Walking with Freya: Recent Episodes
Anne Fricke
Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
https://www.annefricke.com/courses
https://medium.com/@annefricke/this-is-not-political-731951d8994f
https://pwsunited.podbean.com
Sign up for the online workshop “Breathe Out: Strategies for Calming Your Autonomic Nervous System”
Website for Alliance Against Seclusion & Restraint: https://endseclusion.org
Link tree for AASR: https://linktr.ee/endseclusion
BREATHE website: https://www.breathe-community.com
Breathe Out: Strategies for Calming Your Autonomic Nervous System Workshop: https://www.breathe-community.com/course/breathe-out-calming-your-autonomic-nervous-system
Gratitude for Caregivers Course: https://www.breathe-community.com/course/gratitude-for-caregivers
BREATHE on Instagram: https://www.instagram.com/breathecommunity/
Link to Poetry of Birth course: https://www.breathe-community.com/course/poetry-of-birth
Link to BREATHE homepage: https://www.breathe-community.com
BREATHE website: https://www.breathe-community.com
BREATHE IG: https://www.instagram.com/breathecommunity/
BREATHE Community Patreon: https://www.patreon.com/user?u=87534211
Link to document with resources: https://docs.google.com/spreadsheets/d/1oESaUwbFE1sd2F8OGhh49kseLo7DHryOepC6FwfHcXo/edit?usp=sharing
Worth the Conversation website @ worththeconversation.com
Resources:
National Center for Missing and Exploited Children:
Phone Number: 1-800-843-5678
Website: https://www.missingkids.org
Darkness to Light:
Website: https://www.d2l.org
Cate Fox’s website: https://www.catefoxdietitian.com
Follow Cate on Instagram: https://www.instagram.com/catefoxdietitian/
Follow Walking with Freya on Instagram: https://www.instagram.com/walkingwithfreya/
The Latham Centers website: https://www.lathamcenters.org
Living Healthy Podcast by Latham Centers: https://pwsuniversity.podbean.com
Link to order Living Healthy with Prader Willi Syndrome Cookbook: https://www.lathamcenters.org/what-we-do/livinghealthypwscookbook/
Listen to Ep60: Griffin, an Insider View of PWS
Listen to Ep42: PWS Behavior Management with Lisa Graziano
Follow Walking with Freya on Instagram
We Are Brave Together website https://www.wearebravetogether.com
We Are Brave Together on IG
Walking with Freya on IG
PWS Community Challenge Page on FB
The Foundation for Prader-Willi Research. https://www.fpwr.org
Donate to FPWR! https://www.fpwr.org/donate
The Global PWS Registry https://pwsregistry.org
Walking with Freya on Instagram https://www.instagram.com/walkingwithfreya/
PWS Community Challenge Facebook Group https://www.facebook.com/PWSCommunityChallenge
Facebook Group for the PWS Community Challenge
https://www.facebook.com/PWSCommunityChallenge
Participate on Instagram @walkingwithfreya
Brain and Sensory Foundations® course with Move Play Thrive®
https://walkingwithfreya--moveplaythrive.thrivecart.com/brain-and-sensory-first-level/
Websites
https://drroseann.com
https://childrensmentalhealth.com
Coping Statements
www.teletherapytoolkitbonus.com
Summit:
The Get Unstuck Summit
April 23-25, 2021
www.getunstucksummit.com
It’s Gonna Be OK™: Proven Ways to Reverse Your Child’s Mental Health
www.itsgonnabeok.com
YouTube
https://www.youtube.com/DrRoseann
Facebook:
https://www.facebook.com/DrRoseannCapannaHodge/
https://www.instagram.com/drroseann/
https://twitter.com/drroseann1
https://www.linkedin.com/in/roseanncapannahodge
Jimmy Clare’s website crazyfitnessguy.com
Author page and amazon book links for Anne Fricke.
