Ambiguously Blind: Recent Episodes
John Grimes
Challenging Beliefs & Revealing Abilities That Make People Extraordinary
Join host John Grimes, exploring life after bacterial meningitis caused sudden blindness and neurologic dysfunction. Connecting with others to share experiences, adaptations and how to thrive while overcoming life’s challenges.
http://www.ambiguouslyblind.com
STORIES OF RESILIENCE
Meningitis Survivors and Advocates Share Their Journeys
Welcome to another special and poignant episode of the Destiny is Debatable podcast. As we acknowledge World Meningitis Day on October 5th, we are honored to present a collection of heartfelt stories from around the globe, shared by individuals whose lives have been profoundly affected by meningitis.
Christine Bennborn from Sweden recounts the harrowing experience of losing her son, Mathias, to meningitis and sepsis in 2019. Driven by this tragedy, Christine founded Meningokockfonden in Sweden, dedicating herself to spreading awareness and advocating for better vaccination policies.
From Georgia, Shaquille Hodge, who transformed his grief into action after his wife, Percilla, succumbed to meningitis while they were on vacation. Shaquille established the PAMAH Foundation, named in honor of his wife, to educate and raise awareness about this silent killer through car shows and scholarship programs.
Katie Thompson, a meningitis survivor from South Carolina, who faced excruciating pain and near-death but emerged as a passionate patient advocate. Katie's story is a testament to the resilience of the human spirit and a reminder of the importance of vaccination and awareness.
Claytone Musungu from Kenya shares his journey of founding the Meningitis Information Foundation in Nairobi, Kenya after witnessing the devastating impact of meningitis on a close friend’s family. Claytone's efforts to educate the public and work with the government aim to defeat meningitis by 2030.
Jayme Fahrer from New Jersey, who survived bacterial meningitis in 2009. Despite enduring severe physical and mental challenges, Jamie's determination to spread awareness and support others is truly inspiring. Her story emphasizes the urgent need for prompt medical care and the importance of prevention.
Tom Nutt, Chief Executive of Meningitis Now in the UK, sheds light on the critical work of his organization. From funding research and raising awareness to supporting affected individuals, Tom’s insights underscore the multifaceted approach needed to combat this disease. He also highlights the importance of vaccination and knowing the signs and symptoms of meningitis.
John Grimes wraps things up with a reminder of hope. Through his experience with meningitis, he quickly learned that survival wasn’t the end of his journey, it was just the beginning. John also offers his advice on the importance of acting now to shape your life into the future you want.
Throughout this episode, you'll hear powerful narratives of loss, resilience, and hope. These stories serve as a compelling reminder of the impact meningitis can have and the importance of continued efforts to spread awareness and promote vaccination. By sharing their experiences, our guests not only honor their loved ones but also strive to protect others from this preventable disease.
Through these efforts we will not just defeat meningitis, we’ll make meningitis nothing more than a historical footnote.
🎙️ PODCAST LINKS ⬇
JOHN GRIMES' MENINGITIS STORY
:: https://podcast.johnbgrimes.com/blog/destiny-is-debabable-the-story-summary/
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog, social media links & more, visit JohnBGrimes.com
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
Kevin's story begins with a passion for motocross, fueled by the adrenaline of performing gravity-defying stunts. But life took a dramatic turn when a catastrophic accident left him paralyzed. In a split second, Kevin had to decide between two grim outcomes: staying on his bike and risking a broken neck or jumping off and potentially breaking his legs. He chose the latter, leading to a life-altering injury that would test his resilience and spirit.
As fate would have it, Kevin wasn't new to the world of spinal injuries. Just a few years earlier, his father had suffered a similar accident, leaving him paralyzed. The irony of both father and son facing such challenges is not lost on Kevin, who candidly shares the emotional and physical toll it took on his family. His mother, a beacon of resilience, navigated the turbulent waters of having both her husband and son in wheelchairs.
Kevin's recovery journey is a testament to human spirit and determination. From wiggling his first toe six weeks after the accident to walking and riding again within a year, his path was anything but easy. Along the way, he discovered a new passion in Paralympic sledge hockey, eventually earning a bronze medal in Sochi. This experience led him to a new calling: sharing his story and inspiring others through public speaking.
In his keynote presentations and coaching program, Kevin delves into what he calls the "Hero Mindset." He offers invaluable insights into navigating life's transitions, whether due to disability, career changes, or personal challenges. His message is clear: acceptance doesn't mean giving up; it's the first step toward a fulfilling life.
Kevin's humor and candidness make his story relatable and engaging. From humorous anecdotes about crop-dusting VIP audiences to the heartwarming tales of his current life with his girlfriend and her two children, Kevin's narrative is a rollercoaster of emotions and life lessons.
Join us for this compelling episode of Destiny is Debatable and discover how you, too, can adopt the Hero Mindset to overcome life's obstacles and build the life you want.
For more on Kevin Rempel and his transformative journey, visit his website at kevinrempel.com and follow him on Instagram and LinkedIn. If you're navigating a career or life transition and need a mindset shift, Kevin's Hero Tribe is the community you've been looking for.
Don't wait—tune in now and start your journey toward a resilient and fulfilling life!
🎙️ EPISODE LINKS ⬇
Kevin's Profile (bio, social inks, etc.)
:: https://podcast.johnbgrimes.com/guests/kevin-rempel/
Kevins's Website
:: https://kevinrempel.com/
🎙️ PODCAST LINKS ⬇
READ JOHN GRIMES' MENINGITIS STORY
:: https://podcast.johnbgrimes.com/blog/destiny-is-debabable-the-story-summary/
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog, social media links & more, visit JohnBGrimes.com
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
In this episode, host John Grimes sits down with Jonathan Tuteur, an executive leadership coach, speaker, and author of the forthcoming book, Seizing Today, to discuss his remarkable journey with epilepsy.
Johnathan shares his story, from frequently being misidentified as John Stewart to his life-changing epilepsy diagnosis at the age of 30. With over 500 seizures, multiple brain surgeries, and countless tests, Jonathan has faced significant challenges. Through his trials and tribulations, he has discovered a new purpose and authenticity in his life.
Listen in as John talks about the complexities of epilepsy, the importance of de-stigmatizing the condition, and his efforts to raise awareness. He also discusses his upcoming book, "Seizing Today: Discovering Purpose and Authenticity in a Life-Changing Diagnosis," which provides an in-depth look into his experiences that highlights resilience, the power of finding your true calling, and the significance of a supportive community.
Does Jon Tuteur look like John Stewart? See for yourself.
🎙️ EPISODE LINKS ⬇
Jonathan Tuteur's Guest Profile (bio, social inks, etc.)
:: https://podcast.johnbgrimes.com/guests/jonathan-tuteur/
Jonathan's Website
:: https://triplepllc.co/
Jonathan's Authority Magazine Article
:: https://medium.com/authority-magazine/unstoppable-how-jon-tuteur-has-redefined-success-while-navigatin
🎙️ PODCAST LINKS ⬇
READ JOHN GRIMES' MENINGITIS STORY
:: https://podcast.johnbgrimes.com/blog/destiny-is-debabable-the-story-summary/
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog, social media links & more, visit JohnBGrimes.com
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
Join us for an inspiring chat with Charlie Kramer, a life coach who's truly mastered the art of living confidently with his disability. We'll dive into his journey with Retinitis Pigmentosa (RP), an inherited retinal condition that shapes his unique perspective on life and teaches us valuable lessons about resilience and acceptance.
Charlie shares his advocacy for mobility tools like the blind cane and opens up about the profound impact his disability has had on his identity. He sheds light on the importance of individuality, respect, and understanding when interacting with people with disabilities. Plus, he shares personal stories that help us understand the delicate balance between offering help and respecting independence.
We'll explore the hidden aspects of living with a disability and discuss societal norms and attitudes towards disabilities. Charlie likens his experience of sight loss to building a puzzle, emphasizing the importance of individual autonomy in navigating life's challenges. He shares his journey of self-discovery, acceptance, and how he's turned his blindness into opportunities for growth.
And let’s not forget that Charlie is also a musician. He discusses his immersive and transformative experience, "Singing in the Dark," a blindfolded singing and healing experience that's as unique as it is enlightening. We'll also get insights from his song, "Vision," which beautifully encapsulates his outlook on life.
Join us as we celebrate Charlie's roles in teaching, coaching, and singing, and discover his innovative approach to disability. Tune in and let's embrace and celebrate the diversity of life, both its opportunities and challenges.
🎙️ EPISODE LINKS ⬇
Charlie Kramer's Guest Profile (bio, social inks, etc.)
:: https://podcast.johnbgrimes.com/guests/charlie-kramer/
Charlie Kramer's Website
:: https://www.charliekramervision.com/
Charlie's Music
:: https://open.spotify.com/artist/30mwMNAR86PRAtIThQJ2Qk?si=cvCLklGBRD6eotGH5X62xA
DID Episode: Tasting In The Dark with Hoby Wedler
:: https://podcast.johnbgrimes.com/tasting-in-the-dark-with-hoby-wedler/
DID Blog Post: 5 Things I Wish Were Understood About People With Physical Limitations
:: https://podcast.johnbgrimes.com/blog/5-things-i-wish-were-understood-about-people-with-physical-limitations/
🎙️ PODCAST LINKS ⬇
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog, social media links & more, visit JohnBGrimes.com
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
In this episode we delve into the remarkable journey of Mary Beth O'Connor, author of the memoir, "From Junkie to Judge." This candid conversation beautifully captures her transformation from a troubled childhood filled with violence and neglect, to an eventual Federal Judge.
