothy, an ALL young adult…

The post Timothy’s Turning Point appeared first on The Bloodline with LLS.

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While studying for the nursing board exams, planning to retire from firefighting, and preparing to travel, Peter, an acute promyelocytic…

The post Processing Our New Plan: Pete & Donna’s Story appeared first on The Bloodline with LLS.

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Join Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) as they sit with Rebecca Nellis, Executive Director of…

The post A Cancer Diagnosis Within the Workplace appeared first on The Bloodline with LLS.

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Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Monica Bryant, COO & Co-Founder…

The post What You Need to Know About Cancer & Health Insurance appeared first on The Bloodline with LLS.

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In her junior year of college and new to Los Angeles, Hodgkin’s Lymphoma was the furthest thing from Racheli’s mind.…

The post Life on Pause: Racheli’s Story appeared first on The Bloodline with LLS.

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Being diagnosed with a blood cancer can be overwhelming. On this episode, Alicia and Lizette from The Leukemia & Lymphoma…

The post Diagnosed with Diffuse Large B-Cell Lymphoma (DLBCL). Now what? appeared first on The Bloodline with LLS.

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Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) chat with John F. Gerecitano, MD, PhD,…

The post Why You Should Consider a Clinical Trial appeared first on The Bloodline with LLS.