Erica Bowen:
www.thehopemakers.co.uk
IG: @the_hope_dr
FB: https://www.facebook.com/hopemakerscoaching
Podcast: https://thehopemakers.buzzsprout.com
DV Help Resources:
The Initiative (advocates for persons of disabilities who are victims of abuse*): www.dviforwomen.org 1-303-839-5510/1-877-839-5510
*National Domestic Violence Hotline: www.ndvh.org 1-800-799-7233 (SAFE)
*National Coalition Against Domestic Violence: www.ncadv.org (Check out the website for a personalized safety plan and access to a series of 6 FREE webinars on financial education) 1-800-787-3224
*National Child Abuse Hotline/Childhelp: www.childhelpusa.org 1-800-4-A-CHILD/1-800-422-4453
*National Sexual Assault Hotline: www.rainn.org 1-800-656-4673 (HOPE)
*National Human Trafficking Resource Center/Polaris Project: www.polarisproject.org 1-800-373-7888/Text HELP to BeFree (223733)
*National Resource Center on Domestic Violence: www.nrcdv.org 1-800-537-2238
*National Domestic Abuse Helpline in the UK
0808 2000 247
Resources for Talking to Kids:
*How Do I Talk With My Kid About Healthy Relationships? | Planned Parenthood Video: https://www.youtube.com/watch?v=7MGvGhacwjo
*What Is a Healthy Relationship?: https://www.talkwithyourkids.org/what-healthy-relationship/what-healthy-relationship.html
*Talk to Your Children About Healthy Relationships:
https://www.healthywomen.org/content/blog-entry/talk-your-children-about-healthy-relationships
Links:
Schedule your FREE Breakthrough Session with Annie: https://annietreml.hbportal.co/schedule/60233c06a08cc51975829f2e
Free Gift (Opt-in): “3 Harmful Lies Siblings of Children w/Special Needs Tell Themselves...and How to Fix It!” www.annietreml.com/guide
Facebook group: https://www.facebook.com/groups/thespecialneedsfamilysociety
Facebook page: https://www.facebook.com/AnnieTremlConnects
Linkedin: https://www.linkedin.com/in/annie-treml/
Instagram: @annietremlconnects
Follow the podcast on IG @walkingwithfreya
Find more episodes on my website annefricke.com
Family Success Secrets Website link
Dup15q Alliance
Family Success Secrets on Instagram
“What To Do About Your Brain-Injured Child”
My Bookstore, “There Is Joy To Be Found Here”
Buy a copy of There Is Joy To Be Found Here in my bookstore
Follow the Walking with Freya on Instagram
Visit mariefraser.com
Download the Deep Relaxation Audio
Follow Marie on Instgram
How to Find TJ and hear more about Sean’s Stories:
Website: www.tjnelligan.com
Facebook: https://www.facebook.com/TJ-Nelligan-Author-106992361177824
Twitter: https://twitter.com/TjNelligan
Instagram: https://www.instagram.com/tjnelliganauthor/
LinkedIn: https://www.linkedin.com/in/tj-nelligan-2458b5ba/
My website: annefricke.com
Follow me on IG at Walking With Freya
Follow me on Twitter at AnneFricke1
Where to find her books: https://www.amazon.com/Allison-Dillard/e/B07PV43V59%3Fref=dbs_a_mng_rwt_scns_share
allisonlovesmath.com
For more episodes and my bookstore: annefricke.com
Follow Jamilah on IG @theiepcoachllc
Check out her website at www.becauseofher.info
Follow the poet Brandon Leake on IG @brandon_leake_ctm
Follow this podcast at IG @walkingwithfreya
Buy the writing journal, There Is Joy To Be Found Here, on the bookstore of my website at www.annefricke.com/bookstore
Learn more about Ido and his books here:
www.facebook.com/IdoInAutismland
http://idoinautismland.com
Order your digital or hard copy of There Is Joy To Be Found Here:
https://www.annefricke.com/bookstore
*Jamilah’s website https://www.becauseofher.info
*“New studies challenge the claim that black students are sent to special ed too much” https://hechingerreport.org/new-studies-challenge-the-claim-that-black-students-are-sent-to-special-ed-too-much/
*”Is Special Education Racist?” https://www.nytimes.com/2015/06/24/opinion/is-special-education-racist.html
*”Pipeline to Prison: Special education too often leads to jail for thousands of American children” https://hechingerreport.org/pipeline-prison-special-education-often-leads-jail-thousands-american-children/