The episode sheds light on pressing issues like mental health, and substance abuse. Explore her personal battles with PTSD, anxiety, and meth addiction, and witness her remarkable resilience as she breaks out from this consuming abyss of negativity to rise as an influential figure in the world of law and education.
Discover the significant role that education and dedicated teachers played in her life, offering the guidance and attention she craved as a solace from her turbulent past and gain some valuable life insights from her candid advice to her younger self.
Hear her spellbinding journey to overcoming adversity and succeeding in making an impactful change in society. Learn about her incredible transition from a meth addict to a Berkeley Law School graduate, shedding light on the transformative power of perseverance and resilience. Follow her journey to becoming a federal administrative law judge and her meaningful contributions to recovery organizations.
Dive deeper into the profound connection between trauma, mental health, and substance abuse, and understand the lifelong consequences of addiction. The episode emphasizes the importance of strong support networks in recovery and offers insights into various recovery pathways that can cater to individual needs.
Get inspired by Mary Beth's commitment to spread awareness and education about substance use and recovery challenges. This episode concludes with a powerful message of hope and resilience, reminding us that with patience and persistence, overcoming obstacles is within our reach.
🎙️ EPISODE LINKS ⬇
Mary Beth O'Connor's Guest Profile
:: https://podcast.johnbgrimes.com/guests/mary-beth-oconnor/
Mary Beth's Website
:: https://junkietojudge.com/
🎙️ PODCAST LINKS ⬇
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog, social media links & more, visit JohnBGrimes.com
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
Join us for a captivating chat with Aaron Hale, a former US Army Explosive Ordnance Disposal (EOD) technician turned entrepreneur, ultra endurance athlete, and host of The Point of Impact podcast. Aaron's story is one of resilience, peppered with humor and wisdom.
After losing his sight disarming an IED in Afghanistan and his hearing to bacterial meningitis, Aaron refused to be sidelined. Instead, he dove headfirst into the kitchen, perfected his fudge recipe, and started a chocolate company, Extra Ordinary Delights. With a blend of wit and grit, Aaron shares how he turned adversity into opportunity, offering invaluable insights into overcoming obstacles and thriving against the odds.
Tune in for a dose of inspiration and a dash of humor as Aaron reminds us that even in life's toughest moments, there's always room for extraordinary triumphs.
🎙️ PODCAST LINKS ⬇
SUPPORT THIS PODCAST BUY ME A COFFEE!
:: https://ko-fi.com/ambiguouslyblind
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog, social media links & more, visit JohnBGrimes.com
🎙️ EPISODE LINKS ⬇
Aaron Hale's Guest Profile
:: https://podcast.johnbgrimes.com/guests/aaron-hale/
EODFudge.com
:: https://eodfudge.com/
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
In this episode, join us for a deeply insightful conversation with Jonathan Beskin, the founder of SinglesSwag.com and author of "The Least Likely Millionaire: How to Succeed When Everyone Expects You to Fail." Jonathan opens up about his journey of overcoming significant obstacles and mental health challenges, all while navigating a strained relationship with his father during his formative years. Despite these hurdles, Jonathan shares how he discovered the power of channeling his energy into healthy obsessions, ultimately leading him to achieve remarkable success in entrepreneurship and personal growth. Through vulnerability and resilience, Jonathan offers invaluable insights into finding fulfillment and success despite life's adversities. Tune in as we explore the transformative journey of turning pain into power and forging a path towards authenticity and prosperity.
SinglesSwag.com is a subscription box service designed specifically for single women. Singles Swag delivers a variety of products, including beauty items, snacks, accessories, and other lifestyle products, aimed at empowering and celebrating single women.
🎙️ PODCAST LINKS ⬇
SUPPORT THIS PODCAST BUY ME A COFFEE!
:: https://ko-fi.com/ambiguouslyblind
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog, social media links & more, visit JohnBGrimes.com
🎙️ EPISODE LINKS ⬇
Jonathan Beskin's Guest Profile
:: https://podcast.johnbgrimes.com/guests/jonathan-beskin/
JohnathanBeskin.com
:: https://www.jonathanbeskin.com/
Book: The Least Likely Millionaire
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
John Bryant, a versatile drummer, percussionist, music producer, and educator stops by to visit with host John Bryant about how he got started with drums and the years he spent with Ray Charles and the remarkably unique communication style he and Ray had to keep the band playing on the same tempo.
Based in Dallas Texas, John Bryant boasts a remarkable career spanning collaborations with iconic artists like Ray Charles, Joe Walsh, and Delbert McClinton. With a rich portfolio encompassing major motion pictures, PBS and National Geographic documentaries, and symphony orchestras, Bryant serves as Adjunct Assistant Professor of Drumset Studies and Music Production at Southern Methodist University. A founding member of D'Drum, he has also produced groundbreaking works like "Gamelan D'Drum" in collaboration with Stewart Copeland and the Dallas Symphony. From his early days with the Paul Winter Consort to leading Pyramyd/Phyrework, Bryant's influence resonates through his extensive studio work and performances across renowned recording studios nationwide.
🎙️ PODCAST LINKS ⬇
SUPPORT THIS PODCAST BUY ME A COFFEE!
:: https://ko-fi.com/ambiguouslyblind
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog, social media links & more, visit JohnBGrimes.com
🎙️ EPISODE LINKS ⬇
John Bryant's Guest Profile
:: https://podcast.johnbgrimes.com/guests/john-bryant/
John Bryant's Website
:: https://johnbryantdrums.com//
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
Co-Founder and CEO, Heath Wilson, stops by to share the Aro story and mission to create a new generation of intentional families. Aro leverages the science of habit formation and motivational design to ensure parents and kids don’t miss out on what’s most important by helping reclaim time spent on their phones.
🎙️ PODCAST LINKS ⬇
SUPPORT THIS PODCAST BUY ME A COFFEE!
:: https://ko-fi.com/ambiguouslyblind
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog, social media links & more, visit JohnBGrimes.com
🎙️ EPISODE LINKS ⬇
Heath Wilson's Guest Profile
:: https://podcast.johnbgrimes.com/guests/heath-wilson/
Aro Website
:: https://www.goaro.com//
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
As we move into a new year, I think it’s a good time to evaluate many things in life. In this episode, Dr Angela Holliday-Bell stops by to talk about the importance of sleep. She says that sleep is the solution to everything. So, we dive into that bold claim and talk about the common mistakes we make about sleep and its importance in our daily lives. Dr Holliday-Bell shares some tips to get us sleeping better immediately and talks about her new book, Sleeping On The Job: Proven Strategies To Optimize Your Workplace Performance And Personal Wellbeing Through Better Sleep.
🎙️ PODCAST LINKS ⬇
SUPPORT THIS PODCAST BUY ME A COFFEE!
:: https://ko-fi.com/ambiguouslyblind
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog, social media links & more, visit JohnBGrimes.com
🎙️ EPISODE LINKS ⬇
Dr Holliday-Bells's Guest Profile
:: https://podcast.johnbgrimes.com/guests/dr-holliday-bell/
Website: https://thesolutionissleep.com//
Book: Sleeping On The Job
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
Founder of the Best Ever You Network and a woman who can still walk on her hands, Elizabeth Hamilton-Guarino stops by to talk about her new book, The Success Guidebook and the importance of redefining success and how it’s measured. Elizabeth also shares the dramatic origin story of the Best Ever You Network and how living her daily life with multiple life-threatening food allergies turned her into a chocolate chip baking machine.
🎙️ PODCAST LINKS ⬇
SUPPORT THIS PODCAST BUY ME A COFFEE!
:: https://ko-fi.com/ambiguouslyblind
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog, social media links & more, visit JohnBGrimes.com
🎙️ EPISODE LINKS ⬇
Elizabeth's Guest Profile
:: https://podcast.johnbgrimes.com/guests/elizabeth-hamilton-guarino/
Website: https://www.besteveryou.com/
Book: The Success Guidebook
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
After answering some wacky questions, Sara shares a bit about her story that begins as a young, single mother and how she discovered her path to forgiveness and healing from the scars of sexual abuse and the trauma of an unexpected divorce through a daily practice of actively embracing the power and beauty of nature. Sara explains the transformative experience that occurs while leading her clients through the Grand Canyon.
Sara also believes in an alternative definition of forgiveness, stresses the importance of laughter and shares some priceless advise she received from her best friend, her mother. And, Sara shares her recipe for her signature drink, hot water, honey and lemon that may or may not also contain bourbon.
🎙️ PODCAST LINKS ⬇
SUPPORT THIS PODCAST BUY ME A COFFEE!
:: https://ko-fi.com/ambiguouslyblind
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog, social media links & more, visit JohnBGrimes.com
🎙️ EPISODE LINKS ⬇
Sara Shulting Kranz's Guest Profile
:: https://podcast.johnbgrimes.com/guests/sara-schulting-kranz/
Website: https://www.saraschultingkranz.com/
Book: Walk Through This
TEDx: https://www.youtube.com/watch?v=xIU2HavaGf0
Podcast: https://www.saraschultingkranz.com/podcasts/
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
In a world of spoken thought and musings, the humble little podcast known as Ambiguously Blind has undergone a profound transformation, shedding its audio cocoon to emerge as a captivating orator, primed for epic debates on destiny's enigmatic crossroads. Destiny Is Debatable, has taken flight and is eager to challenge the very threads of fate.
Okay, sorry… That may be a little dramatic, but we are evolving. Ambiguously Blind is now Destiny Is Debatable! And, as you may have heard, I’ve been working on a writing project for a long, long, looooooong, time.
Over the past 18 months, I’ve been working with a partner to help extract and organize my story and turn it into a high-impact message balanced with my signature sense of humor. Voilà, Destiny Is Debatable is born!
I’m very pleased to announce that we’ve made tremendous progress. I thought this was the perfect time to bring my partner, the great Garrison Wynn, on the podcast to talk about what we’ve been up to and let you know where we’re headed.
🎙️ PODCAST LINKS ⬇
SUPPORT THIS PODCAST BUY ME A COFFEE!
:: https://ko-fi.com/ambiguouslyblind
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog, social media links & more, visit JohnBGrimes.com
🎙️ EPISODE LINKS ⬇
Garrison Wynn Guest Profile
:: https://podcast.johnbgrimes.com/guests/garrison-wynn/
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
This year for World Meningitis Day, we pulled together a remarkable collection of people from around the world to raise awareness and share their story to help light the road ahead to defeat meningitis.
Turning the World Health Organization's (WHO) Global Road Map to Defeat Meningitis by 2030 into reality could save more than 200,000 lives annually and significantly reduce disabilities caused by meningitis. At present, bacterial meningitis kills 1 in 10 people who contract it and causes lifelong disability in 1 in 5 people who survive it.
:: For this episode our guests were asked to respond to these questions:
- How were you affected by meningitis?
- What do you want people to know about meningitis?
- What are you doing to spread awareness?
:: Our guest are:
- Bob Werner (Wisconsin, USA)
- Elena Moya (Madrid, Spain)
- Rekha Lakshmanan (Texas, USA)
- Siobhan Carroll (Galway, Ireland)
- Vinny Smith (Bristol, England)
- Bruce Langoulant (Perth, Australia)
- John B Grimes (Texas, USA)
:: PODCAST LINKS ::
SUPPORT THIS PODCAST :: BUY ME A COFFEE!
:: https://ko-fi.com/ambiguouslyblind
GET YOUR OWN DONT WAIT MUG!
:: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
Instagram | Facebook | Twitter | Linkedin
:: EPISODE NOTES AND LINKS ::
Episode participants:
- Bob Werner (Wisconsin, USA)
Becky Werner Meningitis Foundation
:: https://stampoutmeningitis.com/ - Elena Moya (Madrid, Spain)
Asociación Española contra la Meningitis
:: https://contralameningitis.org/ - Rekha Lakshmanan (Texas, USA)
The Immunization Partnership
:: https://immunizeusa.org/ - Siobhan Carroll (Galway, Ireland)
ACT For Meningitis
:: https://actformeningitis.ie/ - Vinny Smith (Bristol, England)
Meningitis Research Foundation
:: https://www.meningitis.org/ - Bruce Langoulant (Perth, Australia)
Meningitis Centre Australia
:: https://meningitis.com.au/ - John B Grimes (Texas, USA)
Confederation of Meningitis Organizations (CoMO)
:: https://www.comomeningitis.org/
:: What is World Meningitis Day?
World Meningitis Day was started in 2009 by a community of people affected by meningitis. Today it has grown to be a global movement that brings together people from all over the world. Together they highlight the need to raise awareness of meningitis, its signs and symptoms, the vaccines that are available, and that it is an infection that needs global attention and effort to be defeated.
Every year, there are 2.5 million new cases of meningitis. Despite meningitis affecting so many lives, many people don’t know enough about it, or how to protect themselves and their loved ones. A lack of knowledge and limited support means it can also be isolating for people looking to rebuild their lives after meningitis. Seeking community is a very human response and one that offers connection, healing and the opportunity for meaningful change. It is out of this need for community that, in 2004, the first world conference of meningitis organizations was held. It led to the creation of the Confederation of Meningitis Organizations (CoMO), the world’s first international network of meningitis organizations, with members ranging from healthcare professionals to meningitis survivors to bereaved family members.
The World Health Organisation (WHO) has developed a global plan to dramatically improve meningitis prevention, diagnosis and treatment, disease monitoring, health advocacy, support and aftercare.
:: The Global Road Map to Defeat Meningitis by 2030
This is a game changer for people at risk of or affected by meningitis. Turning the WHO’s Global Road Map to Defeat Meningitis by 2030 into reality could save more than 200,000 lives annually and significantly reduce disabilities caused by meningitis. At present, bacterial meningitis kills 1 in 10 people who contract it and causes lifelong disability in 1 in 5 people who survive it.
The Road Map was presented at the World Health Assembly in November 2020, where countries decided to take it forward. They did this by voting on a 'resolution'. The Global Road Map to Defeat Meningitis by 2030 sets out a detailed plan to tackle the main causes of acute bacterial meningitis (including meningococcus, pneumococcus, Haemophilus influenzae and group B streptococcus).
The Road Map was developed by WHO with extensive consultation and input from hundreds of global experts, including people directly affected by meningitis, scientists, country representatives, and civil society organizations like Meningitis Research Foundation and the Confederation of Meningitis Organizations.
For more information:
Confederation of Meningitis Organizations
:: https://www.comomeningitis.org/
Meningitis Research Foundation
:: https://www.meningitis.org/
.:: Destiny is Debatable is a Cemblem production and made possible by the generous support of our listeners and Executive Producer, Erin Grimes.
Please consider supporting to sustain our content.
:: https://ko-fi.com/ambiguouslyblind
.
⚠️ WARNING This episode contains gratuitous dad jokes! 🤣
Since we last connected with Bradford and Bryan Manning, they have both become fathers. They stop by to answer some wacky questions from John, talk about fatherhood and entertain us with some finely hand-crafted dad jokes. Bradford shares his experience with the encouraging advancements made in testing for severe genetic conditions including Stargardts disease. After swapping parenting techniques and funny stories the brothers talk about the quintessential item in their catalog, socks and how much fun they’ve had selling them on QVC.
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:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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:: EPISODE LINKS ::
2BB's First Episode (#36) ::: https://www.ambiguouslyblind.com/two-blind-brothers/
Two Blind Brothers Website :: https://twoblindbrothers.com/
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The great Jack Chen stops by to share his sight loss story and how a simple podcast episode with Dan Berlin turned into a documentary film and bold social action campaign to fundamentally alter the way that employers think about talent in the blind community. Both blind, Jack and Dan knew that their positions as Assistant General Counsel for Facebook and CEO of a large food company were not aberrations. They set out to prove to the world that people who are blind could be successful both on and off the bike, in the saddle and in the boardroom.
The gripping documentary film, Surpassing Sight, parallels their journey of building a team to tackle the toughest cycling race in the world, RAAM (Race Across America), with their equally grueling journey through the employment world.
GET YOUR #DONTWAIT MUG! :: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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This is a listener supported podcast. Please consider donating to build and sustain our community
:: EPISODE LINKS ::
Jack's Guest Profile :: https://www.ambiguouslyblind.com/guests/jack-chen/
Jack's Podcast ExcelAbility :: https://teamexcelability.com/
Surpassing Sight Movie :: https://surpassingsightmovie.com/
::
The last time we connect with adventurer Jill Wheatley she was in Kathmandu, Nepal preparing to ascend the world’s eighth highest mountain, Manaslu. This time, we find Jill in Canada. She stops by to recap her last two years of climbing and tell us what she’s up to next. During the discussion, Jill catches John off guard with some well-placed dad jokes. Fun and laughter ensue.
GET YOUR #DONTWAIT MUG! :: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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:: EPISODE LINKS ::
Jill's Guest Profile :: https://www.ambiguouslyblind.com/guests/jill-wheatley/
Jill's First Episode (#39) :: https://www.ambiguouslyblind.com/jill-wheatley/
Mountains Of My Mind Website :: https://mountainsofmymind.com/
John and Erin are joined by Chef Regina and Stan to help tackle the age-old question. What do you want for dinner tonight? After dosing out some priceless marriage advice, Regina and Stan talk about how they handle dinner and share some practical ideas to make meals easier for anyone. While Stan admits he’s still learning after 38 years of marriage, both he and John find that a timely pizza can save the day.
GET YOUR #DONTWAIT MUG! :: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
:: PODCAST LINKS ::
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:: EPISODE LINKS ::
Regina's Guest Profile :: https://www.ambiguouslyblind.com/guests/regina-mitchell/
More episodes with Erin :: https://www.ambiguouslyblind.com/guests/erin/
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Aerin, sorry I mean Erin, once again joins John for the fifth installment of the hypothetical question series. While indulging in a bottle of Dreaming Tree, Erin decides to change her name, settles for $1,000 per day for the rest of her life while wearing socks to bed. Fun and laughter ensue. What would you choose?
GET YOUR #DONTWAIT MUG! :: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
:: PODCAST LINKS ::
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:: EPISODE LINKS ::
All Hypothetically Speaking Episode :: https://www.ambiguouslyblind.com/category/hypothetically-speaking/
More episodes with Erin :: https://www.ambiguouslyblind.com/guests/erin/
Media producer, voiceover artist, public speaker, consultant and longtime philanthropist, Michele Spitz, stops by to have a couple of laughs and discuss her passion of advocating for media accessibility and disability inclusion and awareness. For over 10 years, she has been dedicated to funding audio description and post production accessibility grants to ensure that media content is equally accessible to low-vision and blind audiences. From ballet films to Beatles documentaries and Academy Award Ceremonies, Michele seems to have done it all. Because she believes that art can heal the soul, she doesn’t appear to be slowing down anytime soon.