*Battling Implicit Bias in the IDEA to Advocate for African American Students with Disabilities
*Link to Vote Walking with Freya best podcast in Humboldt https://northcoastjournal.secondstreetapp.com/Best-of-2020/gallery/229106312/?fbclid=IwAR0jbB3LB6ovg_WFb7Mrc0ZsPg78vIu7ppSXdC6ZYYtTq-J-UOwxJembJIo
An article I found helpful: https://insidethekandidish.wordpress.com/2020/05/30/dear-white-people-this-is-what-we-want-you-to-do/?fbclid=IwAR1_f4v4xNakFzbN8JvcTvYo2JD1RFW0fMs3zEjNG8mzHoedajDUv0NqoEs
Find more episodes at annefricke.com/walking-with-freya
Emily’s coaching website beservethrive.com
Article by Emily https://medium.com/@emilyfelt/the-role-of-gratitude-in-special-needs-parenting-b944d2074e9d
Meditation App https://www.simplehabit.com/redeem/EMILY030875
Link to buy my writing journal or other books annefricke.com/bookstore
To buy the writing journal “There Is Joy To Be Found Here” annefricke.com/bookstore
For more episodes annefricke.com/walking-with-freya
Link to Jessica’s podcast @ fubarpod.libsyn.com
Find her on Instagram @midstofchaospod
Find more Walking with Freya episodes @ annefricke.com/walking-with/freya/
Also, order the book “There Is Joy To Be Found Here, A Writing Journal for Parents of Children with Special Needs” @ annefricke.com/bookstore
Follow Walking with Freya on IG @walkingwithfreya
Podcast email walkingwithfreya@gmail.com
Follow me on IG to learn more about storyteller night @humboldtmama
To learn more about Laura and what she offers visit www.mamasystems.net
To order your copy of “There Is Joy To Be Found Here” visit annefricke.com/bookstore
Link to check out Maja’s work and order “The Brain’s Playground” zipzapzopenrichment.com
To order the writing journal “There Is Joy To Be Found Here” annefricke.com/bookstore
“There is Joy To Be Found Here” GoFundMe and pre-order link: gf.me/u/xfknwu
Youtube Link to journal Intro: https://www.youtube.com/watch?v=YyOEP0T_FIw
Go Fund Me for There Is Joy To Be Found Here gf.me/u/xfknwu
Eleanor Griffith’s website
greygenetics.com
Resources
Montessori.edu/FAQMontessori.html
creative-montessori.com
academia.edu
en.wikipedia.org/wiki/Maria_Montessori
“The Montessori Family – A Family Tree” by Fred Kelpin
dailymontessori.com
The Inclusive Education Project website: inclusiveeducationproject.org
Inclusive Education Project Podcast link: http://inclusiveeducation.libsyn.com
My website: annefricke.com
Podcast Email: walkingwithfreya@gmail.com
If you would like to learn more about Pura Syndrome please visit purasyndrome.org
Find more episodes at annefricke.com/walking-with-freya/
pwcf.org
annefricke.com
Behavior Toolkit https://pwcf.org/wp-content/uploads/2019/05/Behavior-Behavior-Tool-Kit-1.pdf
Writing Workshop Registration: https://docs.google.com/forms/d/e/1FAIpQLSfVC45UIfm__kFUfy3H5iQUy0JpozO1fZWHvrd26pBfDoO5WA/viewform
fpwr.org
pwcf.org
pwsausa.org
wearebravetogether.com
Prader-Willi California Foundation pwcf.org
Sign up for the writing workshop at annefricke.com/offerings
To learn more about Diana Mizer, her work and how to reach her please visit DianaMizer.wordpress.com
To schedule a free chat with Andrea Klunder; thecreativeimposter.com/teafor20
My website: annefricke.com
Prader-Willi California Foundation pwcf.org
Link for email list: https://www.annefricke.com/about-walking-with-freya
Link for book: https://www.mybestseller.co.uk/shop/index.php/catalog/product/view/id/419436/s/through-the-eyes-of-an-indigo-adventure-174677-www-mybestseller-co-uk/
To find more episodes, information about Anne, and/or to sign up for my mailing list please follow this link https://www.annefricke.com/about-walking-with-freya/
www.m-lynn.com
www.facebook.com/mlynnassistin
www.instagram.com/mlynnassistin
www.pinterest.com/mlynnassistin
podcast: www.worknhomemom.com
email your holiday stories - the good, the bad, the ugly to walkingwithfreya@gmail.com or submit them via the email form on the Share your Story page at annefricke.com
www.ndss.org - National Down Syndrome Society