SIGN UP FOR THE DON'T WAIT LIST :: http://www.dontwaitlist.com/
GET YOUR #DONTWAIT MUG! :: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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This is a listener supported podcast. Please consider donating to build and sustain our community
:: EPISODE LINKS ::
Guest Profile :: https://www.ambiguouslyblind.com/guests/michele-sitz/
Aaron Erin once again joins John to pose more humorous hypothetical questions. In a twist, Erin gets herself in trouble when she brings a bottle of wine and mentions that it’s from Schitt's Creek which earns the distinguished “E” rating for this episode. So, hide your kids and hide your wives as Erin gets food poisoning while John is barefoot in a public bathroom. Fun and laughter ensue. What would you choose?
SIGN UP FOR THE DON'T WAIT LIST :: http://www.dontwaitlist.com/
GET YOUR #DONTWAIT MUG! :: https://amblind.creator-spring.com/listing/destiny-dont-wait-black?product=1565
:: PODCAST LINKS ::
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:: EPISODE LINKS ::
More episodes like this :: https://www.ambiguouslyblind.com/category/qa/
More episodes with Erin :: https://www.ambiguouslyblind.com/guests/erin/
Amazingly, Erin is back with another round of hypothetical questions for John. Although there are no “scandalous” questions this time, things get weird as John is topless, allergic to elderly people and on the top bunk by the end of the episode. But, fun and laughter still ensue. What would you choose?
SIGN UP FOR THE DON'T WAIT LIST :: https://www.dontwaitlist.com/
GET YOUR #DONTWAIT MUG! :: https://amblind.creator-spring.com/
:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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Like what we're doing? Support us: Buy Me A Coffee
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:: EPISODE LINKS ::
Becky Werner Meningitis Foundation :: https://stampoutmeningitis.com/beckys-story/
More episodes with Erin :: https://www.ambiguouslyblind.com/guests/erin/
Sheryl Ellis, a Certified Professional in Human Resources and a recognized expert in Title I of the Americans with Disabilities Act (ADA) stops by to discuss how she helps employees and employers understand how to apply the ADA to a workplace accommodation situation and how employees can research, request, and negotiate an accommodation with their employer while successfully managing their health condition and being productive employees.
In addition to attending the same high school and college, although a couple of years apart, John and Sheryl discuss their shared but different experience with meningitis while attending Texas Tech University.
GET YOUR #DONTWAIT MUG! :: https://amblind.creator-spring.com/
:: PODCAST LINKS ::
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:: EPISODE LINKS ::
Guest bio & social links: Sheryl Ellis :: https://www.ambiguouslyblind.com/guests/sheryl-ellis/
Augmented HR Services :: https://aughrs.com/
After an exciting & somewhat cryptic podcast and book update, Erin is back with another round of hypothetical questions for John that force them to choose the better of two bad options. Things get tense when Erin poses a “scandalous” question and is shocked with John's answer. After determining John was kidding, fun and laughter ensue. What would you choose?
GET YOUR #DONTWAIT MUG! :: https://amblind.creator-spring.com/
SIGN UP FOR THE MAILING LIST :: https://www.ambiguouslyblind.com/
:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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This is a listener supported podcast. Please consider donating to build and sustain our community
:: EPISODE LINKS ::
Becky Werner Meningitis Foundation :: https://stampoutmeningitis.com/beckys-story/
Dylan Rafaty’s personal mission is to increase opportunities by opening new doors so that everyone can have an overall better quality of life. He stops by to share his unique personal journey, being born with both significant hearing loss and early struggles with eating. Dylan’s formative school years weren’t much help. So, he learned to self-advocate and took matters into his own hands. Then wrote Occupy Special Education, Children Should be Seen and Heard, a book that chronicles his experience and helps school districts and educators better understand how to ensure students with special needs succeed. After countless volunteer and entrepreneurial ventures, Dylan will be starting the Doctor of Education program at the University of Southern California in a couple of months.
Morten Bonde returns to talk about life after publishing his book, Sentenced to Blindness, Now What, which chronicles his journey from hopelessness to possibility and liberation from sight loss due to Retinitis Pigmentosa. Since leaving his career at the Lego Group, Morten has become a meditation teacher, mindfulness instructor and TEDx speaker with an ambition to captivate, influence and motivate people to take back control and become the master of their own life. Morten talks about the course he created, Inner Peace in Outer Chaos and how mindfulness enables people to develop an awareness of their breath, their body, their thoughts, and their surroundings to anchor themself in the present moment, focusing on what is happening right now, rather than getting caught up in thoughts about the future or the past.
GET YOUR #DONTWAIT MUG! :: https://amblind.creator-spring.com/
:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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Like what we're doing? Support us: Buy Me A Coffee
This is a listener supported podcast. Please consider donating to build and sustain our community
:: EPISODE LINKS ::
Guest bio & social links: Morten Bonde :: https://www.ambiguouslyblind.com/guests/morten-bonde/
Inner Peace in Outer Chaos :: http://www.innerpeaceinouterchaos.com/
MortenBonde.com :: http://www.mortenbonde.com/
Morten's TEDx :: https://youtu.be/LFkrPRZFRXg
Current Ms. Wheelchair America, Ali Ingersoll, stops by to share her personal journey as a C6 Complete Quadriplegic that began with a shallow water diving accident. Ali’s captivating personality, relentless drive and belief in paying it forward, are all on display as she shares about the work she does for the disability community and inclusion for all humans in the corporate world as well as the basic rights she tirelessly fights for daily with health insurance providers. Ali sheds light on taboo topics with her unique style of dark humor and along with John shares a desire to bring her message to a TED Talk stage.
Get your #DontWait Merch: https://amblind.creator-spring.com/
:: PODCAST LINKS ::
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This is a listener supported podcast. Please consider donating to build and sustain our community
:: EPISODE LINKS ::
Guest bio & social links: Ali Ingersoll :: https://www.ambiguouslyblind.com/guests/ali-ingersoll/
Unblinded Link: https://fb.watch/jI8VUPxgkh/
Vice President of Marketing, Stephanie Jones, stops by to talk about how the Menus4ALL app puts over 850,000 accessible restaurant menus in the palm of your hand. She then takes John for a test drive with the app to demonstrate the ease of use and empowerment it provides as well as a great Memphis BBQ restaurant. Stephanie also shares her unique story of sight loss due to a condition called Pseudotumor Cerebri and discovers a striking similarity to the cause of John’s sight loss. As a Braille instructor, Stephanie gives John his first lesson and underscores the importance of Braille and how it works with technology.
Get your #DontWait Merch: https://amblind.creator-spring.com/
:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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This is a listener supported podcast. Please consider donating to build and sustain our community
:: EPISODE LINKS ::
Guest bio & social links: Stephanie Jones :: https://www.ambiguouslyblind.com/guests/stephanie-jones/
Menus4ALL :: https://www.menus4all.com/
Mary Mammoliti, host of the Kitchen Confession Podcast and the Dish with Mary TV Show, stops by to share her personal journey with Retinitis Pigmentosa (RP) and how she confronted her imposter syndrome, stopped saying sorry and started finding ability in her disability and smiling all the time. Mary found that spending time in the kitchen was therapeutic and launched Mary 2.0 and the podcast and TV show to work with sighted chefs and share adaptive cooking tools and techniques. Mary also answers some hard-hitting questions from John while gracefully deflecting ridiculous Canadian language jokes.
Get your #DontWait Merch: https://amblind.creator-spring.com/
:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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This is a listener supported podcast. Please consider donating to build and sustain our community
:: EPISODE LINKS ::
Guest bio & social links: Mary Mammoliti :: https://www.ambiguouslyblind.com/guests/mary-mammoliti/
Kitchen Confession Podcast :: https://www.kitchenconfession.com/
“Marketing publicist”, podcaster and advocate, Lis Malone stops by to share her personal journey with Retinitis Pigmentosa (RP) and how she developed a #DontWait mindset to move forward through the uncertainty of her diagnosis and future. Lis and John compare notes on brushes with danger and reflect on the tough decision to surrender their driver’s licenses, and its underlying impact on one’s psyche. She also talks about the good time she has as the lone female and American voice on the long-running AT Banter Podcast. Lis, a New Jersey Devils enthusiast, makes a side bet for this year’s Stanley Cup playoffs and manages to get John to speak a distinct four-letter word just after the puck drops, earning the distinguished “E” rating for this banter-filled episode.
As a professional marketer and publicist for authors and their books, Lis has worked with many authors including New York Times Best Selling Authors, Steven Hartov and Jerome Preisler, both of whom she mentions in this discussion.
Get your #DontWait Merch: https://amblind.creator-spring.com/
:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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Visit LisMalone.com
This is a listener supported podcast. Please consider donating to build and sustain our community
:: EPISODE LINKS ::
Guest details: Lis Malone: https://www.ambiguouslyblind.com/guests/lis-malone/
John Grimes AT Banter Episode: https://atbanter.com/2023/03/15/at-banter-episode-327-john-grimes/
Co-host of the AT Banter Podcast, Ryan Fleury, stops to share the story of how his sight was abruptly lost in an accident and the new found direction his life took thereafter. Ryan and John discuss assistive technology and how AI and Chat GPT, will be a game changing technology for the blind a visually impaired. A musician on the side, Ryan shares a song he wrote that was turned into an audio described music video.
:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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This is a listener supported podcast. Please consider donating to build and sustain our community
:: EPISODE LINKS ::
Guest details: Ryan Fleury: https://www.ambiguouslyblind.com/guests/ryan-fleury/
AT Banter Podcast Website: https://atbanter.com/
White Cane Records: https://www.whitecanerecords.com/
John Grimes AT Banter Episode: https://atbanter.com/2023/03/15/at-banter-episode-327-john-grimes/
Patti Wukovits and Alicia Stillman, two mothers who each lost their young, healthy daughters too soon to a now vaccine-preventable disease, Meningitis B (known as MenB). High school senior Kimberly (Patti’s daughter), 17, died one week before her graduation. College sophomore Emily (Alicia’s daughter), 19, died just 36 hours after her first symptoms. Both Kimberly and Emily had received the MenACWY vaccine, the MenB vaccine was not yet available to help protect them from MenB.
In 2014, to educate the public about meningococcal meningitis and MenB vaccination, Patti and Alicia each established their own foundations named after their daughters. Both mothers have since joined forces under the Meningitis B Action Project to make sure other parents don’t needlessly suffer the same fate.
The objective of the Meningitis B Action Project is to:
- Empower young adults (and their parents) with information to talk to their healthcare provider about Meningitis B and the vaccine that can help prevent it.
- Encourage healthcare providers to discuss Meningitis B and the MenB vaccine with their patients.
- Increase awareness of Meningitis B on high school, college and university campuses
- Engage policymakers to ensure broader access to the MenB vaccine.
:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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:: EPISODE LINKS ::
Guest details:
Patti Wukovits: https://www.ambiguouslyblind.com/guests/patti-wukovits/
Alicia Stillman: https://www.ambiguouslyblind.com/guests/alicia-stillman/
Meningitis B Action Project: https://meningitisbactionproject.org/
The Kimberly Coffey Foundation: https://www.kimberlycoffeyfoundation.org/
The Emily Stillman Foundation: https://www.foreveremily.org/
Founder and President of the Together Achieving Dreams (TAD) Foundation, Kathryn Webster, stops by to share her unbelievably unique sight loss journey and the humbling moment she became comfortable with herself. Kathryn explains TAD Foundation’s three pronged approach to increasing employment in corporate America for the blind and low vision community by bridging the gap between potential and possibility.
:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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Like what we're doing? Support us: Buy Me A Coffee
This is a listener supported podcast. Please consider donating to build and sustain our community
:: EPISODE LINKS ::
Guest details: Kathryn Webster: https://www.ambiguouslyblind.com/guests/kathryn-webster/
TAD Foundation Website: https://tadfoundation.org/
Chad Foster and Blind Ambition: https://www.ambiguouslyblind.com/chad-e-foster-and-blind-ambition/
Director of Strategic Partnerships, Billy Parker, stops by to explain how NSITE is a one-stop-shop for blindness employment. A spinoff of the National Industries for the Blind (NIB), NSITE works with employers to identify potential candidates who are blind, visually impaired, and/or veterans. From there, NSITE assists with accessibility needs, onboarding, and training, then prepares both parties for job placement. Their work does not end there; it continues with ongoing support to accommodate changes in accessible technology and employer requirements.
Billy and John also discuss how remote work opportunities have been a game-changing element to today’s workforce and how accessible technology benefits everyone.
:: PODCAST LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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Like what we're doing? Support us: Buy Me A Coffee
This is a listener supported podcast. Please consider donating to build and sustain our community
:: EPISODE LINKS ::
Guest details: Billy Parker: https://www.ambiguouslyblind.com/guests/billy-parker/
NSITE Website: https://nsite.org/
Blind Grilling Experience Podcast: https://podcasts.apple.com/us/podcast/blind-grilling-experience/id1515334158
Flame Boss Website: https://www.flameboss.com/
James Warnken stops by to share about his journey with progressive vision loss due to the rare eye disease, Genetic Retinal Dystrophy, which typically leads to blindness. He discusses some of the challenges he faced during his unconventional path through school and how the challenges taught him to self-advocate and solve his own problems, usually with technology. James also talks about his passion for online accessibility and what he and his colleagues are doing to make the internet a better experience for all users.
:: SHOW LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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Like what we're doing? Support us: Buy Me A Coffee
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:: GUEST LINKS ::
More details: James Warnken: https://www.ambiguouslyblind.com/guests/james-warnken/
James' website: https://www.jameswarnken.com/
During a performance in summer 2020, Mark Erelli looked down at his guitar neck and couldn’t believe what he saw. Or rather, what he couldn’t see: his fingers on the frets. Soon after, a diagnosis of Retinitis Pigmentosa (RP) would bring some answers, but it also yielded new questions. Does diminished eyesight correlate with lesser insight? Does your songwriting change when your perception of the world around you changes? These questions, and Erelli’s hunt for creative agency, are at the heart of his new album Lay Your Darkness Down.
Mark stops by to share a bit about his early RP journey and talk to John about his new album. Although his 13th solo record, Mark explains why Lay Your Darkness Down is the first record he felt like he needed to make in this new season of life. Mark and John discuss lyrical comprehension, Mark’s musical influences and play snippets from Marks new record.
:: SHOW LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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:: GUEST LINKS ::
More details: Mark Erelli: https://www.ambiguouslyblind.com/guests/mark-erelli/
Mark's website: https://www.markerelli.com/
Mark's music on Amazon: https://amzn.to/3lthisC
Fellow survivor, Samantha Bennett, stops by to share her meningitis experience that begins as a 10-month-old baby and how the fast action of her family and an ER doctor helped her beat the odds. She recalls the countless months spent in the hospital as a child enduring reconstructive surgeries and how she turned to art to express herself. Embracing her scars and her story, Sam connected with the National Meningitis Association (NMA) and the Confederation of Meningitis Organizations (CoMO) and has been an influential advocate for awareness, education, and legislation for over 10 years. Sam talks about her career as an artist and the special role butterflies play.
:: SHOW LINKS ::
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John Bramblitt's Episode: https://www.ambiguouslyblind.com/john-bramblitt/
:: GUEST LINKS ::
More details: Samantha Bennett:https://www.ambiguouslyblind.com/guests/samantha-bennett/
Sam's website: https://www.paintersam.com/
Sam's meningitis story for CoMO: https://www.comomeningitis.org/sams-s-story
The great Neva Fairchild stops by to share her unique sight loss story and how she was set on a path to success by her parents. Neva recalls her time at Esther’s Place during her early days with the American Foundation for the Blind (AFB) and her infamous encounter with John and the Motorola Q. Neva discusses her current AFB role coordinating the Blind Leaders Development Program which aims to increase successful employment outcomes, upward mobility, and leadership attainment of blind and visually impaired individuals.
:: SHOW LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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:: GUEST LINKS ::
Book: The Leadership Challenge by Jim Kouzes and Barry Posner
AFB Blind Leaders Development Program
Connect with Neva Fairchild:https://www.ambiguouslyblind.com/guests/neva-fairchild/
Founder and CEO, Lukas Simianer, stops by to illuminate some staggering employment statistics of the blind and visually impaired community. He shares the origin story of Clusiv, the world’s first e-learning platform built for and by the blind and their mission to remove barriers to employment and to reduce the net amount of suffering in the world.
:: SHOW LINKS ::
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:: GUEST LINKS ::
Clusiv.io
Connect with Lukas Simianer :https://www.ambiguouslyblind.com/guests/lukas-simianer/
Kirk Adams stops by to share his sight loss story and journey learning to advocate for himself and how his work with the Seattle Lighthouse for the Blind lead him to the CEO position at The American Foundation for the Blind (AFB). Kirk talks about the AFB’s history and his time with the organization and the role AFB Consulting plays in the development of accessible technology including VoiceOver on the iPhone. Now, Kirk is self-employed, with Innovative Impact LLC. He’s looking for fun high impact innovative projects that accelerate inclusion of blind people in the work force.
:: SHOW LINKS ::
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:: GUEST LINKS ::
Connect with Kirk Adams:https://www.ambiguouslyblind.com/guests/kirk-adams/
Entrepreneur and founder of Jack From Brooklyn, Jackie Summers shares how a health scare caused him to reevaluate his priorities, create a liqueur company, and build his own table. While creating Sorel, a modern twist on a 500-year-old Caribbean classic, he became America’s first black legal distiller and filled his team with diversity and inclusion in mind. With the help of Dr Hoby Wedler, Sorel is found in over 20 states in the US and is available to ship from sorelofficial.com. Whether you enjoy Sorel hot, cold, or in a cocktail, Cheers!
A 500 Year JourneyBorn of the spice trade, versions of sorrel date back to the 1600s, when hibiscus flowers were first imported to the New World from West Africa and hibiscus-based beverages became a Caribbean tradition. Made with Moroccan hibiscus blended with Brazilian clove, Indonesian cassia and Nigerian ginger, this bright red liqueur from Brooklyn is a modern twist on a timeless classic.