@walkingwithfreya on Instagram
annefricke.com/walking-with-freya/
http://yayapodcasting.com/index.html/
Blog for those with questions on Special Education in Delaware https://exceptionaldelaware.wordpress.com/category/delaware-special-education/
annefricke.com
http://www.lessonsfromaquitter.com
Follow Jamilah on Instagram @becauseofh.e.r
Find her book Because of H.E.R at becauseofher.info
Share your story at walkingwithfreya@gmail.com or at annefricke.com/about-walking-with-freya/
Follow the podcast on Instagram @walkingwithfreya
https://www.understood.org/en/tools/through-your-childs-eyes
Overcoming Dyslexia by Sally Shaywitz
https://smile.amazon.com/Overcoming-Dyslexia-Complete-Science-Based-Problems/dp/0679781595/ref=sr_1_1_sspa?ie=UTF8&qid=1538517299&sr=8-1-spons&keywords=overcoming+dyslexia+sally+shaywitz&psc=1
Jackie Marie Beyer’s mini fluency training video
https://youtu.be/7-_gm12YSLM
www.authenticteacher.com
The Way I See It Temple Grandin
The Four Agreements Don Miguel Ruiz
The article "Caesarean section and risk of autism across gestational age: a multi-generational cohort study of 5 million births” from the International Journal of Epidemiology https://academic.oup.com/ije/article/46/2/429/2739042
You Can Heal Your LifeLousie Hay
https://www.anatbanielmethod.com
Applied Behavioral Analysis Therapy (ABA)
Check out my blog growingupwithpws.blogspot.com
Find episodes, email form and more at my website annefricke.com
American Speech-Language-Hearing Association at asha.org
Mend; Life at the Seams, episodes 37 and 38 at mendpodcast.com
understandingspecialeducation.com
For comments or information on sharing your story please email walkingwithfreya@gmail.com
For more information check out pwsausa.org
To find more episodes visit annefricke.com
To share your story, advice, or to ask questions please email walkingwithfreya@gmail.com
To find out more about Natalie, check out her website at miraclemama.com.au
To share your story on the podcast please get in touch with me at walkingwithfreya@gmail.com
To find out more about me, my writing and this podcast, visit annefricke.com
To learn more about the documentary “Journey to a Miracle; Freedom From Insulin” visit http://www.journeytoamiraclemovie.com/
Fro more info on the Anat Baniel Neuromovement Method mentioned in this episode, follow the link https://www.anatbanielmethod.com/
To share your story with this podcast, or if you have suggestions or questions on a topic, please email walkingwithfreya@gmail.com
To share your story email walkingwithfreya@gmail.com
To donate to the Foundation for Prader-Willi Research please visit fpwr.org
To share your story please email me at walkingwithfreya@gmail.com
Article referenced can be found at https://childmind.org/article/5-ways-to-support-siblings-in-special-needs-families/
Visit fpwr.org to learn more about the organization, PWS, fundraising and how to donate.
Share your story with the podcast at walkingwithfreya@gmail.com
For more about PWS go to pwsausa.org or fpwr.org to donate to my favorite PWS organization.
To share your story email me at walkingwithfreya!@gmail.com
Look for Laura's podcast May 5...AskMidwife707.
Find more episodes at annefricke.com
Share your story by emailing me at walkingwithfreya@gmailcom
To share your story please email me at walkingwithfreya@gmail.com
Join the FB group "Walking with Freya"
Help support the podcast at patreon.com/walkingwithfreya
Find more episodes at annefricke.com/walking-with-freya/
thearc.org - An organization for people with intellectual and developmental disabilities
walkingwithfreya@gmail.com - to share your story
https://www.ncbi.nlm.nih.gov/pubmed/23057501 - link to the study referenced in this episode
Information on Prader-Willi Syndrome was read from the site pwsausa.org, the national site for the Prader-Willi Syndrome Association.
Share your story by emailing walkingwithfreya@gmail.com
To share stories email walkingwithfreya@gmail.com or find me on Facebook at Walking with Freya.