:: SHOW LINKS ::
For show notes, guest profiles, photos, blog and more information, visit AmbiguouslyBlind.com and connect on:
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:: GUEST LINKS ::
Connect with Jackie:https://www.ambiguouslyblind.com/guests/jackie-summers/
SOREL: https://sorelofficial.com/
John and Erin welcome back long-time compadres, Chris and Heidi Elder all the way from Germany, for some season’s eatings and Alton Brown’s version of aged eggnog. As homemade eggnog experts, Chris and Heidi discuss the simple recipe and their traditions. Not much into dairy, John gets distracted by one of the ingredients, Courvoisier, and resurrects a “high-society” cocktail, the Stinger, which was made famous by Reginald Vanderbilt a century ago. The couples also critique some over-played and bad Christmas songs as well as a Texas folk favorite.
:: SHOW LINKS ::
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ALTON BROWN’S AGED EGGNOG
INGREDIENTS:
12 large eggs, pasteurized if you need peace of mind1 pound sugar1 teaspoon freshly grated nutmeg1 pint half-and-half1 pint whole milk1 pint heavy cream1 cup Jamaican rum1 cup cognac1 cup bourbon1/4 teaspoon kosher salt
ACTIVE TIME: 15 minutesTOTAL TIME: 14 days & 15 minutesYIELD: 8 TO 10 Servings
PROCEDURE
Separate the eggs and store the whites for another application.
Beat the yolks with the sugar and nutmeg in a large mixing bowl until the mixture lightens in color and falls off the whisk in a solid ribbon.
Combine dairy, booze, and salt in a second bowl or pitcher and then slowly beat into the egg mixture.
Move to a large glass jar (or a couple of smaller ones) and store in the fridge for a minimum of 2 weeks. A month would be better, and 2 better still. In fact, there’s nothing that says you couldn’t age it a year, but I’ve just never been able to wait that long. And yes, you can also drink it right away.
Serve in mugs or cups topped with a little extra nutmeg grated on top.
STINGER COCTAIL
INGREDIENTS:
2 ounces cognac1 ounce white creme de menthe
PROCEDURE:
Add the cognac and white crème de menthe into a mixing glass with ice and stir until well-chilled
Strain into a rocks glass over crushed ice
MUSIC
Last Christmas – Wham!
Same Old Lang Syne – Dan Folgelberg
Merry Christmas From the Family – Robert Earl Keen, Jr
While on a family road trip, Regina Mitchell noticed a pain in her eye that changed from slight to excruciating within a few days. After a long medical journey she was diagnosed with Bilateral Panuveitis and began losing her sight rapidly. Regina stops by to share her sight loss story and how she adapted her lifestyle and career as a classically trained chef and began working intuitively in the kitchen. Not only a conqueror but a converter, Regina is using her skills as a chef to teach livestream cooking classes to blind and low vision individuals to gain confidence and independence in their kitchen.
:: SHOW LINKS ::
Connect with Regina: https://www.ambiguouslyblind.com/guests/regina-mitchell/
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:: GUEST LINKS ::
ChefRegina.com: http://chefregina.com
Professionally Marissa Nehlsen is a coach, speaker, and CEO of a 7-figure financial firm. Personally, she is a sister, mother, and grandmother with an extraordinary journey from a trailer court to financial freedom with plenty of challenges along the way. Marissa stops by to share her unique Stargardts sight loss story, the sage wisdom from her mother to be victorious rather than a victim and the importance of the support from her brother, Matt, to rise up and keep moving. And, as host of the Live Life Rich Podcast, Marissa teaches others to thrive spiritually, emotionally, relationally, physically and financially and how to think bigger and live life richer than ever before.
:: SHOW LINKS ::
Connect with Marissa: https://www.ambiguouslyblind.com/guests/marissa-nehlsen/
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:: GUEST LINKS ::
Live Life Rich Podcast: https://marissanehlsen.com/podcast
Born with the rare condition, Microphthalmia, Dr. Hoby Wedler has been totally blind since birth and is remarkably tuned into his surroundings and has frequently chosen to walk the unbeaten paths in life. Among many things Hoby is a chemist, food scientist, sensory awareness expert, entrepreneur and lives with an abundance mindset. He stops by to share his sight loss story and how a wholesome upbringing shaped his work ethic and lead him to the realization that food and flavor are his visual art form.
Hoby also talks about his work with Jackie Summers, the first legal black distiller in the U.S. and founder of Sorel, the most awarded liqueur of 2022. Earlier this year, Jackie tapped Hoby to help scale the production of Sorel while maintaining quality and improving the formula. By combining his heightened senses with his knowledge of organic chemistry, Hoby is using his unique perspective to maximize Sorel’s sensory experience, from brightening its signature ruby red hue, to enhancing each individual flavor and ingredient.
While discussing their shared love of music and sound, Hoby shares an incredible story of pairing wine and music from the Dave Matthews Band in a truly unique version of Tasting In the Dark.
:: SHOW LINKS ::
Connect with Hoby: https://www.ambiguouslyblind.com/guests/hoby-wedler/
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:: GUEST LINKS ::
Sorel: https://sorelofficial.com/
Hoby: https://www.hoby.com/
As a photographer well into her professional career, Robyn Rachel sensed something was changing in her body. After a routine eye exam, she was referred to a specialist and diagnosed with Retinitis Pigmentosa (RP) and Usher’s Syndrome (Usher’s 2A). Robyn decided it was time to pivot from weddings to see the world while she could. Now, as the Silver Lining Explorer, Robyn lives fully, travels often and explores always! She and her family travel the globe in search of incredible experiences while capturing stunning images to document and share her story.
:: SHOW LINKS ::
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:: GUEST LINKS ::
Connect withRobyn at: https://www.ambiguouslyblind.com/guests/robyn-rachel-lindema/
Robyn's Websites
Silver Lining Explorer: http://silverliningexplorer.com
Photography: http://robynrachelphotography.com/
Matt Philipenko returns to expand on the assistive devices and software that makes his world go ‘round. As a Microsoft Office Ranger, Matt is passionate about Windows and Office accessibility. Matt takes John for a tour of new and improved Magnifier and Narrator features as well as some of the new natural voices.
Previous Episode: Rise Up with Matt Philipenko
Connect with Matt at: https://www.ambiguouslyblind.com/guests/matt-philipenko/
Assistive Devices Discussed
Binoculars: https://amzn.to/3ghXCWp
Ruby 7 HD: https://www.palmervision.com/product/ruby-7-hd-ruby-xl-hd/
IrisVision VR: https://www.palmervision.com/product/iris-vision/
Clover Book Pro: https://www.palmervision.com/product/clover-book-pro/
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As a senior at the University of Kansas, Andy Marso was not aware of the signs and symptoms of meningitis. Because of the fast action of his friend and local doctors Andy miraculously survived to tell the tale in his book, Worth the Pain: How Meningitis Nearly Killed Me - Then Changed My Life for the Better. Almost two decades later, Andy lives with the permanent physical effects of his battle with meningitis. He stops by to share his incredible story, similarities with John's experience and how he lives with a deep understanding that we are entitled to nothing but can accomplish anything.
Connect with Andy at: https://www.ambiguouslyblind.com/guests/andy-marso/
Andy's Book > https://amzn.to/3rfUhct
October 5th is World Meningitis Day. Every year, it brings together people from all over the world to highlight the need to raise awareness of meningitis, its signs and symptoms, the vaccines that are available, and that it is an infection that needs global attention and effort to be defeated.
Learn more > CoMO https://www.comomeningitis.org/
Follow #DefeatMeningitis
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Producer and host of Reid My Mind Radio, Thomas Reid, stops by to share his journey that started as an infant with a rare form of cancer, retinoblastoma, that eventually took both of his eyes and how life began anew in 2004. Thomas explains what he does to make blindness sound funky and shares some girl dad advise with John. As a pioneer in the new ear of audio description, Thomas talks about the art and creative side of AD and opines on the importance of including the blind and visually impaired community in the process.
Connect with Thomas at: https://www.ambiguouslyblind.com/guests/thomas-reid/
Will Thomas read your mind? Check out this episode to find out. Young Gifted Black & Disabled - The Price of Blind Girl Magic ( https://reidmymindradio.libsyn.com/young-gifted-black-disabled-the-price-of-blind-girl-magic )
Audio Description Network Alliance > https://theadna.org/
Disability Podcasts Survey >
https://bit.ly/PODAccess
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As a teenager in South Australia, Bethany Cody, only experienced minor and somewhat random signs of a visual impairment. During her driver training she was concerned about driving at night. After consulting with an optometrist, she was referred to a specialist and diagnosed with Retinitis Pigmentosa and a carrier of the USH2A (Usher’s Syndrome) gene. Bethany stops by to share her often lonely journey with RP and answer some of John’s crazy questions about life and music down under.
Connect with Bethany at: https://www.ambiguouslyblind.com/guests/bethany-cody/
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For more than 10 years Ren Leach has provided broadcast-quality Voice Over recordings for countless TV and radio commercials and video productions. In the last six months he has directed his voice efforts to Audio Description. Ren stops by to talk about Audio Description and the importance of quality in the consumer’s experience. Ren shares examples of his work with Netflix’s, See For Me, and HBO’s, Andre The Giant documentary.
Connect with Ren at: https://www.ambiguouslyblind.com/guests/ren-leach/
RenLeach.com
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Host of the Hindsight Is 20/200 podcast, Chad Bouton, stops by to share about his journey growing up with Retinitis Pigmentosa (RP) . The ups and downs and advise he would give his younger self to take advantage of his disadvantages. Chad also discusses the blessing in disguise that lead him into podcasting, some of the amazing connections he has made and the big plans for the future.
Connect with Chad at: https://www.ambiguouslyblind.com/guests/chad-bouton/
Listen: Hindsight Is 20/200
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Matt Philipenko stops by to share his journey with the rare retinal disease Stargardts, how it affected him and his family and why he developed the mindset to Rise Up rather than roll over. Matt also discusses the extraordinary nomadic adventure that ultimately landed him in Florida in a role with Microsoft where he can pursue his passion for accessibility.
Connect with Matt at: https://www.ambiguouslyblind.com/guests/matt-philipenko/
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Stephanae McCoy stops by to share her unique sight loss story and talk about the advocacy platform she created called Bold Blind Beauty. which celebrates a diverse and inclusive community through empowerment, connection, and barrier breaking. Stephanae also elaborates on the importance of her family and close network of friends to help get her through life’s battles and fuel her fight to keep showing up.
Connect with Stephanae at: https://www.ambiguouslyblind.com/guests/stephanae-mccoy/
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Fellow bacterial meningitis survivor, Krystle Beauchamp, stops by to share her meningitis story and how thankful she is for a quick diagnosis and the support of her family and friends. As Advocates for the National Meningitis Association (NMA), Krystle and John discuss awareness campaigns they’ve been involved in with Molly Ringwald and Tiffani Thiessen. Krystle also explains the 12th Man and what it means to be a two-percenter.
Connect with Krystle at: https://www.ambiguouslyblind.com/guests/krystle-beauchamp/
This year, the 16 Vaccine campaign expanded to the new It’s About Time: Help Stop the Clock on Meningitis campaign. To learn more visit HelpStoptheClock.org.
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The most interesting griller in the world, Chris Peltz, stops by with an update on season two of his podcast, The Blind Grilling Experience. Chris and John discuss the numerous accessible tools available for outdoor grilling and John shares his experience making Eastern Carolina style barbecue sauce. Chris also talks about his latest hobby, woodworking, and some of the accessible tools he has used for a wide range of projects.
Connect with Chris at: https://www.ambiguouslyblind.com/guests/chris-peltz/
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Eastern Carolina Barbecue Sauce Ingredients:
- 2 cups distilled white vinegar
- 3 thin slices lemon, seeded
- 1 tablespoon freshly ground black pepper
- 1 ½ teaspoons cayenne pepper
- 1 teaspoon paprika
- 1 teaspoon ground ancho chile pepper
- 1 teaspoon dried red pepper flakes
- ¼ teaspoon ground white pepper
- ¼ cup white sugar
Watch the video: Rodney Scott's Secret Eastern Carolina Barbecue Sauce
And remember,
"If you're lookin' you ain't cookin'" --Chris Peltz
Amy Lyle, a party waiting to happen, stops by with a glass of pinot grigio to catch up and share the progress of the creative writing, tv and movie projects she is tenaciously working on. Amy and John dig a little deeper into their shared Ohio roots and take a stroll through 80’s music and whisky songs.
Connect with Amy at: https://www.ambiguouslyblind.com/guests/amy-lyle/
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Erin is back with more questions for John. In a twist, these questions are hypotheticals that force them to choose the better of two bad options. Fun and laughter ensue. What would you choose?
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Entrepreneur and mother, Victoria Watts, stops by to share her story of parenting a child that was born blind, her inspiration to create the tactile packaging language, The CyR.U.S. System of Raised Universal Symbols, and the ambitious goal to make it the standard for accessible consumer product packaging.
Meet CyR.U.S. > https://cyrussystem.com/
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Professional Speaker & Curiosity Instigator André van Hall stops by to help us unleash the power of what if to awaken curiosity, so we can instigate change, adapt and innovate. André also shares his vision loss story, about his book, The Curiosity of Change, and the adaptations he made to become extraordinary. John and André share adaptive grilling and cycling techniques and opine on the significance of accessible technology.
Flame Boss (Smoker Temperature Controller)
Weber Fish Basket (For Grilling Burgers)
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AndrevanHall.com
Andre's book: https://amzn.to/3r4u8Oe
Andrew Donald, also known as the Nocturnal Archer, is a professional pianist, vocalist and music educator living and working in Melbourne, Australia. He stops by to talk about life with Rod-monochromatism, a rare vision impairment that causes an extreme sensitivity to light, very low visual acuity and total color blindness, and how he has spent a lifetime pursuing numerous creative passions such as photography, martial arts and more recently traditional archery.
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Andrew on Instagram: https://www.instagram.com/nocturnal_archer/
Chad E Foster is back to continue the conversation about how he was able to take advantage of disadvantages, embrace discomfort and change his mindset to experience tremendous growth and personal development. Chad also talks us through the experience of skiing down a double black diamond slope and being in the passenger seat of the vehicle his wife was driving, while in labor, to the hospital for the birth of their first child.
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Chad's Book: https://amzn.to/3FgwCy2
Chad's Website: https://chadefoster.com/
Founder of Blind Fury Fitness, Brittany Culp, stops by to share why she believes that mental health and physical fitness go hand-in-hand, and contribute to the overall wellness of individuals. Brittany also talks about her journey with sight loss due to Retinitis Pigmentosa, the advantage of her early diagnosis and adaptations she made growing up in a small Texas town, becoming a, body builder, personal trainer and business owner.
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Connect with Brittany on Instagram and Facebook.
Author of Blind Ambition, Chad E Foster, stops by to talk about his journey with retinitis pigmentosa and share some funny and painful trials and tribulations along the way. Chad also reflects on his transformation from victim to visionary, how his life changed with the realization that his life is easier being totally blind rather than half sighted. Chad and John also talk about the family, friends and technology that propelled them through college, dating an a bit about child birth.
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Chad's Book: https://amzn.to/3FgwCy2
Chad's Website: https://chadefoster.com/
Home brew master and long-time compadre, Chris Elder, stops by to discuss John’s second attempt at cider making. Joining John and Chris are the cider tasting experts, Erin and Heidi, to critique the results and share ideas for the next batch of cider and ease of making aged eggnog at home. As 2021 comes to an end, the four discuss their favorite Christmas movies and music as well as some they’re glad to be done with.
Check out the Tilt Hydrometer
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Steve Bate, MBE stops by to share how the shock of his Retinitis Pigmentosa diagnosis may have been the best thing that ever happened to him. In just a few years Steve adapted his dreams of outdoor adventure into cycling and won Paralympic gold and world championships in the process. Steve also discusses the random hobbies that keep him busy, his future as a cyclist and the 6500 mile ride he is planning across Africa.
Check out: SteveBateMBE.com
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Becky Andrews, CMHC stops by to share about her journey with Retinitis Pigmentosa, her business Resilient Solutions and some extraordinary athletic adventures. Becky also reflects on her memoir and gives John some much needed parenting advice.
Check out: Resilient Solutions
Becky's Book: Look Up, Move Forward
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The great, John Bramblitt, stops by to share his unique story of vision loss and how his childhood passion for drawing developed into a career as a world-renowned painter. John describes his creative process, how he perceives colors from music and how he uses touch to paint in brilliant color.
Go to Bramblitt.com to see John's brilliant work.
John's Book: Shouting in the Dark: My Journey Back To The Light
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Founder of Aille Design, Alexa Jovanovic, stops by to talk about her community driven brand and movement aimed to make social change by infusing accessibility into fashion. Their prominently displayed crystal beaded braille letters create tremendous intrigue and awareness for the visually impaired community. Alexa also shares the origin story and the importance of their early partnership with the American Foundation for the Blind.
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Go to AilleDesign.com to get your very own intriguing braille fashion.
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Lance Johnson stops by to talk about his journey in the early stages of retinitis pigmentosa and how, as the host of The See-Through Podcast, he aims to create transparency on disabilities and the champions with them. Lance and John discuss several of their mutual podcast guests, what they’ve learned along the way and living the wild and wacky podcast life.
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Check out Lance's show The See-Through Podcast
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Have you ever thought to yourself; “What do I want out of life?” After receiving a diagnosis of Retinitis Pigmentosa at age 29, Morten Bonde did. Through subsequent struggles and increasing stress, he decided that he was going to change his mindset to change his story. Morten stops by to talk about his book, Sentenced to Blindness, Now What, which details his journey from hopelessness to possibility and liberation from sight loss.
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Morten Bonde's Website
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Mariagrazia Buttitta stops by to share her story of growing up in Sicily with Cone Dystrophy, a rare eye disease and her work with Eye2Eye. She also discusses her book, Now I See, where she chronicles her struggles with acceptance, mental health and gives John a beginner’s lesson on the art of making Sicilian style espresso.
Visit EmbracingYourDifferences.com. Adults seeking help with the challenges of living with blindness or visual impairment can call the Eye2Eye Program at (833) 932-3931 and leave a message with their name and phone number or email Eye2Eye at eye2eye@shp.rutgers.edu.
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Three-time world Shot Put and Discus champion, Kevin Brousard stops by to share how sports dramatically changed the trajectory of his life after struggling with a tremendously rare eye condition as a child. Kevin also talks about his work with the United States Association of Blind Athletes (USABA) and his TEDX Talk, Enable the Disabled.
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Check out TalksByKevin.com and USABA.org for more details.
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Author of Meditation For Everyone, Jay W Spillers stops by to talk about the tremendous benefits of meditation and share tips and best practices for getting started. Jay also elaborates on how stillness, mindfulness and affirmations are the keys to success with meditation.
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The little podcast that could turns one! It’s been a tremendous year and 40 episodes and we’re just getting started. The star of the show Erin joins John to recap the first year of the podcast and what to expect in year two. John is excited to announce that his dream, the book project, is beginning to make progress and is hopeful for continued support to help make the dream a reality. Support The Dream
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For Jill Wheatley, it was a day like any other when a sudden accident caused a traumatic brain injury. She stops by to tell her survival story of more than two years, seven hospitals in three countries. Jill also shares her struggle with an eating disorder and adapting to severe vision loss resulting from the injury and how she is shining light on the power of perspective and possibility while chronicling her adventurous life with Mountains Of My Mind.
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Go to Mountains Of My Mind
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Kristin Smedley, bestselling author of Thriving Blind and creator of the Thriving Blind Movement, stops by to share the story of her introduction to blindness and how she found her way out of the darkness to help her family and countless others discover how to see differently.
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Get the book: Thriving Blind
Visit: KristinSmedley.com
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Catarina Rivera, also known as the Blindish Latina, stops by to talk about her role as a disability stigma smasher. Born with Usher’s syndrome, which involves both hearing loss and vision loss, Catarina is using her life experience to speak and advocate for those will disabilities and teach others about the importance of diversity and inclusion.
Connect with Catarina
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Brad and Bryan Manning, also known as Two Blind Brothers, stop by to discuss how growing up with Stargardt’s disease, an inherited disorder of the retina, instilled some life lessons that equipped then to create their clothing line and donate the profit to the Foundation Fighting Blindness. They also talk about the origin of their Shop Blind Challenge and John’s double blind shopping experience.
Shop Blind
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Due to a rare eye disease, Kyle Coon lost his sight at an early age, but that minor detail didn’t affect his vision for life and ability to complete some amazing athletic adventures. He is a hopeful member of Team USA for the 2020 Paralympic Games in Tokyo. In addition to all of that, Kyle stops by to talk about his new book, Discovering a Life Without Limits.
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Singer and songwriter, Ginny Owens, stops by to discuss her new book, Singing in the Dark: Finding Hope in the Songs of Scripture. She also talks about her early musical influences, how she lives by faith not by sight and the bizarre favor she received in college to kick-start her musical career. We also get to hear one of Ginny’s latest songs, Don’t You Dare.
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Internationally known as The Blind Blogger, Maxwell Ivey, stops by to share his story of transforming himself from a morbidly obese, failed carnival owner into a respected amusement equipment broker in the best health of his life. Maxwell also talks about his books, an encounter with the United States Secret Service and his podcast, What’s Your Excuse?.
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Walter Wittich, Ph.D., is an Associate Professor at the University of Montreal School of Optometry. He stops by to discuss his work at the Wittich Vision Impairment Research Lab which focuses on rehabilitation for people with vision and hearing loss as well as use and usability of assistive technology.
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Amy Lyle is an author, comedian, actor, screenwriter, mom and like John, grew up in the heart of it all, Ohio. She stops by to discuss her Appalachian roots and the importance of humor in her life, the road to publishing her first book, The Amy Binegar-Kimmes-Lyle Book of Failures and offer John some advice on writing his story and raising children.
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Bree Klauser is a New York-based Actress, Voiceover Artist, Singer and Songwriter who happens to be born with low vision. Bree and John discuss the low vision spectrum and her work on the Apple TV + series, SEE, The Audible Original series, Phreaks and we hear a song from her band, Bree and the Whatevers.
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Fellow survivor, Jamie Schanbaum, stops by to share her meningitis story and talk about life as an amputee, the vaccine legislation she helped pass, her advocacy with the J.A.M.I.E. Group and her days as a cyclist on the United States Paralypic team. Jamie and John also discuss their experience adapting back into college life after meningitis.
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Juan Alcazar is a film maker and the creator of the YouTube channel, JC5 Productions. Juan stops by to discuss how he, as a visually impaired person, tells stories visually. Juan and John also discuss adaptive technology and the emergence of audio description in television and movies.
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Budding Dallas Texas musician Remy Reilly stops by to discuss the diverse musical influences that helped to create her sound and her song writing style.
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Vintage friend and realtor extraordinaire, Scott Goshorn, stops by to reminisce on adolescent shenanigans in Ohio and ask John some questions about the meningitis experience. Scott discusses how his television advertising experience fit well into his real estate career with the assistance of the great Björn Goshörn.
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Rob Sherrard, returns to ask about non-verbal communication, the podcast medium and Ted Lasso. Rob and John discuss Tesla, autonomous driving, SpaceX and Blue Origin.
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Vintage friend and Hip-Hop aficionado, Brandon May, is back with John to reminisce and conversate on the groups and jams that influenced them during their formative years circa 1985 – 1995.
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Chris Fears and his daughter, Finley, join Erin and John to share Finley’s miraculous story. Chris also explains how the experience motivated he and his wife, Dallas, to launch Fearless Hope, a non-profit organization dedicated to supporting children living with visual impairments.
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Fellow survivor, National Meningitis Association Advocate and podcast host, Adam Busuttil, stops by to share his meningitis story and the similarities with John’s story. They also discuss their road back to college and the importance of mental health checks along the way. Adam also discusses his podcast, The Dad Experience.
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The host of the YouTube channel, Live Accessible, Carrie Morales, stops by to discuss the condition that is responsible for her visual impairment, Aniridia. Carrie and John also discuss sunglasses, iPhone versus Android, Windows versus Mac and other technology that empowers people with visual impairment.
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Good friend, fellow technology nerd and Nimbix Co-Founder, Rob Sherrard, stops by to discuss how the Atari 2600 and early Apple products took him on a journey from the Dallas Texas area up to the Pacific North West and back and how the iPhone was the beginning of the end of his Windows experience.
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Vintage friend, Brandon May, stops by to revel in the good old days, discuss his life-long love of the written word and his journey to publishing the children’s book, Grace and the Big Blue Mat. Brandon also offers advice to John on how to craft the story he wants to tell.
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Erin returns with more listener questions. John discusses what he misses the most after vision loss, how technology helps with independence and if his other senses have become heightened to adapt to the loss of vision. In addition, they cover plans for the future of the podcast.
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Fellow bacterial meningitis survivor Francesca Testa stops by for a visit to share her harrowing experience with the disease more than 15 years ago. As two former athletes, John and Francesca discuss the challenges they each faced in regaining their strength and independence to return to the activities they loved. Francesca also tells John how meningitis shaped her desire to earn graduate degrees in both public health and law, with the goal of pursuing a career in health policy.
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John reconnects with his friend and former Navy SEAL, Adam Weiner. They bask in the glory of the good old days and discuss Adam’s journey to the United States Naval Academy, becoming a SEAL and transitioning back into civilian life.
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Good friend and host of the Hustle and Pro Podcast, Kelly Walker stops by to talk sports and all that implies. We discuss aging with sports and how life changes impact the way we play and consume sports.
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National Meningitis Association President Leslie Maier joins John and Erin to discuss the organization and how she channeled her grief into advocacy and action after she lost her son to meningitis. Leslie shares Chris’ story, explains how she first got involved with NMA and talks about the types of activities the organization does around vaccine advocacy. She also tells us about the work she did with the Arizona health commissioner to make her state the first in the country to mandate the vaccine that could have potentially saved her son’s life.
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Chris and Erin were integral parts of the four-week cider home brewing process. They join John for the most important part of the experience, the tasting. They sample and critique the final product. Then discuss modifications and the plan for the next batch.
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Erin returns with more listener questions. John discusses his rehabilitation, motivation to return to college life and working through setbacks. Erin and John also share advise they would give their younger selves and their engagement story.
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Lately, most of us have an abundance of time at home. A lifelong friend and home brewing enthusiast, the great Chris Elder, stops by to discuss and walk me through my first home brewing experience.
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Dr. Todd Wolynn, CEO of Kids Plus Pediatrics in Pittsburg, Pennsylvania, works to educate about immunizations, infectious disease and primary care. He stops by to discuss the symptoms of bacterial meningitis, the potential long-term effects, and the vaccines available to help prevent it – as well as the work he is doing to empower vaccine advocates.
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Sam Seavey, host of The Blind Life channel on YouTube, stops by to discuss Stargardt macular degeneration, iOS versus Android, Mac versus Windows, a personal hygiene tip and Simon & Garfunkel.
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Erin, is back! She confronts John about the "out" and they wrap up the story of how they met, discuss meningitis, the mindset of being tremendous and faith.
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Blake Schuchardt is a fellow meningococcal meningitis survivor, advocate for the National Meningitis Association and the cover story for People Magazine’s Summer 2020 Health edition. John and Blake each share their story of the extremely critical meningitis diagnosis period and hospital experience.
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Mrs. Ambiguously Blind, Erin, makes her world-wide podcast debut. She sits down with John to ask some of the most common questions about his vision, podcasting, dating and how they met.
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Cat Bouwkamp with the United States Association of Blind Athletes stops by to discuss her participation in the 2012 London Paralympics, the USABA and National Blind Sports Week.
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Blake Lindsay is a speaker, author of Blind For A Purpose and the manager of Outreach at Envision Dallas. He stops by to share his story and talk technology and White Cane Day.
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The Chief Commercial Officer of eSight , Brian McCollum, joins John to discuss their latest release. eSight4 is a wearable device that enhances vision for the visually impaired and low vision communities.
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Chris Peltz, from the Blind Grilling Experience, stops by to discuss retinitis pigmentosa, being technologically challenged and many things grilling.
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